Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Forums

  1. Celiac.com Celiac Disease & Gluten-Free Diet Forum

    1. Gluten-Free and Celiac Disease Calendar of Events

      Enter your group's Gluten-Free and Celiac Disease events here.

        (178,045 visits to this link)

    2. Board/Forum Technical Help

      This section deals with questions and problems related to the use of this forum. All "old pros" are invited to help answer questions from the newer participants.

      6,596
      posts
    3. Gluten-Free Foods, Products, Shopping & Medications

      Discussions regarding which mainstream products are gluten-free and which are not.

      100,435
      posts
    4. Celiac Disease - Coping With

      This part of the forum is for techniques and information on how to cope with celiac disease and the gluten-free diet

      166,861
      posts
    5. Celiac Disease - Pre-Diagnosis, Testing & Symptoms

      Discussions related to testing for celiac disease.

      109,829
      posts
    6. Gluten-Free Recipes - Baking & Cooking Tips

      Discussions about gluten-free baking and cooking.

      71,017
      posts
    7. Celiac Disease - Post Diagnosis, Recovery/Treatment(s)

      Discussions related to one's diagnosis with celiac disease.

      62,500
      posts
    8. Celiac Disease - Related Disorders & Research

      Discussions concerning other health problems associated with celiac disease, and celiac disease research

      42,154
      posts
    9. Gluten-Free Restaurants

      Discussions about dining out gluten-free.

      28,192
      posts
    10. Celiac Disease - Parents of Kids or Babies With Celiac Disease

      Discussions with other parents of kids or babies with celiac disease.

      53,780
      posts
    11. Other Food Intolerance and Leaky Gut Issues

      Discussions about additional non-gluten food intolerance issues, including cow's milk (casein), soy, eggs, corn, etc.

      56,233
      posts
    12. Gluten-Free Ingredients & Food Labeling Issues

      Discussions regarding which ingredients are safe and which are not, and food labeling issues.

      16,406
      posts
    13. Gab/Chat Room - To Discuss Anything BUT Celiac Disease / Gluten-Free Diet

      General Chat Unrelated to Celiac Disease - Discuss most things here EXCEPT Celiac Disease / Gluten-Free Diet. Keep it light and avoid controversial topics like global warming, gay marriage, gun control, euthanasia, speed limits on the Autobahn, prisoner torture, etc.

      88,078
      posts
    14. Celiac Disease - Publications & Publicity

      Discussions related to books, articles and other press about celiac disease.

      21,300
      posts
    15. Dermatitis Herpetiformis

      Discussions concerning the skin condition associated with celiac disease.

      13,403
      posts
    16. Gluten-Free Travel

      Discussions concerning how to maintain a gluten-free diet while traveling, including great gluten-free places to visit.

      10,265
      posts
    17. Gluten-Free Diet & Weight Issues

      Discussions about how to lose or gain weight while on a gluten-free diet.

      10,796
      posts
    18. Celiac Disease - Doctors

      Discuss experiences with doctors, how to find a doctor, etc.

      12,364
      posts
    19. Celiac Disease - Teenagers & Young Adults Only

      This area is where Teenagers and Young Adults can discuss issues related to celiac disease and the gluten-free diet.

      6,800
      posts
    20. Gluten-Free International Room (Outside USA)

      Discussions about living gluten-free in Canada, Australia, Asia & Pacific Rim, UK, Europe, etc.

      4,360
      posts
    21. Celiac Disease - Pregnancy

      Discussions related to being pregnant with celiac disease.

      6,150
      posts
    22. Celiac Disease - Friends and Loved Ones of Celiacs

      Non-celiacs discuss their experiences dealing with a friend or loved one with the disease.

      6,782
      posts
    23. Celiac Meeting Room

      A Place where gluten-free people can meet each other--Adults only please.

      7,263
      posts
    24. Celiac Disease - Sleep

      Discussions concerning sleeping problems and celiac disease.

      3,657
      posts
    25. Gluten-Free Sports and Fitness

      Gluten-free athletes discuss fitness, sports nutrition, working out, etc.

      3,565
      posts
    26. Celiac Disease - Support Groups

      Discussions concerning celiac disease support groups and support group meetings.

      3,154
      posts
    27. Gluten Intolerance and Behavior

      Discussions concerning behavioral issues associated with the consumption of gluten.

