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  1. Celiac.com Celiac Disease & Gluten-Free Diet Forum

    1. Gluten-Free and Celiac Disease Calendar of Events

      Enter your group's Gluten-Free and Celiac Disease events here.

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    2. Board/Forum Technical Help

      This section deals with questions and problems related to the use of this forum. All "old pros" are invited to help answer questions from the newer participants.

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    3. Gluten-Free Foods, Products, Shopping & Medications

      Discussions regarding which mainstream products are gluten-free and which are not.

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    4. Celiac Disease - Coping With

      This part of the forum is for techniques and information on how to cope with celiac disease and the gluten-free diet

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    5. Celiac Disease - Pre-Diagnosis, Testing & Symptoms

      Discussions related to testing for celiac disease.

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    6. Gluten-Free Recipes - Baking & Cooking Tips

      Discussions about gluten-free baking and cooking.

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    7. Celiac Disease - Post Diagnosis, Recovery/Treatment(s)

      Discussions related to one's diagnosis with celiac disease.

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    8. Celiac Disease - Related Disorders & Research

      Discussions concerning other health problems associated with celiac disease, and celiac disease research

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    9. Gluten-Free Restaurants

      Discussions about dining out gluten-free.

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    10. Celiac Disease - Parents of Kids or Babies With Celiac Disease

      Discussions with other parents of kids or babies with celiac disease.

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    11. Other Food Intolerance and Leaky Gut Issues

      Discussions about additional non-gluten food intolerance issues, including cow's milk (casein), soy, eggs, corn, etc.

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    12. Gluten-Free Ingredients & Food Labeling Issues

      Discussions regarding which ingredients are safe and which are not, and food labeling issues.

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    13. Gab/Chat Room - To Discuss Anything BUT Celiac Disease / Gluten-Free Diet

      General Chat Unrelated to Celiac Disease - Discuss most things here EXCEPT Celiac Disease / Gluten-Free Diet. Keep it light and avoid controversial topics like global warming, gay marriage, gun control, euthanasia, speed limits on the Autobahn, prisoner torture, etc.

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    14. Celiac Disease - Publications & Publicity

      Discussions related to books, articles and other press about celiac disease.

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    15. Dermatitis Herpetiformis

      Discussions concerning the skin condition associated with celiac disease.

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    16. Gluten-Free Travel

      Discussions concerning how to maintain a gluten-free diet while traveling, including great gluten-free places to visit.

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    17. Gluten-Free Diet & Weight Issues

      Discussions about how to lose or gain weight while on a gluten-free diet.

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    18. Celiac Disease - Doctors

      Discuss experiences with doctors, how to find a doctor, etc.

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    19. Celiac Disease - Teenagers & Young Adults Only

      This area is where Teenagers and Young Adults can discuss issues related to celiac disease and the gluten-free diet.

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    20. Gluten-Free International Room (Outside USA)

      Discussions about living gluten-free in Canada, Australia, Asia & Pacific Rim, UK, Europe, etc.

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    21. Celiac Disease - Pregnancy

      Discussions related to being pregnant with celiac disease.

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    22. Celiac Disease - Friends and Loved Ones of Celiacs

      Non-celiacs discuss their experiences dealing with a friend or loved one with the disease.

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    23. Celiac Meeting Room

      A Place where gluten-free people can meet each other--Adults only please.

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    24. Celiac Disease - Sleep

      Discussions concerning sleeping problems and celiac disease.

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    25. Gluten-Free Sports and Fitness

      Gluten-free athletes discuss fitness, sports nutrition, working out, etc.

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    26. Celiac Disease - Support Groups

      Discussions concerning celiac disease support groups and support group meetings.

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    27. Gluten Intolerance and Behavior

      Discussions concerning behavioral issues associated with the consumption of gluten.

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    28. Super Sensitive Celiacs & Gluten Sensitive

      Non-scientific discussions for those who have been gluten free for at least 6-12 months and suspect they are reacting to lower levels of gluten than the vast majority of celiacs.

      5,187
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    29. Alternative Diets

      Discussions about alternative diets like the Vegetarian Diet, Specific Carbohydrate Diet (SCD), The Low FODMAP Diet. (FODMAP=Fermentable Oligo-Di-Monosaccharides and Polyols), etc.

      243
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  • Posts

    • Will this be dangerous considering how long I have to wait for any testing? I may not even get a blood test in November but here is hoping. I just worry having to wait so long will cause serious issues, not to mention delay of weight loss which I need for the pre-diabetes. Do ulcers have a chance to cause yellow stools though? I suppose a stool test will be needed for that for any signs of blood in stools but visually it does not seem so. The biggest issue is not knowing what else could be causing the yellow stools as this would not be a diabetic or ulcer thing. And without negative signs on the gallbladder or liver, it is narrowing down the list.

