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  1. Celiac Disease & Gluten-Free Diet Forum

    1. Gluten-Free and Celiac Disease Calendar of Events

      Enter your group's Gluten-Free and Celiac Disease events here.

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    2. Board/Forum Technical Help

      This section deals with questions and problems related to the use of this forum. All "old pros" are invited to help answer questions from the newer participants.

    3. Gluten-Free Foods, Products, Shopping & Medications

      Discussions regarding which mainstream products are gluten-free and which are not.

    4. Celiac Disease - Coping With

      This part of the forum is for techniques and information on how to cope with celiac disease and the gluten-free diet

    5. Celiac Disease - Pre-Diagnosis, Testing & Symptoms

      Discussions related to testing for celiac disease.

    6. Gluten-Free Recipes - Baking & Cooking Tips

      Discussions about gluten-free baking and cooking.

    7. Celiac Disease - Post Diagnosis, Recovery/Treatment(s)

      Discussions related to one's diagnosis with celiac disease.

    8. Celiac Disease - Related Disorders & Research

      Discussions concerning other health problems associated with celiac disease, and celiac disease research

    9. Gluten-Free Restaurants

      Discussions about dining out gluten-free.

    10. Celiac Disease - Parents of Kids or Babies With Celiac Disease

      Discussions with other parents of kids or babies with celiac disease.

    11. Other Food Intolerance and Leaky Gut Issues

      Discussions about additional non-gluten food intolerance issues, including cow's milk (casein), soy, eggs, corn, etc.

    12. Gluten-Free Ingredients & Food Labeling Issues

      Discussions regarding which ingredients are safe and which are not, and food labeling issues.

    13. Gab/Chat Room - To Discuss Anything BUT Celiac Disease / Gluten-Free Diet

      General Chat Unrelated to Celiac Disease - Discuss most things here EXCEPT Celiac Disease / Gluten-Free Diet. Keep it light and avoid controversial topics like global warming, gay marriage, gun control, euthanasia, speed limits on the Autobahn, prisoner torture, etc.

    14. Celiac Disease - Publications & Publicity

      Discussions related to books, articles and other press about celiac disease.

    15. Dermatitis Herpetiformis

      Discussions concerning the skin condition associated with celiac disease.

    16. Gluten-Free Travel

      Discussions concerning how to maintain a gluten-free diet while traveling, including great gluten-free places to visit.

    17. Gluten-Free Diet & Weight Issues

      Discussions about how to lose or gain weight while on a gluten-free diet.

    18. Celiac Disease - Doctors

      Discuss experiences with doctors, how to find a doctor, etc.

    19. Celiac Disease - Teenagers & Young Adults Only

      This area is where Teenagers and Young Adults can discuss issues related to celiac disease and the gluten-free diet.

    20. Gluten-Free International Room (Outside USA)

      Discussions about living gluten-free in Canada, Australia, Asia & Pacific Rim, UK, Europe, etc.

    21. Celiac Disease - Pregnancy

      Discussions related to being pregnant with celiac disease.

    22. Celiac Disease - Friends and Loved Ones of Celiacs

      Non-celiacs discuss their experiences dealing with a friend or loved one with the disease.

    23. Celiac Meeting Room

      A Place where gluten-free people can meet each other--Adults only please.

    24. Celiac Disease - Sleep

      Discussions concerning sleeping problems and celiac disease.

    25. Gluten-Free Sports and Fitness

      Gluten-free athletes discuss fitness, sports nutrition, working out, etc.

    26. Celiac Disease - Support Groups

      Discussions concerning celiac disease support groups and support group meetings.

    27. Gluten Intolerance and Behavior

      Discussions concerning behavioral issues associated with the consumption of gluten.

    28. Super Sensitive Celiacs & Gluten Sensitive

      Non-scientific discussions for those who have been gluten free for at least 6-12 months and suspect they are reacting to lower levels of gluten than the vast majority of celiacs.

    29. Alternative Diets

      Discussions about alternative diets like the Vegetarian Diet, Specific Carbohydrate Diet (SCD), The Low FODMAP Diet. (FODMAP=Fermentable Oligo-Di-Monosaccharides and Polyols), etc.

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    • It looks like it won't be too long before we have a new method of testing for dietary compliance and it appears it's going to be more accurate/sensitive than the present serum tests. At this link, there is an interview with Ivor D. Hill, MD, MB ChB; Alessio Fasano, MD. I would point you to page 4 of that. Some of you may not be able to access the linked page. You can sign up for Medscape, it's free and that's what I did, then you can access all of their articles. The following is part of what both Dr. Hill said and what Dr. Fasano said: Dr. Hill: A very interesting paper has just come out in the American Journal of Gastroenterology,[4]in which a group from Spain looked at gluten immunogenic peptides in the stool and documented that you can actually identify these in the stool. People think that, based on dietary review, they are completely gluten free. That may be something in the future that will give us a very good test, and I am excited about the possibility that we will actually be able to detect gluten immunogenic peptides in the stool and know that the patient is still being exposed, as opposed to relying on dietary review, symptoms, and TTG testing.   Dr Fasano: To echo what Ivor has said, we do have a concern. The same Spanish group presented a follow-up of evidence of the robust performance of this test for immunogenic peptides in stool at the World Congress in Montreal.[5] I am as impressed as Ivor that this might be a very objective, strong way to monitor for inadvertent exposure to gluten.   Here are links to the studies they are referring to and the results:
    • Thank you so much for your advice! I'll try some of your suggestions. Unfortunately, I think I'll be skipping the dermatologist if I can manage. Super high deducible means i'd be paying out of pocket
    • This salad of roasted beets, carrots and apples is perfect for fall. View the full article
    • I have to tell you that, about 3 years ago, I went to the International Celiac Disease Symposium.  The coffee cross-reactive myth was discussed as we were all consuming vast quantities of Starbucks coffee provided by the Sheraton.  Needless to say, it was good for a laugh.    
    • Yeah, I looked for real scientific studies on gluten cross activity and couldn't find any. I did read something about barely being found in instant coffee--so who knows.
    • Gluten Cross-reactive foods is some sort of odd internet myth.  It started with a company that wanted to sell bogus medical tests.  They have even admitted that the coffee thing isn't true - they used gluten contaminated instant coffee.  However, you have to look at the small print in a lot of nonsense in a large binder of stuff to find that fact.  I did it with one of their company reps.. anyway....   If coffee bothers you, it may just be that it is hard on your system.  Maybe you can get it back after some healing.  And it doesn't sound like you had much protein that week.   edit - just looked at the ingredients- that isn't just coffee - who knows what part of it bothered you?  ingredients on GMO Dark Roast Coffee, Chlorogenic Acid, Garcinia Cambogia 95%,Phaseolamin, Cassiolamine Green Tea 100:1 Extract, Ginseng 100:1 Extract, L-Carnitine with Chromium.
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