Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts


  1. Celiac Disease & Gluten-Free Diet Forum

    1. Gluten-Free and Celiac Disease Calendar of Events

      Enter your group's Gluten-Free and Celiac Disease events here.

        (179,477 visits to this link)

    2. Board/Forum Technical Help

      This section deals with questions and problems related to the use of this forum. All "old pros" are invited to help answer questions from the newer participants.

    3. Gluten-Free Foods, Products, Shopping & Medications

      Discussions regarding which mainstream products are gluten-free and which are not.

    4. Celiac Disease - Coping With

      This part of the forum is for techniques and information on how to cope with celiac disease and the gluten-free diet

    5. Celiac Disease - Pre-Diagnosis, Testing & Symptoms

      Discussions related to testing for celiac disease.

    6. Gluten-Free Recipes - Baking & Cooking Tips

      Discussions about gluten-free baking and cooking.

    7. Celiac Disease - Post Diagnosis, Recovery/Treatment(s)

      Discussions related to one's diagnosis with celiac disease.

    8. Celiac Disease - Related Disorders & Research

      Discussions concerning other health problems associated with celiac disease, and celiac disease research

    9. Gluten-Free Restaurants

      Discussions about dining out gluten-free.

    10. Celiac Disease - Parents of Kids or Babies With Celiac Disease

      Discussions with other parents of kids or babies with celiac disease.

    11. Other Food Intolerance and Leaky Gut Issues

      Discussions about additional non-gluten food intolerance issues, including cow's milk (casein), soy, eggs, corn, etc.

    12. Gluten-Free Ingredients & Food Labeling Issues

      Discussions regarding which ingredients are safe and which are not, and food labeling issues.

    13. Gab/Chat Room - To Discuss Anything BUT Celiac Disease / Gluten-Free Diet

      General Chat Unrelated to Celiac Disease - Discuss most things here EXCEPT Celiac Disease / Gluten-Free Diet. Keep it light and avoid controversial topics like global warming, gay marriage, gun control, euthanasia, speed limits on the Autobahn, prisoner torture, etc.

    14. Celiac Disease - Publications & Publicity

      Discussions related to books, articles and other press about celiac disease.

    15. Dermatitis Herpetiformis

      Discussions concerning the skin condition associated with celiac disease.

    16. Gluten-Free Travel

      Discussions concerning how to maintain a gluten-free diet while traveling, including great gluten-free places to visit.

    17. Gluten-Free Diet & Weight Issues

      Discussions about how to lose or gain weight while on a gluten-free diet.

    18. Celiac Disease - Doctors

      Discuss experiences with doctors, how to find a doctor, etc.

    19. Celiac Disease - Teenagers & Young Adults Only

      This area is where Teenagers and Young Adults can discuss issues related to celiac disease and the gluten-free diet.

    20. Gluten-Free International Room (Outside USA)

      Discussions about living gluten-free in Canada, Australia, Asia & Pacific Rim, UK, Europe, etc.

    21. Celiac Disease - Pregnancy

      Discussions related to being pregnant with celiac disease.

    22. Celiac Disease - Friends and Loved Ones of Celiacs

      Non-celiacs discuss their experiences dealing with a friend or loved one with the disease.

    23. Celiac Meeting Room

      A Place where gluten-free people can meet each other--Adults only please.

    24. Celiac Disease - Sleep

      Discussions concerning sleeping problems and celiac disease.

    25. Gluten-Free Sports and Fitness

      Gluten-free athletes discuss fitness, sports nutrition, working out, etc.

    26. Celiac Disease - Support Groups

      Discussions concerning celiac disease support groups and support group meetings.

    27. Gluten Intolerance and Behavior

      Discussions concerning behavioral issues associated with the consumption of gluten.

    28. Super Sensitive Celiacs & Gluten Sensitive

      Non-scientific discussions for those who have been gluten free for at least 6-12 months and suspect they are reacting to lower levels of gluten than the vast majority of celiacs.

    29. Alternative Diets

      Discussions about alternative diets like the Vegetarian Diet, Specific Carbohydrate Diet (SCD), The Low FODMAP Diet. (FODMAP=Fermentable Oligo-Di-Monosaccharides and Polyols), etc.

