General Chat Unrelated to Celiac Disease - Discuss most things here EXCEPT Celiac Disease / Gluten-Free Diet. Keep it light and avoid controversial topics like global warming, gay marriage, gun control, euthanasia, speed limits on the Autobahn, prisoner torture, etc.
Welcome to the club that you never wanted to join! (I plagiarized that from someone else here but can't recall who so I can't give credit to them.)
Anyway, there is a steep learning curve to being gluten free. It takes time to learn to read labels. It takes time to heal (like months to YEARS). Symptoms can wax or wane. You just have to keep moving forward. Give yourself time to heal and do not worry about the gym right now. It will come back later, I promise (from a gal who cycles, swims, and runs).
Read our Newbie 101 section pinned at the top of the "Coping" section. It contains valuable tips about cross contamination and hidden sources of gluten. Read, read, read, the internet from reliable sources (not crazy bloggers).
You will feel better soon.
"Accidentally marked them soy free". Are you kidding? That's fraud! Consumer Reports just issued a huge report this month on supplements. Yes, everyone thinks they are all "natural" and therefore safe. Doctors and nurses recommend them all the time, but they can do a lot of damage. Anyone can start making them in their bathroom and there's literally no regulation. Geez, it is safer to buy food products (no gluten ingredients listed) from companies like Kraft and ConAgra because they are regulated more!
What about the probiotics? Columbia University tested about 20 of them and found that over half had gluten in them.....enough to make celiacs remain sick.
Think twice about taking supplements. Make sure you really medically need supplements. I prefer certified gluten-free if I need to take them and I take nothing right now because all my labs are okay!
You have been on the gluten-free bandwagon for many years (member here for years). Your doctors should be looking at other things that might be making you sick still. Something is wrong!
That's my two cents!
The usual diagnosis process is a blood test for antibodies first, followed up by an endoscopy to check for gut damage. You have to eat gluten for 12 weeks before the blood tests.
It sounds like your brother may have celiac disease also. His gut lining villi were damaged by something, and villi flattening is a common celiac disease indicator. Being shorter than other family members is also a common indicator.
The excessive gas is probably from bad digestion. The gut damage interferes with proper digestion and some enzymes aren't made. Lactase is made by the villi in the gut.
You should definitely get tested and before going gluten-free IMHO.
To answer your question about water retention, fluid retention in the arms, legs and face is called edema. It is a symptom of a variety of medical conditions. Some of those conditions are benign and will resolve themselves with time, and some are quite serious and require medical attention. For example, edema is quite common in the last stages of pregnancy. It can indicate pre-eclampsia, which is serious, and so it needs to be monitored.
Anyway, I suggest you get a same day appointment to see your doctor, or an in-game physician at a quick care clinic, if he/she is not available. At least get it checked out, to make sure it's nothing serious. They will want a urine sample, so make sure you don't tinkle right before you leave the house.