      At the very least this is making me assume I can wait on a final scan of gallbladder and attempt blood tests and endoscopy if they recommend it.
    • The first step is getting a celiac blood panel.   Any medical doctor can order one.  Live near Chicago?  They are do free screenings this month (check their website).  The cost is less than $400 for the complete panel.  If you get a positive on any one of them, then you should be referred to a GI for an endoscopy to obtain intestinal biopsies.   Here's more information from a reliable source and not just some lady on the internet: http://www.cureceliacdisease.org/screening/ Having had my gallbladder removed (probably ruined from undiagnosed celiac disease, but I don't know that for sure), I would recommend a HIDA scan.  I have no idea how expensive that one is.  It's a nuclear test that checks for functionality.  Basically, is your gallbladder squeezing bile into your small intestines when those fries or bacon come down the tube.  Mine happened to actually be rotting (infected).  ER suspected appendicitis, but it was a rotten gallbladder.  I never had any stones (that's what the CT or the ultrasound can find).  I am sorry that you are ill.  Keep eating gluten until all testing is complete.  This is important.  Go gluten free now?  Here's why you shouldn't..... http://theceliacmd.com/2013/04/six-reasons-to-test-for-celiac-disease-before-starting-a-gluten-free-diet/  
    • Hi yams88, The first test usually done for celiac disease is the gliaden antibodies tests.  They are blood test that look for antibodies to gliaden protein, which is found in wheat.  The next test would be an endoscopy to take biopsy samples for microscopic examination.  They look for damage to the villi caused by the immune system attack characteristic of celiac disease. You need to keep eating gluten until all testing is completed.  The tests are not designed to work for some one who has not been eating gluten on a regular basis. You  may also have an ulcer, per the description of constant pain in the upper abdomen that gets worse with less food in your stomach. You want to get the complete celiac disease panel, which tests for several different antibodies types. Welcome to the forum, hopefully we can help you figure things out.
    • Welcome!   At least you know what the source of your illness is....celiac disease.  Now you have some validation.  Feel free to write a letter to your old doctors.  Be nice.  Maybe you'll save someone else from the diagnostic hell you've been through. Okay. There's a grieving period.  That's normal.  We've all been there.  Now the faster you go gluten free, the better you will feel.  It will not be immediate, but slowly you will get well.  It took you time to get really sick and time to heal.  And...it does and can cause all the problems you mentioned!  celiac disease affects so many areas of the body and not just the GI!   Read. Read. Read all that you can about celiac disease and the diet.  Start with our Newbie 101 thread located at the top of the "Coping" section of the forum.  It contains lots of common sense advice.  Celiac.com has several articles on the main page that will help as well.   Gluten is everywhere and you need to figure out how to avoid it.  Cross contamination is real!  Bet your doctor just sent you on your way with a list of gluten-free restaurants!  Ha!   celiac disease is genetic.  So, your Mom should be tested.  All first-degree relatives should be tested even if they are symptom free.  Yes, there are silent celiacs!! Hang in there!    
    • Hi everyone! So a short-ish back story- in 2010 I went from being the healthiest I have ever been to the next day feeling like I had the flu. It was as if a light switched was flipped and it never went away. I spent all of 2010 sure I was dying- I was 25 years old and so freaked out. I went to several doctors who all said I was perfectly healthy. We moved in 2011 and I went to 3 more Doctors. One was a new GP who suggested it could be fibromyalgia. I went to another GP to confirm and will never ever forget that day. He told me that I was "fat" (I had gained 20 lbs. from being unable to run due to constant injuries on top of joint pain) and needed to decide if I wanted to be one of those "chronic people who spend there lives feeling sorry for themselves" and "pretending to be sick". Plus "fibromyalgia isn't a real disorder and it's all in my head" I left SOBBING. I couldn't even drive by his practice without tearing up. I have never felt so belittled in my life. I didn't stop though and in 2012 went to a Rheumatologist who said I had early arthritis and fibromyalgia. The meds helped me to live a semi normal life and helped to fight through the pain. In 2014 I went to a Gastroenterologist for the unbearable stomach cramps and bathroom issues. He did an endoscope and colonoscopy- I was told my esophagus was damaged and put on Dexilant. He also said I had IBS and sent me away. I started to think I was crazy, as did my family. My parents, sisters, my husband, all of them thought I was just being dramatic and just had a low pain tolerance. Because there was NO way I could be sick all the time. Even though my mom has the bathroom issues and joint pain that began in her mid twenties too but her's was never as severe as mine and she had given up long ago on getting an actual diagnosis- I was constantly reminded that she had those issues too and she still did "this and that and it's not an excuse you're just being lazy" . We moved again (we move for my hubby's work), this time to California and I had to get all new doctors. I lucked out by getting a psychiatrist who although expensive was well worth it. She listened and having a long background in other areas of medicine felt that something was wrong and was determined to figure it out. She ran a bunch of tests- a lot of inflammation markers which were all off the charts, a reticulocyte count that was crazy high, and finally the standard CBC had started to show issues. I had a high WBC, RBC, Platelets, and several others were off. My vitamin D was a measly 4 . 1  (the lowest she had ever seen) and my B-12 was low at 170. She got me into an autoimmune specialist who instantly suspected celiac disease. A month later all tests are back and it is Celiac. I feel like writing all of my previous Doc's to prove I  wasn't crazy!!! Even though I now have a diagnosis, I'm still confused as to how it's causing this myriad of symptoms! Within the last few months all cervical lymph nodes and glands have become enlarged, my liver is also very enlarged and causing me not to be able to breathe well laying down. I have drenching night sweats and wake up every night choking on acid I've thrown up (it takes 30 minutes of coughing to bring it all up and finally be able to go back to sleep) not to mention hematuria. Can one disorder cause ALL of that? Add on my 10 years of Infertility  and I'm just exhausted. I just don't know what to do. Will eliminating Gluten really solve all of my problems? More importantly today I realized that Gluten is in EVERYTHING!!!!  Agh!!
    • You're welcome! Yes, I too, hate waiting for lab results. Ugh!
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