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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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  • Posts

    • Sjogren's, Celiac, or both?
      Doing great! Been gluten-free for two years, now. No symptoms, antibodies are almost nil and certainly where they should be. Been glutened really bad twice (ate 4 slices of bread I thought was gluten-free once, and ate pasta I thought was gluten-free once) was in bed for three days each time and felt like crap for a couple of weeks. Learning experiences, not done that in quite a while. 
    • Can treatment for Giardia reverse active Celiac
      I'm not a doctor or expert but I've done a lot of reading and I believe anything that causes major inflammation for the small intestine can cause false positives for celiac antibodies. Sometimes people with Crohn's will have positive celiac tests as well.  I wouldn't be surprised in the least that someone with a bad case of Giardia would come up positive.  Now, eventually, as you fully recover from the giardia infection you should go back to normal levels but if you don't you most likely have Celiac as well.  From what I understand, Celiac doesn't go into remission though it can be latent in people for years. 
    • Sjogren's, Celiac, or both?
      Hey, happy to see your posting, Fenrir.  I hope you are doing well!  
    • Sjogren's, Celiac, or both?
      Well, you do not HAVE to get tested, but since Celiac Disease is genetic and you have kiddos, you should seriously consider the pros and cons. Take for instance, my hubby.  He went gluten-free over 15 years ago per the very poor advice of his GP and my allergist.  "Try giving up wheat and see how you feel."  Well, it worked.  No more sinus infections, feeling achy like he had the flu, etc.  He seriously struggled the first year without a proper diagnosis, but eventually good health became more important than rye bread.  Twelve years later, I was anemic (well I have been all my life)  and went for a routine colonsocopy because all my friends were getting them (the perks of the over 50 club).  During my GI consult he recommended getting scoped at both ends because he suspected celiac disease.  I could not believe it!  But blood tests and my biopsies proved that I had celiac disease.   Hubby will be the first to say that I have had more medical, family and friend support with a formal diagnosis.  He refuses to do a gluten challenge.  His mom was diagnosed with MS and literally died from malnutrition, so we suspect she had celiac disease.  He definitely has a problem with gluten.   Thankfully, my dx has allowed for my daughter to be tested every few years (even without symptoms).  She does not have celiac disease or any other autoimmune disorder yet.  I say yet, because the gene pool for AI issues is huge on both sides.  Good news is that cancer is rare but you never know.   So, this is a decision you will have to make.  An endoscopy requires a much shorter challenge.  Something to consider.  Gene testing too will help rule out celiac disease and might be the first thing to consider as you do not have to be on gluten for that.   I wish you well! 
    • Sjogren's, Celiac, or both?
      Everything you listed above very well could be Celiac Disease and not Sjogren's, but people with one autoimmune disease are at a higher risk of getting another one.  Your GP clearly is working with old knowledge in regard to Celiac Disease. There are probably more people who suffer from constipation from Celiac than loose stools. I know for me I never had diarrhea at all, but I was backed up something fierce.  I also had swollen joints, headaches, abdominal pain, memory issues, high liver enzymes, fatigue and general cloudy head.  Not many of these are symptoms an uninformed Doctor would think to associate with Celiac.  You really have to show up prepared to be your own advocate, tell the doctor that according to many of the GI specialists who work with Celiacs (see University of Chicago's celiac disease Center) these are all symptoms that warrant a proper workup for celiac disease.  It took me 6 months, two biopsies and an unneeded surgery to get diagnosed and that isn't as bad as some. 
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    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
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    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
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