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  1. Celiac Disease & Gluten-Free Diet Forum

    1. Gluten-Free and Celiac Disease Calendar of Events

      Enter your group's Gluten-Free and Celiac Disease events here.

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    2. Board/Forum Technical Help

      This section deals with questions and problems related to the use of this forum. All "old pros" are invited to help answer questions from the newer participants.

    3. Gluten-Free Foods, Products, Shopping & Medications

      Discussions regarding which mainstream products are gluten-free and which are not.

    4. Celiac Disease - Coping With

      This part of the forum is for techniques and information on how to cope with celiac disease and the gluten-free diet

    5. Celiac Disease - Pre-Diagnosis, Testing & Symptoms

      Discussions related to testing for celiac disease.

    6. Gluten-Free Recipes - Baking & Cooking Tips

      Discussions about gluten-free baking and cooking.

    7. Celiac Disease - Post Diagnosis, Recovery/Treatment(s)

      Discussions related to one's diagnosis with celiac disease.

    8. Celiac Disease - Related Disorders & Research

      Discussions concerning other health problems associated with celiac disease, and celiac disease research

    9. Gluten-Free Restaurants

      Discussions about dining out gluten-free.

    10. Celiac Disease - Parents of Kids or Babies With Celiac Disease

      Discussions with other parents of kids or babies with celiac disease.

    11. Other Food Intolerance and Leaky Gut Issues

      Discussions about additional non-gluten food intolerance issues, including cow's milk (casein), soy, eggs, corn, etc.

    12. Gluten-Free Ingredients & Food Labeling Issues

      Discussions regarding which ingredients are safe and which are not, and food labeling issues.

    13. Gab/Chat Room - To Discuss Anything BUT Celiac Disease / Gluten-Free Diet

      General Chat Unrelated to Celiac Disease - Discuss most things here EXCEPT Celiac Disease / Gluten-Free Diet. Keep it light and avoid controversial topics like global warming, gay marriage, gun control, euthanasia, speed limits on the Autobahn, prisoner torture, etc.

    14. Celiac Disease - Publications & Publicity

      Discussions related to books, articles and other press about celiac disease.

    15. Dermatitis Herpetiformis

      Discussions concerning the skin condition associated with celiac disease.

    16. Gluten-Free Travel

      Discussions concerning how to maintain a gluten-free diet while traveling, including great gluten-free places to visit.

    17. Gluten-Free Diet & Weight Issues

      Discussions about how to lose or gain weight while on a gluten-free diet.

    18. Celiac Disease - Doctors

      Discuss experiences with doctors, how to find a doctor, etc.

    19. Celiac Disease - Teenagers & Young Adults Only

      This area is where Teenagers and Young Adults can discuss issues related to celiac disease and the gluten-free diet.

    20. Gluten-Free International Room (Outside USA)

      Discussions about living gluten-free in Canada, Australia, Asia & Pacific Rim, UK, Europe, etc.

    21. Celiac Disease - Pregnancy

      Discussions related to being pregnant with celiac disease.

    22. Celiac Disease - Friends and Loved Ones of Celiacs

      Non-celiacs discuss their experiences dealing with a friend or loved one with the disease.

    23. Celiac Meeting Room

      A Place where gluten-free people can meet each other--Adults only please.

    24. Celiac Disease - Sleep

      Discussions concerning sleeping problems and celiac disease.

    25. Gluten-Free Sports and Fitness

      Gluten-free athletes discuss fitness, sports nutrition, working out, etc.

    26. Celiac Disease - Support Groups

      Discussions concerning celiac disease support groups and support group meetings.

    27. Gluten Intolerance and Behavior

      Discussions concerning behavioral issues associated with the consumption of gluten.

    28. Super Sensitive Celiacs & Gluten Sensitive

      Non-scientific discussions for those who have been gluten free for at least 6-12 months and suspect they are reacting to lower levels of gluten than the vast majority of celiacs.

    29. Alternative Diets

      Discussions about alternative diets like the Vegetarian Diet, Specific Carbohydrate Diet (SCD), The Low FODMAP Diet. (FODMAP=Fermentable Oligo-Di-Monosaccharides and Polyols), etc.

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  • Posts

    • Those could be celiac symptoms or they could be something else.  Just because celiac runs in your family, I would not jump to conclusions.  That could be dangerous!   For example, my niece presented with celiac disease symptoms.  She tested negative but they found that she has Crohn's (not that she can't ever develop celiac disease).  While a gluten free diet could not hurt her, it is not the cause of her Crohn's flare-ups.    I would not worry about his weight unless he is no longer on the growth charts.   There could be more related to his anxiety issues too. i would NOT recommend sharing prescriptions, especially on a 9 year old!  Dapsone is some pretty evil medication that can do some serious liver damage (but if you have DH or  leporisy, it might be worth the risk -- but I would think not for kids).  For DH, sticking to a gluten-free diet  is much preferred, but I will let one of our members who has DH comment on that.   Those with DH often do not test positive in blood work.  Best to get a skin biopsy (tricky on DH so read up). Please find a dermatologist  and/or a Ped GI who is celiac savvy.    
    • So, now they have found a metal toxicity in my body along with needing to be gluten free.  For the toxicity, I am now taking supplements after and between meals.  This a good thing because it prompts me to actually eat 3 meals a day and in a timely manner and not just a grab on the go item whenever.  The down side is remembering to take the silly things.  I can honestly say how much a pain it is to remember to take the supplements sometimes.  Been on this regimen for about a week now, and I am starting to feel better and all my systems are getting thoroughly cleaned out.  The real test will be in about 3 weeks or so, as it is about this time I become more vulnerable to the neurological symptoms.  I actually did some research on metal toxicity and found something incredible.  The symptoms I had been having all fall under this problem.  This could also have been yet another contributing factor of why I needed to go gluten free. Just a thought.  One thing I did consistently find is that once the toxicity is taken care of, this would not take away any food allergies or gluten issues.  I had gone through a different detox program back in February-March, and the neurological symptoms I have been dealing with was magnified x10 it seemed.  Another praise in this regimen is that I have been virtually symptom free since taking these supplements.  A few episodes but very minor.   
    • I have not taken him to a dermatologist. I have dapsone, which I put on the rash, it always clears up. I have it for another family member. But then I started reading about celiac and all these dots are out there but not connected.  The next time he has the bumps, I am going to take him in. In the mean time, I am trying to find a dermatologist who understands the condition. I don't want my kid to have celiac. And I kinda feel crazy for thinking he may have a gluten issue but with it in my family and him having these other things, I want to be dilligent.   i will read up on the test you suggested. Thanks for taking the time to read and respond everyone.   
    • I tested positive to deamidated gliadin in August at a hospital. My old GI tested me using gliadin (the test listed on your result) in September and it was negative. Literally the next day, my new GI tested for deamidated gliadin again and it was positive (I was unaware the hospital scheduled an appointment with the new GI for follow up).  If you still suspect it, Google deamidated gliadin, print out the Mayo clinic lab info and circle the part where it says they have discontinued the use of gliadin in favor of the deamidated gliadin.  Has he seen a dermatologist?
    • He has a rash on his fingers from time to time. Angular Chetelis. Mouth sores. So skinny. Anxious. 
    • The blood test results are negative (and he had the complete panel).  No GI issues (per your posting).  What makes you suspect celiac disease?  
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