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  1. Celiac.com Celiac Disease & Gluten-Free Diet Forum

    1. Gluten-Free and Celiac Disease Calendar of Events

      Enter your group's Gluten-Free and Celiac Disease events here.

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    2. Board/Forum Technical Help

      This section deals with questions and problems related to the use of this forum. All "old pros" are invited to help answer questions from the newer participants.

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    3. Gluten-Free Foods, Products, Shopping & Medications

      Discussions regarding which mainstream products are gluten-free and which are not.

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    4. Celiac Disease - Coping With

      This part of the forum is for techniques and information on how to cope with celiac disease and the gluten-free diet

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    5. Celiac Disease - Pre-Diagnosis, Testing & Symptoms

      Discussions related to testing for celiac disease.

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    7. Celiac Disease - Post Diagnosis, Recovery/Treatment(s)

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    11. Other Food Intolerance and Leaky Gut Issues

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    12. Gluten-Free Ingredients & Food Labeling Issues

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    13. Gab/Chat Room - To Discuss Anything BUT Celiac Disease / Gluten-Free Diet

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    14. Celiac Disease - Publications & Publicity

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    15. Dermatitis Herpetiformis

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    16. Gluten-Free Travel

      Discussions concerning how to maintain a gluten-free diet while traveling, including great gluten-free places to visit.

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    17. Gluten-Free Diet & Weight Issues

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    18. Celiac Disease - Doctors

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    19. Celiac Disease - Teenagers & Young Adults Only

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    20. Gluten-Free International Room (Outside USA)

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    21. Celiac Disease - Pregnancy

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    22. Celiac Disease - Friends and Loved Ones of Celiacs

      Non-celiacs discuss their experiences dealing with a friend or loved one with the disease.

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    23. Celiac Meeting Room

      A Place where gluten-free people can meet each other--Adults only please.

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    24. Celiac Disease - Sleep

      Discussions concerning sleeping problems and celiac disease.

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    25. Gluten-Free Sports and Fitness

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    26. Celiac Disease - Support Groups

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    27. Gluten Intolerance and Behavior

      Discussions concerning behavioral issues associated with the consumption of gluten.

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    28. Super Sensitive Celiacs & Gluten Sensitive

      Non-scientific discussions for those who have been gluten free for at least 6-12 months and suspect they are reacting to lower levels of gluten than the vast majority of celiacs.

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    29. Alternative Diets

      Discussions about alternative diets like the Vegetarian Diet, Specific Carbohydrate Diet (SCD), The Low FODMAP Diet. (FODMAP=Fermentable Oligo-Di-Monosaccharides and Polyols), etc.

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  • Posts

    • Ha!    That happens to me all the time!!!!!  It drives me crazy!
    • "Accidentally marked them soy free".  Are you kidding?  That's fraud!  Consumer Reports just issued a huge report this month on supplements.   Yes, everyone thinks they are all "natural" and therefore safe.  Doctors and nurses recommend them all the time, but they can do a lot of damage.  Anyone can start making them in their bathroom and there's literally no regulation.   Geez, it is safer to buy food products (no gluten ingredients listed) from companies like Kraft and ConAgra because they are regulated more!  http://www.consumerreports.org/cro/magazine/2016/09/index.htm What about the probiotics?  Columbia University tested about 20 of them and found that over half had gluten in them.....enough to make celiacs  remain sick. https://www.sciencedaily.com/releases/2015/05/150515083232.htm Think twice about taking supplements.  Make sure you really medically need supplements.  I prefer certified gluten-free if I need to take them and I take nothing right now because all my labs are okay!  You have been on the gluten-free bandwagon for many years (member here for years).  Your doctors should be looking at other things that might be making you sick still.  Something is wrong!   That's my two cents!    
    • Hi Schlafentzug, The usual diagnosis process is a blood test for antibodies first, followed up by an endoscopy to check for gut damage.  You have to eat gluten for 12 weeks before the blood tests. It sounds like your brother may have celiac disease also.  His gut lining villi were damaged by something, and villi flattening  is a common celiac disease indicator.  Being shorter than other family members is also a common indicator. The excessive gas is probably from bad digestion.  The gut damage interferes with proper digestion and some enzymes aren't made.  Lactase is made by the villi in the gut. You should definitely get tested and before going gluten-free IMHO.
    • That's supposed to say on call physician, not in game.  Stupid autocorrect.
    • To answer your question about water retention, fluid retention in the arms, legs and face is called edema.  It is a symptom of a variety of medical conditions.  Some of those conditions are benign and will resolve themselves with time, and some are quite serious and require medical attention.  For example, edema is quite common in the last stages of pregnancy.  It can indicate pre-eclampsia, which is serious, and so it needs to be monitored.   Anyway, I suggest you get a same day appointment to see your doctor, or an in-game physician at a quick care clinic, if he/she is not available.  At least get it checked out, to make sure it's nothing serious.  They will want a urine sample, so make sure you don't tinkle right before you leave the house.
    • Welcome Sara!  It sounds like you may not have had the complete celiac blood panel.  It sounds like your doctor is woefully mis-informed!  Why bother testing when you have been gluten free?  Can he not read Dr. Google? (My neighbor is an ER doctor and he consults with a medical version of "Dr. Google" at times because doctors are supposed to know how to research besides cramming all the medical information into their heads.)   Anyway, you can either get back on gluten and get re-tested (must be on gluten for 8 to 12 weeks) or stay gluten free.   The University of Chicago's celiac website is the most consumer friendly (besides knowing their stuff).  Study this page and the other pages..... http://www.cureceliacdisease.org/screening/ If you continue to stay gluten free, it's for life.  Read every label.  Research and study up!   There is a steep learning curve.  Our Girl Scout troop studied Australia.  We tired the Vegemite for fun.  But not me.  It contains gluten.  Just reinforcing that you must know for sure if whatever you are eating is gluten free. Abir gave you some good advice too!   Take care.    
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