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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


      1. Gluten-Free and Celiac Disease Calendar of Events

        Enter your group's Gluten-Free and Celiac Disease events here.

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        Enter your group's Gluten-Free and Celiac Disease events here.

      2. Board/Forum Technical Help

        This section deals with questions and problems related to the use of this forum. All "old pros" are invited to help answer questions from the newer participants.

      3. Gluten-Free Foods, Products, Shopping & Medications

        Discussions regarding which mainstream products are gluten-free and which are not.

      4. Celiac Disease - Coping With

        This part of the forum is for techniques and information on how to cope with celiac disease and the gluten-free diet

      5. Celiac Disease - Pre-Diagnosis, Testing & Symptoms

        Discussions related to testing for celiac disease.

      6. Gluten-Free Recipes - Baking & Cooking Tips

        Discussions about gluten-free baking and cooking.

      7. Celiac Disease - Post Diagnosis, Recovery/Treatment(s)

        Discussions related to one's diagnosis with celiac disease.

      8. Celiac Disease - Related Disorders & Research

        Discussions concerning other health problems associated with celiac disease, and celiac disease research

      9. Gluten-Free Restaurants

        Discussions about dining out gluten-free.

      10. Celiac Disease - Parents of Kids or Babies With Celiac Disease

        Discussions with other parents of kids or babies with celiac disease.

      11. Other Food Intolerance and Leaky Gut Issues

        Discussions about additional non-gluten food intolerance issues, including cow's milk (casein), soy, eggs, corn, etc.

      12. Gluten-Free Ingredients & Food Labeling Issues

        Discussions regarding which ingredients are safe and which are not, and food labeling issues.

      13. Gab/Chat Room - To Discuss Anything BUT Celiac Disease / Gluten-Free Diet

        General Chat Unrelated to Celiac Disease - Discuss most things here EXCEPT Celiac Disease / Gluten-Free Diet. Keep it light and avoid controversial topics like global warming, gay marriage, gun control, euthanasia, speed limits on the Autobahn, prisoner torture, etc.

      14. Celiac Disease - Publications & Publicity

        Discussions related to books, articles and other press about celiac disease.

      15. Dermatitis Herpetiformis

        Discussions concerning the skin condition associated with celiac disease.

      16. Gluten-Free Travel

        Discussions concerning how to maintain a gluten-free diet while traveling, including great gluten-free places to visit.

      17. Gluten-Free Diet & Weight Issues

        Discussions about how to lose or gain weight while on a gluten-free diet.

      18. Celiac Disease - Doctors

        Discuss experiences with doctors, how to find a doctor, etc.

      19. Celiac Disease - Teenagers & Young Adults Only

        This area is where Teenagers and Young Adults can discuss issues related to celiac disease and the gluten-free diet.

      20. Gluten-Free International Room (Outside USA)

        Discussions about living gluten-free in Canada, Australia, Asia & Pacific Rim, UK, Europe, etc.

      21. Celiac Disease - Pregnancy

        Discussions related to being pregnant with celiac disease.

      22. Celiac Disease - Friends and Loved Ones of Celiacs

        Non-celiacs discuss their experiences dealing with a friend or loved one with the disease.

      23. Celiac Meeting Room

        A Place where gluten-free people can meet each other--Adults only please.

      24. Celiac Disease - Sleep

        Discussions concerning sleeping problems and celiac disease.

      25. Gluten-Free Sports and Fitness

        Gluten-free athletes discuss fitness, sports nutrition, working out, etc.

      26. Gluten Intolerance and Behavior

        Discussions concerning behavioral issues associated with the consumption of gluten.

      27. Super Sensitive Celiacs & Gluten Sensitive

        Non-scientific discussions for those who have been gluten free for at least 6-12 months and suspect they are reacting to lower levels of gluten than the vast majority of celiacs.

      28. Alternative Diets

        Discussions about alternative diets like the Vegetarian Diet, Specific Carbohydrate Diet (SCD), The Low FODMAP Diet. (FODMAP=Fermentable Oligo-Di-Monosaccharides and Polyols), etc.


