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  1. Celiac.com Celiac Disease & Gluten-Free Diet Forum

    1. Gluten-Free and Celiac Disease Calendar of Events

      Enter your group's Gluten-Free and Celiac Disease events here.

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    2. Board/Forum Technical Help

      This section deals with questions and problems related to the use of this forum. All "old pros" are invited to help answer questions from the newer participants.

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    3. Gluten-Free Foods, Products, Shopping & Medications

      Discussions regarding which mainstream products are gluten-free and which are not.

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    4. Celiac Disease - Coping With

      This part of the forum is for techniques and information on how to cope with celiac disease and the gluten-free diet

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    5. Celiac Disease - Pre-Diagnosis, Testing & Symptoms

      Discussions related to testing for celiac disease.

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    6. Gluten-Free Recipes - Baking & Cooking Tips

      Discussions about gluten-free baking and cooking.

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    7. Celiac Disease - Post Diagnosis, Recovery/Treatment(s)

      Discussions related to one's diagnosis with celiac disease.

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    8. Celiac Disease - Related Disorders & Research

      Discussions concerning other health problems associated with celiac disease, and celiac disease research

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    9. Gluten-Free Restaurants

      Discussions about dining out gluten-free.

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    10. Celiac Disease - Parents of Kids or Babies With Celiac Disease

      Discussions with other parents of kids or babies with celiac disease.

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    11. Other Food Intolerance and Leaky Gut Issues

      Discussions about additional non-gluten food intolerance issues, including cow's milk (casein), soy, eggs, corn, etc.

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    12. Gluten-Free Ingredients & Food Labeling Issues

      Discussions regarding which ingredients are safe and which are not, and food labeling issues.

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    13. Gab/Chat Room - To Discuss Anything BUT Celiac Disease / Gluten-Free Diet

      General Chat Unrelated to Celiac Disease - Discuss most things here EXCEPT Celiac Disease / Gluten-Free Diet. Keep it light and avoid controversial topics like global warming, gay marriage, gun control, euthanasia, speed limits on the Autobahn, prisoner torture, etc.

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    14. Celiac Disease - Publications & Publicity

      Discussions related to books, articles and other press about celiac disease.

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    15. Dermatitis Herpetiformis

      Discussions concerning the skin condition associated with celiac disease.

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    16. Gluten-Free Travel

      Discussions concerning how to maintain a gluten-free diet while traveling, including great gluten-free places to visit.

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    17. Gluten-Free Diet & Weight Issues

      Discussions about how to lose or gain weight while on a gluten-free diet.

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    18. Celiac Disease - Doctors

      Discuss experiences with doctors, how to find a doctor, etc.

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    19. Celiac Disease - Teenagers & Young Adults Only

      This area is where Teenagers and Young Adults can discuss issues related to celiac disease and the gluten-free diet.

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    20. Gluten-Free International Room (Outside USA)

      Discussions about living gluten-free in Canada, Australia, Asia & Pacific Rim, UK, Europe, etc.

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    21. Celiac Disease - Pregnancy

      Discussions related to being pregnant with celiac disease.

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    22. Celiac Disease - Friends and Loved Ones of Celiacs

      Non-celiacs discuss their experiences dealing with a friend or loved one with the disease.

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    23. Celiac Meeting Room

      A Place where gluten-free people can meet each other--Adults only please.

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    24. Celiac Disease - Sleep

      Discussions concerning sleeping problems and celiac disease.

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    25. Gluten-Free Sports and Fitness

      Gluten-free athletes discuss fitness, sports nutrition, working out, etc.

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    26. Celiac Disease - Support Groups

      Discussions concerning celiac disease support groups and support group meetings.

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    27. Gluten Intolerance and Behavior

      Discussions concerning behavioral issues associated with the consumption of gluten.

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    28. Super Sensitive Celiacs & Gluten Sensitive

      Non-scientific discussions for those who have been gluten free for at least 6-12 months and suspect they are reacting to lower levels of gluten than the vast majority of celiacs.

      5,138
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    29. Alternative Diets

      Discussions about alternative diets like the Vegetarian Diet, Specific Carbohydrate Diet (SCD), The Low FODMAP Diet. (FODMAP=Fermentable Oligo-Di-Monosaccharides and Polyols), etc.

