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  1. Celiac.com Celiac Disease & Gluten-Free Diet Forum

    1. Gluten-Free and Celiac Disease Calendar of Events

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    2. Board/Forum Technical Help

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    29. Alternative Diets

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  • Posts

    • I'm actually scared to go to the doctor and could use some advice
      Thank you, squirmingitch. I'll pass that on to Mom, too. Cristiana, did they ever determine what caused your nerve pain or do you now think it was related to Celiac? That form of shingles sounds awful (well, any form sounds awful - my mom's had it 3 times!) and fortunately I do not think that's what's ailing me.
    • I'm actually scared to go to the doctor and could use some advice
      Make sure both you & your mom get the full celiac blood panel. Here it is: Anti-Gliadin (AGA) IgA
      Anti-Gliadin (AGA) IgG
      Anti-Endomysial (EMA) IgA
      Anti-Tissue Transglutaminase (tTG) IgA
      Deamidated Gliadin Peptide (DGP) IgA and IgG
      Total Serum IgA   
      Also can be termed this way: Endomysial Antibody IgA
      Tissue Transglutaminase IgA 
      GLIADIN IgG
      GLIADIN IgA
      Total Serum IgA 
      Deamidated Gliadin Peptide (DGP) IgA and IgG
    • I'm actually scared to go to the doctor and could use some advice
      Hi Elle I just wanted to add, I too have had that burning pain, in my case it was on the left hand side of my torso, which wrapped round from my back to the front of my ribs in a line.  It went on for months.  I was given various possible diagnoses although my brother in law thought it might be shingles without the rash (he is a GP).  Zoster sine herpete.   Yo may wish to look it up.  Obviously I am not a medical person and can't diagnose online  but it could be worth considering. That said, continue with your quest to rule out (or rule in) celiac and keep us posted. Hugs
    • I'm actually scared to go to the doctor and could use some advice
      Thank you to EVERYONE for the thoughtful and caring responses to my questions. I can't tell you how much it means to me. Bless you for taking the time to help others through their time of fear. As stupid as this sounds, I am actually not terribly worried about a Celiac disease diagnosis. I would be happy to know that I can change my diet and make myself feel better, and I enjoy cooking and preparing simple, whole foods and love fruits and veggies, so maybe it would not be as hard to transition for me as it would be for some. What I fear more are some other diagnoses related to the nerve symptoms I am experiencing. But honestly, all of the research I have done has turned up nothing that more closely matches my symptoms than some kind of vitamin deficiency (like the B12, zinc and D that I have previously been diagnosed deficient in). It may well be as simple as being on acid-reducing drugs for way too long. I just find it kind of hard to believe that can lead to the weird tingling and crawling feelings, and this odd pain on my arm that is the newest and loveliest symptom I have had. It feels like the skin is aching/burning, but I have no visible rash and it does not hurt when touched. I have never had shingles, but I would imagine it feels a bit like this when it first begins. I wrote to my GP and asked if she can do the Celiac blood test or if I have to go to a gastro. If the latter, I asked for a referral. I will start there instead of a neurologist. But I am ready to start somewhere so I can figure out what's happening here. Mom is getting a Celiac test ASAP too. I have read that a person can have Celiac but not start to experience symptoms until a stressful event occurs. Interesting that I started having symptoms at the point when I was so overworked and unhappy in my job that I finally began to realize I was going to have to find something else after 16 years. Between that and moving, maybe that has been a stressor. I have had anxiety and GERD and a benign irregular heartbeat for many, many years. We will see if it's all somehow related :-/
    • I'm actually scared to go to the doctor and could use some advice
      It's understandable why you're feeling scared. It sounds like you've been through a lot with your health, and kudos to you for staying proactive and trying to seek answers. It can be hard and overwhelming at times, but getting an accurate diagnosis (whether celiac or not) can help bring relief. If you pursue testing it might be helpful to take a look at some these examples of things to ask your doctor. It can help guide the conversation. With a diagnosis like celiac, which is complex, there is a lot to learn, so don't be afraid to ask questions. That's how you'll figure out your treatment options and make changes that are right for you. These are from Mayo Clinic and the health information accreditation group URAC Some basic questions to ask your doctor include: What's the most likely cause of my symptoms? Is my condition temporary or long term? What kinds of tests do I need? What treatments can help? Are there any dietary restrictions that I need to follow? How will I learn which foods contain gluten? Should I see a dietitian? If I have celiac disease, will you also test for other conditions such as vitamin or mineral deficiencies, osteoporosis or diabetes? Do you recommend medications for me? What benefits and side effects should I expect from medications? Other then maintaining a gluten-free diet, can I live a normal lifestyle? If I maintain a gluten-free diet, can I avoid severe complications from the disease? I hope these help. Keep us posted here.
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    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
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    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
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