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    • Posts

      • Calories - How Do You Make Sure That You Are Eating Enough?
        By LookingforAnswers15 · Posted
        Hi Cycling lady, I really do not remember anymore. I was so hungry at that time that I just concentrated on it being gluten-free free, dairy and soy free but I did not think about containing oats. However, I do not think it did. I think it was just dried fruit (dates) with coco and coconut. I meant to take a photo of a wrapper but forgot. I also try to stay away from oats. I enjoy lettuce wraps as well. I usually eat them with chicken and veggies. Hi Nvsmom, you are right about myfitnesspal. I used to use it religiously when I was healthy (at least believed I was, before my diagnosis) and exercising every day to make sure to track my food and water intake. I need to start using it again and it can also serve as my food journal. Thanks for reminding me about it.      
      • Pure Oats causing Neurological Problems?
        By squirmingitch · Posted
        Hi Christiana, After 3 years strict gluten-free last December I began using cert. gluten-free oat flour in a bread recipe. We had not been fond of the gluten-free breads our local stores sold so we had not eaten that very often for the 3 years. The bread I made was delicious & after pretty much not having any bread for 3 years we went nuts eating bread. We had sammiches often, toast with breakfast, garlic toast, cheese toast, bread & butter, we had bread every time we could work it in. It was so nice to be able to just have a sammich for lunch & not have to cook!  When I began to make this gluten-free bread with the oat flour; slowly all my celiac symptoms began to return, 1 by 1. However, I did not associate it with the oat flour. I was going crazy nuts trying to figure out where the gluten was coming from. I must back up a bit & explain that I have dh (celiac rash) & didn't really have the "D" - once every 4 - 6 weeks maybe. So it's not like I have this immediate reaction & run to the bathroom like most people do. It began with me getting dizzy. The dizzy comes & goes in waves getting stronger with continued exposure. Then the pounding heart beat that is like drums in my ears, then 1 by 1 symptoms returned. Mild migraines began, red rimmed eyes, twitching nerves in my eyelid, brain fog, burping & then elevated to belching, bloat, then severe bloat, hands & feet getting that needles feeling, gasssssssssssss, blood pressure began rising, that super weird buzzing feeling inside my body - it keeps you awake - sort of like restless leg syndrome but it involves the entire body - sort of like being on speed, mucus in eyes, blepharitis, then the bone & muscle & nerve pain set in & began to make itself known and lastly was the "D" with those horrid, horrid screaming cramps AND the rash flared up. I had always thought the rash would be my first sign of a glutening. I was wrong. We have a totally gluten-free household, never eat out, & are religious about being careful with making sure everything is gluten-free. It took time for all the symptoms to build up but I was aware & was looking for the source of gluten. I could not figure out where it was coming from. I even tried to convince myself it was all in my head - psychosomatic. But it wasn't. Then it dawned on me that it had to be the oats. Quit the bread making, threw out the oat flour, cleaned everything & began anew minus oats. I went back to normal -- all symptoms gone. Then our store began carrying Udi's gluten-free bread. We tried it & we loved it!!!!! We were eating an average of 3 to 4 loaves per week & also having Glutino cookies. A few weeks in & here we go again -- symptoms returning again . Now why? Where is the gluten coming from???? Not eating anything with oats so what is it?????? Then a lightbulb went off in my head. Udi's is made in a gluten-free facility where they also make things containing gluten-free oats. Since it's a gluten-free facility & they use gluten-free oats do they worry about the oats cc'ing the rest of the products???? I called them. The lady I spoke with said they don't clean the lines because everything in the facility is gluten-free including the oats. She told me there is certainly cc with the oats going on. So not only the Udi's bread is cc'd with gluten-free oats but also Glutino products since they are made in the same facility. Just my experience, your mileage may vary.
      • Pure Oats causing Neurological Problems?
        By cristiana · Posted
        I have just tried certified gluten-free pure oats again.  I last tried them in November and had a burning sensation in my gut for some weeks so did not want to eat them for a while before trying again.  So I had hoped now I am nearly two and a half years into the gluten-free journey I might be able to eat them again but I am in pain, yet again ,so have decided that I am probably one of those celiacs for whom avenine is a problem and I intend to steer well clear of them in future.  Very disappointing for someone with Scottish ancestry! One thing I would be very interested to know is if anyone who has a problem with oats, as a celiac, has also experienced neurological symptoms after eating them.  I have just started a new tingling symptom in my upper thigh and don't know whether to pin this on the oats or sciatica, as in fact I have been doing some heavy lifting in the last couple of days. Many thanks.
      • Calories - How Do You Make Sure That You Are Eating Enough?
        By nvsmom · Posted
        I like to use myfitnesspal to log my foods. It gives me a rough idea of my macros and calorie counts.  It could be a good tool for you to use.
      • Anxiety?
        By nvsmom · Posted
        Glad you are feeling better. I doubt your symptoms were from malnourishment, but rather from a possible few sources: Perhaps you were not eating enough for a few days (especially carbs), and your body switched to ketosis (fat oxidation).  Unless you up your electrolytes (sodium, magnesium and potassium), lowering your carb intake will result in wtaer lost along with electrolytes.  This can cause weakness, headaches, shakiness, fatigue and even heart palpitations. It takes a few days for the body to get used to not relying on glucose (carbohydrates - veggies, fruit, baked goods, etc) for fuel. Or you could have been experiencing gluten withdrawal (or as well) if you are new to eating gluten-free. A minority of people feel quite horrible when first removing gluten from their diet.  It lasts a few days to a few weeks. Getting vitamin levels checked is a good idea for most celiacs.  The common low nutrients are calcium, magnesium, potassium, zinc, copper, ferritin, iron, B12, D, A and.... I think I'm forgetting one. Hmm. Anyway, those ones are good to have checked. Feel better.
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