  • Forum Statistics

    • Total Topics
    • Total Posts
  • Posts

    • Hi Viviane, No, the antibodies to gliaden are learned by the immune system.  They won't be forgotten by the immune system ever.  The antibodies to gliaden are specific to the protein gliaden that is part of wheat protein.  Once learned, the learning never goes away. Usually the doctor will do an endoscopy to confirm celiac disease damage to the gut lining (villi).  The endoscopy is usually after a positive antibody test, which you had already it sounds like.  You shouldn't stop eating gluten until the endoscopy is completed and test results are received.  If you stop eating gluten too soon, the test results can be faulty. Welcome to the forum!
    • It's not fun at first EG1707, but after a variable amount of time you get used to it.  I used to be pretty paranoid about gluten cross contamination, and I am still careful of it, but it isn't a big worrisome thing.  I take precautions and do fine most of the time.  Not being the exact same as everybody else isn't all bad.  Most of your friends can probably shovel all kinds of junk in their gullets and never even think twice about it.  They may have free reign to eat as they please, but they will also have the possibility of eating many more chemical preservatives, flavorings, colorings, and emulsifiers.  Maybe those things aren't automatically bad for them, but they aren't a normal part of a food either.  They are added purely to enhance sales revenue.  Sticking with a mostly whole foods diet you will be able to avoid most of that stuff.  Your liver may thank you for that.  Fewer chemical additives to process isn't such a bad thing. Recovery is not an smooth road sometimes.  The immune reaction is fired up and ready to rumble when we first go gluten-free.  Our guts are also damaged and easily bothered by any kind of minor irritation, that may not cause a problem later on.  Our gut bacterial flora is probably a swamp of unhealthy bacteria that needs to be rehabilitated into a healthy mixture.  None of these things are going to happen over night.  But they can all improve and lead to better health.  And most likely will as time goes by.  But we have to stick it out to give our system time to recover. Additional food intolerances may crop up but they are not insurmountable either.  I struggled with my health for years after going gluten-free, but am so much better now.  I even have some energy now to do things and that is a great thing.  We may not be dealt an easy card, but there are others with much worse situations.  Our disease/condition is one where the treatment is known, the answer is just a diet change, and we don't need strong drugs to combat it.  We have to take care of ourselves, rather than doctors taking care of us.  But that's a good thing. The less gluten, the more whole foods the less processed foods, the better for a beginner IMHO.  There's always time to branch out to more adventerous foods after healing a while.
    • hey, i had a bad reaction with very similar symptoms pre celiac, report your side effects to your doctor or the cdc. im not against vaccines at all but i would be very caucious getting it again especially if your not elderly/ high risk and its not completely nesscessary, i find washing your hands regularly and not touching your face goes a long way
    • I was told by one of my customers at a farmers market I should see about getting a government grant, to expand my gluten free snack line and get a trailer to sell seeds, candied nuts, almond butters, and gluten-free granola at events. Being on a tight budget as is, and selling this stuff so I can afford my own consumption of food is hard enough. So needless to say this idea of getting the trailer on a grant and living my dream of providing gluten-free snacks to others to make life easier for them and being able to set up at events, is very enticing. Now how would I go about doing this is my problem....due to the ataxia and brain damage I have looking at and trying to understand the numbers and legal mumbo jumbo is like trying to read a alien language. Can someone simplify this for me and tell me if it is a good idea or just another dream.
    • Your future has not been taken away.  You just have to be very careful eating out.  I have a handful of restaurants that I trust to cook my food correctly.  I ask a billion questions too (speak with a manager, ask if food is prepared in it's own dedicated facility and if they have dedicated fryers, ask about the workers and the sanitation practices)  If you don't feel comfortable eating after getting answers, then don't eat.  I've been in several social situations with family, friends and work where I've had to settle for a glass of wine.  I will explain why I can't partake if asked.  Honestly the only time I eat out is when I know that it's safe, I'll take my food on trips away from home, or I'll eat before going out with friends/family. As far as the kissing thing you mentioned.  My husband is understanding.  He'll make sure that his mouth is clean, brushed teeth and if he has a doubt he'll kiss my cheek.  It's really not the end of the world, it might feel like it, but it'll get better...  My daughter is 13.  She hasn't had her first kiss, she knows that she'll have to tell whoever it is about her disease.  If it's someone worth having, they will stick around.  Think about it as a way to weed out the bad ones  ...   
    • I see - it's reassuring to know I'm not the only who who's reacted badly to it! Thank you for your advice, it's much appreciated. It can get pretty frustrating but I understand it just takes time.
  • Topics

  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
    • Most Online

    Newest Member