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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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    29. Alternative Diets

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  • Posts

    • celiac disease is psychosomatic
      You are misunderstanding the term hidden gluten.  A food item, of which probiotics are not covered under, can legitimately have trace amounts of gluten and still be gluten free.  There is no test that can test down to zero, regardless of what you hear.  Most testing generally tests down to 5ppm and the vast majority........  most likely 99% of Celiac's, will not have an autoimmune reaction to the food.  I am an extremely sensitive, diagnosed Celiac and I eat some processed foods, from reputable companies, and I am doing phenomenal, 11 years gluten-free.  Lots and lots of other people have this experience also. This is not an example of hidden gluten. There can be food ingredients that may be made from a gluten component that may not be as easy to distinguish but if you learn label reading as you should, with time you will be easily able to identify what is safe or something that is questionable. Can it be daunting at first to learn all this new information?  Absolutely, but if you can read, you can learn. There are also many probiotics which are completely safe.  I have been taking them for 30 years and have never been glutened once from them.  The news reports (for what they are worth now) say that there was gluten discovered in probiotics.  That does not mean all probiotics are suspect. You can find out from the Gluten Free Watchdog which ones failed and which ones did not, then make your choice to buy.  Supplements are not covered under the food laws but again.....read those labels and check with manufacturers!
      https://www.csaceliacs.org/label_reading_101.jsp   This is a pretty good page that explains it well.  
    • Should I get tested for Celiac Disease?
      I wanted to come back and give an update. I decided to have my rash biopsied when I got home from vacation and the results thankfully came back positive for DH. What really prompted me to go ahead with that was how reliably the rash would worsen within mere hours of eating gluten. I figured it would be the easiest way for me to definitely know and since I could actually see the damage I was pretty confident by eating gluten until the appointment something would show up. Luckily my experiments of going multiple days here and there in the weeks prior to the test didn't effect the results. (Obviously that probably isn't recommended and I was taking a chance at inconclusive results by going ahead with it so I'm fortunate I got the positive results I expected.) The dermatologist wants me to see a GI doc but for now I'm holding off on doing that because of all the reasons I mentioned previously. It is my understanding that DH qualifies me for the tax write off for food and the small intestine biopsy would just be a technicality and see how much intestinal damage is present. I will follow up with my family doc soon to do blood work and check for any deficiencies. Since finding out I've done pretty well. I did discover gluten in my shampoo after wondering why my elbows had flared up when I hadn't eaten gluten that day. I had gluten unintentionally this weekend in some sushi and I'm recovering from that at the moment but it hasn't been too bad compared to how I've felt most days for the last year and a half while eating it. I did connect with a lady in my ED recovery group who has celiac and we have been talking about navigating gluten free in the context of recovery/remission from anorexia. I think part of me was scared I'd become afraid of food again but I think as long as my only rule is to replace gluten I will be fine.  Now my latest gluten discovery is in my home hair color. I was about to color my grays when I read the label and noticed one ingredient was wheat gluten. I guess I'll exchange that for something different. If I was getting it done at a salon I probably wouldn't worry because of the way they rinse it out with your head tipped back in the bowl but at home I think it's harder to keep the water from running into my mouth accidentally. If I hadn't had the shampoo incident I probably wouldn't be so cautious. I'm sure some people can relate to trying to get well and not wanting to make things worse again! I hope everyone here is doing well!
    • Can U A Bone Marrow Donor?
      Another reply to an old thread. We have a family friend whose son (aged 4) is struggling with leukemia. I went through the initial process (online screening question/answer form) of donating bone marrow, but was immediately rejected by the automatic screening due to my Celiac Disease. 
    • TRUSTING OTHERS about GLUTEN! how do you know if someone has used gluten free flour?
      It can be difficult to refuse food from others but, with time, you can learn to not let it bother you.  Yeah, easier said than done, I know.  But your sense of humor came through in places in your post so use that to make "empowered no BS responses"!  
    • What Are Your Brands & Flavors Of Gluten Free Ice Cream ?
      This is a common sense answer!  I used to eat Godiva years ago and was dismayed they had no interest in appealing to anyone with a food allergy/intolerance.  That's OK......Ghirardelli chocolates are very good about divulging what they do and most of their chocolates are gluten-free.  Again, you have to understand label reading and investigate further, if need be.  Turns out, I think their chocolates are just as good, if not better.
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    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
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