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  • Posts

    • Biopsy confirmed?
      Okay, this makes more sense now. Was the celiac test in 2014 part of the checking to find out what was wrong with you which resulted in the Barrets dx?  NO, a colonoscopy will not diagnose celiac disease at all. The biopsies for celiac disease are taken in the small intestine not the colon. You need to get your records, both past & present. If you could post them here then we'd have a much better idea of what's going on and be more able to tell you what you might be looking at. When we say you might not have been given the right celiac blood panel, we mean the FULL, CURRENT panel and not just a primary screening. The screening is good but it does miss celiacs. We have members who tested negative on all but the DgP portions so when one has a situation like yours, you need to cover all the bases & have the complete panel done. Here it is: Anti-Gliadin (AGA) IgA
      Anti-Gliadin (AGA) IgG
      Anti-Endomysial (EMA) IgA
      Anti-Tissue Transglutaminase (tTG) IgA
      Deamidated Gliadin Peptide (DGP) IgA and IgG
      Total Serum IgA   
      Also can be termed this way: Endomysial Antibody IgA
      Tissue Transglutaminase IgA 
      GLIADIN IgG
      GLIADIN IgA
      Total Serum IgA 
      Deamidated Gliadin Peptide (DGP) IgA and IgG   If you post your results on the blood work make sure to post the reference ranges listed because different labs have different ranges. It would be imperative to know if the doc took biopsies for celiac when he was doing the endoscopy. How many & where exactly from? Some docs just rely on visual & that's not good enough to dx celiac disease. Biopsies are the only way.
    • Food tolerance issues post-diagnosis
      Hi everybody, I'm a 20 year old male, diagnosed with Celiac in February via biopsy, after suffering with progressively worsening symptoms for around a year. I had the blood test for Celiac in June 2015, which came back negative. My main issue pre-diagnosis was a feeling of uncomfortable fullness after eating small amounts which became more and more severe to the point where I was hospitalised in January with malnutrition and severe weight loss. I was placed on a NG feeding tube whilst in hospital as I was struggling to eat at all by this point (even a bowl of cereal led to hours of discomfort - the only comparison I can use to describe the feeling was as if there was a brick sitting in my stomach after eating). An endoscopy I had whilst in hospital showed I had Celiac (flattened villi with inflammation) and follow-up gene test was positive. After a couple of months at home on the NG tube, I found I was able to eat small amounts of food again with some symptoms but not of the severity I was experiencing previously. It seemed as if the time spent on the tube in addition to the gluten-free diet had allowed some healing to take place. I was able to eat enough to maintain my weight and came off the tube completely. My symptoms are similar now to when I came off the tube about 6 weeks ago, but I can cope with it for the moment until it heals fully. It has been a very difficult year but I'm pleased to see some progress now. Currently, however, I am having problems tolerating food in the morning. I had been having Tesco gluten-free cornflakes with milk for breakfast and finding that OK, however I think the recipe may have been changed as the texture/taste became more coarse and I suddenly noticed the symptoms were considerably worse after eating them and upset my stomach for the rest of the day. I tried gluten-free rice krispies and milk, again without success. I am not lactose intolerant as milk and cheese don't cause problems for me and milk actually seems to settle my stomach in the morning, as when I tried toast on its own, it was much worse than milk and cereal. Has anyone had similar issues early in the day or got any tips or advice for what to eat/drink with Celiac/intestinal inflammation in the morning? Thank you for your help. 
    • My doctor suspects Coeliac Disease ?
      Several conditions other than Celiac, can elevate ttg readings including autoimmune diseases, a parasitic disease/infection etc. Also for some patients the ttg can be a false positive. Which is why I think its helpful to have the full panel, to make an interpretation.  Your GI/Gut specialistic can run the full panel on the NHS.  Which is what they did for me before the biopsy.   
    • Biopsy confirmed?
      Several conditions can cause increased lymphocytes in the duodenum including Celiac.  The blood test will help confirm /rule out Celiac. If your villi is normal along with negative celiac blood test, then this would make celiac unlikely. Do you know which blood test has been requested now and two years ago?  Its possible that something could have been missed if the full celiac blood panel was not run.  
    • Does the Preferential Expression of HLA-DQ2.5 Genes in Celiac Disease Impact T Cell Response?
      Does the preferential xxpression of HLA-DQ2.5 Genes in celiac disease impact T cell response? View the full article
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    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
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