This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
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I have just tried certified gluten-free pure oats again. I last tried them in November and had a burning sensation in my gut for some weeks so did not want to eat them for a while before trying again. So I had hoped now I am nearly two and a half years into the gluten-free journey I might be able to eat them again but I am in pain, yet again ,so have decided that I am probably one of those celiacs for whom avenine is a problem and I intend to steer well clear of them in future. Very disappointing for someone with Scottish ancestry! One thing I would be very interested to know is if anyone who has a problem with oats, as a celiac, has also experienced neurological symptoms after eating them. I have just started a new tingling symptom in my upper thigh and don't know whether to pin this on the oats or sciatica, as in fact I have been doing some heavy lifting in the last couple of days. Many thanks.
Glad you are feeling better. I doubt your symptoms were from malnourishment, but rather from a possible few sources: Perhaps you were not eating enough for a few days (especially carbs), and your body switched to ketosis (fat oxidation). Unless you up your electrolytes (sodium, magnesium and potassium), lowering your carb intake will result in wtaer lost along with electrolytes. This can cause weakness, headaches, shakiness, fatigue and even heart palpitations. It takes a few days for the body to get used to not relying on glucose (carbohydrates - veggies, fruit, baked goods, etc) for fuel. Or you could have been experiencing gluten withdrawal (or as well) if you are new to eating gluten-free. A minority of people feel quite horrible when first removing gluten from their diet. It lasts a few days to a few weeks. Getting vitamin levels checked is a good idea for most celiacs. The common low nutrients are calcium, magnesium, potassium, zinc, copper, ferritin, iron, B12, D, A and.... I think I'm forgetting one. Hmm. Anyway, those ones are good to have checked. Feel better.
Did that granola bar contain gluten free certified oats? Even if it did, some celiacs do not process oats well at all. This has been a topic discussed for years by the celiac community. For some it does trigger gluten like reactions. Many of our members have strange food intolerances. Others are more common (soy, corn). I have issues still with Xanthan Gum. Go figure! Never bothers my hubby at all. So I eat lettuce-wrapped sandwiches instead of using gluten-free commercial bread. I bake using guar gum as a substitute for Xanthan Gum at home Glad that you are figuring it out!
No, the University of Chicago stated stool tests or otherwise: "Why don’t you recognize tests (stool tests or otherwise) for non-celiac gluten sensitivity that are currently available through companies like Enterolab or Cyrex? We only embrace tests that have endured rigorous scientific evaluations. So far, these tests have received no evidence-based support. Enterolab has never successfully published anything on the accuracy of stool tests (nor have any other stool test manufacturers, to our knowledge) making it difficult to confirm the research results. Because of this, we must make our decisions based on what has been published; Harvard, UCSD, and the American College of Gastroenterology all agree that stool tests are simply not sensitive or specific enough methods in screening for celiac disease." So, it is up to you to be your best health advocate. I encourage you to research websites that are not selling something. I stand behind my earlier statement that you should have celiac testing done by a medical doctor and those tests should be recognized and approved by medical organizations such as the American or British Gastroentology groups. Cross reactivity? No one in the current celiac research world supports this to my knowledge (Neither do I). I encourage you to get tested for celiac disease. The panel costs less than $450 and is usually covered by insurance. I wish you well!