This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity
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I was here a bit in October when I was confused about some symptoms I was experiencing. I thought maybe Celiac, but hoped not. My doctor ran a celiac panel, which I realize now wasn't a full panel, she ran 3 tests, which were negative. She told me that I could still have Celiac and sent me to a GI doctor for a consult. I was happy the day I got my results and started thinking that my symptoms were in my head. I thought about not going to the GI appointment and seeing how I felt, then I got this terrible rash that I get from time to time, super itchy, yet burns when you touch it, it keeps me up at night. I did a little research and realized it could be DH and decided to keep my appointment with the GI doctor.
The GI doctor was awesome, very willing to listen to my concerns. She is going to do an EGD with biopsies and a colonscopy (what triggered this was treatment resistent iron deficiency anemia). I also have autoimmune hepatitis and a hiatal hernia so she feels like even if I don't have celiac, she still wants to take a look at things. She tossed around things like FODMAP, wheat allergy, eosinophil esophagus. She suggested a genetic test for celiac, she said if it was postitive it meant that I had the genetic potential to develop celiac and if it was negative that I didn't have the genetic potential to develop it. I looked at my results and some are postitive and some are negative. I realize that only one needs to be positive, but I was unsure about the numbers, does anyone know what this means?
I thought I could paste a snip but I can't... ugh
HLA DQ2 Negative
HLA DQ8 Positive
HLA DQA1* 03
HLA DQB1* 0302
HLA DQB1* 0301
HLA Variants detected: HLA DQA1* 03
I'm glad she did this test, I can make sure she follows the proper recommmendations for the number/locations of biopsies. I'm not getting the procedures done until January 8, I don't want to meet the deductible of my high deductible insurance in December, then have to meet it again next year since we are so close to the end of the year.
Thanks a ton for taking the time cylclinglady!
...do any Canadian (or better, BC) members know about what testing is available in this province? (My GP ordered an EMA to follow up, but the lab here only performs TTG and simply replaced the EMA with another TTG... sigh.)
I'm seeing a functional dr. He ran a bunch of blood tests and discovered low vit D, immflamation in my body and problems digesting protein. However none of the blood test was for gluten issues. He had me do a 24 HR saliva test which also tested for gliadin (sorry if I misspelled that!) He didn't seem too concerned about celiac being a possibility but did say if things haven't improved in a couple months he'd order further testing.
I don't eat much processed gluten free food except a piece of bread in the morning and the occasional bun, pancakes, muffin or bowl of steel cut oats (all gluten-free of course).
So i got my results from Quest, though my Dr. has yet to call me about them, so we'll see what he says, but my Tissue Transglutaminase AB, IGA result was a 1, greater than 4 being postive. So, I dunno wtf to do with this information because I have been gluten-free for like 5 months, went back on it for 4 days a week before the test (then went back off because BP craziness), and then crammed some bread immediately prior to my blood test because despite the fact that my Dr told me I didn't have to be eating gluten for the test I had a feeling he was wrong. So, basically I'm back to square 1, unless everyone who doesn't have gluten sensitivity or celiac disease is also walking around with a low level of the gluten antibody in their system? I mean, my interpretation would be, hey it's present, which probably indicates something, unless it doesn't. Literally no idea. I may have exhaused my desire to find answers at the this point.
ETA: Oh and my Immunoglobulina A was 84 (81-463) being normal. I'm pretty sure this measures a deficiency, so a lower number would be less ideal, but also, not a Dr.