General Chat Unrelated to Celiac Disease - Discuss most things here EXCEPT Celiac Disease / Gluten-Free Diet. Keep it light and avoid controversial topics like global warming, gay marriage, gun control, euthanasia, speed limits on the Autobahn, prisoner torture, etc.
So I've been feeling real tired the past six months (celiac rx 12/2014) and losing a lot of hair. First labs ran in May by my family dr were: TSH (.942), glucose,sodium, potassium, chloride, co2, calcium ca, calcium corrected, bun, creatinine, protein, albumin, albumin ratio, bilirubin, alkaline phosphates, AST, alt, egfr, WBC, rbc, hbo, hct, mcv, much, mchc, rdw, platelet count, vit b12, all cholesterols. The only things at all off were calcium, ca and protein. Both slightly high. Still feeling worn out and hair so thin I went back two weeks ago. They ran TSH (1.315), t3 free (2.68), t4 free (.88), tpo ab (.4), iron, transferrin, total iron binding and saturation. All fine. I'm super frustrated. I went back today to be given the latest results and since all were fine today they ran ANA, FSH and hm...I forget at least one other thing. Blood pressure was 105/57. Any of you have suggestions or thoughts? He said if these turn up nothing I'll most likely be referred to a rheumatologist. Sigh. I was sure it was thyroid based so I researched endocrinologists. I know nothing about rheumatologist and I'm just so frustrated thinking this is just my new norm. I'll be bald by Christmas. :-/
Believe it or not. it is called GLUTEN ATAXIA and that is my first sign that I have been glutened--I start bumping into stuff, I walk like a drunk person, my speech slurs.
It won't hurt anything to go gluten-free now, except the possibility of getting a diagnosis of celiac disease. When i went gluten-free, it seemed like the initial changes were spread over about 6 weeks. I had gut spasms for that time. And other changes, all for the better. Initial recovery from celiac damage can take up to 18 months, so it can be a slow thing. Some people get better much faster of course, because we are all individuals and not identical.
Going gluten-free for celiac disease is a lifetime commitment though, and some people have a hard time doing that without a diagnosis. Even minor amounts of gluten can cause us to react, so it is best to eat a very simple diet of whole foods at first. Avoid dairy and processed foods. I hope it works out for you. I know some people with Crohns disease eat gluten-free and find it helps them. Gluten is a tough thing to digest for all people, but most don't have an immune reaction to it like celiacs do.
Honestly, I would not trust the school to provide a gluten-free meal except for fruit, salads, veggies, etc. I sub in a school cafeteria and I swear everything is breaded or on bread. Utensils are shared. They're very clean but unless you have a very knowledgeable person in there, I just wouldn't chance it. I found a slim Jim type snack that says gluten-free on it. If you want to give me your email or FB account, I can send you some very valuable info on 504's though. They carry the student right through college. I kept a copy of what a friend wrote about her daughter being in a sorority and just how the 504 helped immensely. But, I would definitely get one and still be prepared to pack a lunch. All our meals are delivered frozen and we just hear them up. If your school actually fixes food, that's different.