      3,076
      posts
    28. Super Sensitive Celiacs & Gluten Sensitive

      Non-scientific discussions for those who have been gluten free for at least 6-12 months and suspect they are reacting to lower levels of gluten than the vast majority of celiacs.

      5,182
      posts
    29. Alternative Diets

      Discussions about alternative diets like the Vegetarian Diet, Specific Carbohydrate Diet (SCD), The Low FODMAP Diet. (FODMAP=Fermentable Oligo-Di-Monosaccharides and Polyols), etc.

      239
      posts
  • Forum Statistics

    • Total Topics
      104,385
    • Total Posts
      920,610
  • Posts

    • shellyb, I have info. for you & you may yet be able to get an official dx from your dermatologist as she sounds like she would be willing to learn. If you are dx'd with dh it is definitive & no other testing is needed. You don't need to see a GI. Im in FL & have had a long day watching Tropical Storm Hermine & making preparations for it's track which is over where I live. I'm tired! I will have links for you to reputable medical info. on the rash but it make take me till tomorrow or even longer if we lose power.  I'll be back as soon as I can. Question: You're on Dapsone now? How long have you been on it? How is it working for you? Are you getting the proper testing at regular intervals to make sure it isn't doing bad things to you? Were you gluten free before the skin biopsy?
    • Thank you so much for your quick response, GFinDC. While I wouldn't be completely opposed to another skin biopsy, I already had 4 done (3 were done prior to my dermatologist suspecting DH) so I don't love the idea of  yet another hole and scar on my body. Plus, fortunately I don't have any fresh lesions now, which I believe is needed for the biopsy. I wish I would have known to see a GI before going gluten free but I was so desperate to get any relief that I started that and Dapsone as soon as my doctor mentioned it to me.  My rash is definitely symmetrical and I have it in all of the "classic" DH spots although it basically spread over my entire body. As much as I'd like a more formal diagnosis, I really don't think I can go through all of that again. It was so bad that not only was I getting no sleep but I had to change my sheets every morning because there was blood all over them. Sorry, TMI. The worst part is that this all developed during my ninth month of pregnancy and got much worse after I delivered my baby. So not only was I dealing with this insanely itchy rash but I had a newborn and a toddler to take care of.  My daughters' pediatrician did mention doing DNA testing on me first and then my daughters to see if there's any concern that they may be susceptible. I may just go that route for now. I was just curious if others have had similar test results to mine and how did their doctors treat it? Thanks again!
    • Hey guys, the last year and a month of transitioning to totally gluten free was hard, but I now seem to be healthy. The first six months I got horrible cramps that would suddenly come and hit hard, but I really havent seen any of those since about February-March. One thing that I wouldnt say has gotten better is my psyche. I was always sort of an anxious person (hard not to be when you dont feel well yet you have "IBS" and you're just "nervous", which all of you probably know), but I am borderline hermit now. I finally went to the doctor today and was prescribed prozac, so hopefully that helps, but I was just wondering about you guys? Thanks  
    • Thank-you, thank-you! I am so relieved to have input from others who have experience with celiac disease. I'm not sure what I'm going to do about the school cafeteria. I'll ask our very nice and experienced Cafe Mgr for realistic info and details. My primary concern is the safety of my daughter and packing a lunch will not be that big a deal, even though she prefers the fresh prep instead of lunchbox offerings. Sigh. It sounds as if the 504 is unquestionably the preference over the IHCP, since the 504 is binding and follows the student through his/her academic career. I have a meeting with the admin team on Tuesday. Until then, I'm reading lots so i can be informed. And, dkader, I sent you a private message via the blog's feature. I'd certainly love to read the 504 info you have squirreled away. Thank-you so much!
    • The risk of a non-celiac getting intestinal lymphoma is extremely tiny.  The risk of someone with refractory celiac disease is higher (I think maybe double?) but 2 x extremely tiny is still extremely tiny, and an elevated antibody level is not enough to say you have the refractory version.  You could have a repeat endoscopy to look for damage.  Are you still having symptoms?
    • Hello... i got dignoised July 11th... since then I found out I can't handle corn, garlic or dairy.... her stomic might be extra sensitive right now.... im not a doc but I have noticed with out those three foods I have felt better but I belive I might have to cut out more  good luck with you child!!! Its hard
  • Topics

  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,455
    • Most Online
      1,763

    Newest Member
    JLeigh
    Joined