1. Celiac Disease & Gluten-Free Diet Forum

    1. Gluten-Free and Celiac Disease Calendar of Events

      Enter your group's Gluten-Free and Celiac Disease events here.

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    2. Board/Forum Technical Help

      This section deals with questions and problems related to the use of this forum. All "old pros" are invited to help answer questions from the newer participants.

    3. Gluten-Free Foods, Products, Shopping & Medications

      Discussions regarding which mainstream products are gluten-free and which are not.

    4. Celiac Disease - Coping With

      This part of the forum is for techniques and information on how to cope with celiac disease and the gluten-free diet

    5. Celiac Disease - Pre-Diagnosis, Testing & Symptoms

      Discussions related to testing for celiac disease.

    6. Gluten-Free Recipes - Baking & Cooking Tips

      Discussions about gluten-free baking and cooking.

    7. Celiac Disease - Post Diagnosis, Recovery/Treatment(s)

      Discussions related to one's diagnosis with celiac disease.

    8. Celiac Disease - Related Disorders & Research

      Discussions concerning other health problems associated with celiac disease, and celiac disease research

    9. Gluten-Free Restaurants

      Discussions about dining out gluten-free.

    10. Celiac Disease - Parents of Kids or Babies With Celiac Disease

      Discussions with other parents of kids or babies with celiac disease.

    11. Other Food Intolerance and Leaky Gut Issues

      Discussions about additional non-gluten food intolerance issues, including cow's milk (casein), soy, eggs, corn, etc.

    12. Gluten-Free Ingredients & Food Labeling Issues

      Discussions regarding which ingredients are safe and which are not, and food labeling issues.

    13. Gab/Chat Room - To Discuss Anything BUT Celiac Disease / Gluten-Free Diet

      General Chat Unrelated to Celiac Disease - Discuss most things here EXCEPT Celiac Disease / Gluten-Free Diet. Keep it light and avoid controversial topics like global warming, gay marriage, gun control, euthanasia, speed limits on the Autobahn, prisoner torture, etc.

    14. Celiac Disease - Publications & Publicity

      Discussions related to books, articles and other press about celiac disease.

    15. Dermatitis Herpetiformis

      Discussions concerning the skin condition associated with celiac disease.

    16. Gluten-Free Travel

      Discussions concerning how to maintain a gluten-free diet while traveling, including great gluten-free places to visit.

    17. Gluten-Free Diet & Weight Issues

      Discussions about how to lose or gain weight while on a gluten-free diet.

    18. Celiac Disease - Doctors

      Discuss experiences with doctors, how to find a doctor, etc.

    19. Celiac Disease - Teenagers & Young Adults Only

      This area is where Teenagers and Young Adults can discuss issues related to celiac disease and the gluten-free diet.

    20. Gluten-Free International Room (Outside USA)

      Discussions about living gluten-free in Canada, Australia, Asia & Pacific Rim, UK, Europe, etc.

    21. Celiac Disease - Pregnancy

      Discussions related to being pregnant with celiac disease.

    22. Celiac Disease - Friends and Loved Ones of Celiacs

      Non-celiacs discuss their experiences dealing with a friend or loved one with the disease.

    23. Celiac Meeting Room

      A Place where gluten-free people can meet each other--Adults only please.

    24. Celiac Disease - Sleep

      Discussions concerning sleeping problems and celiac disease.

    25. Gluten-Free Sports and Fitness

      Gluten-free athletes discuss fitness, sports nutrition, working out, etc.

    26. Celiac Disease - Support Groups

      Discussions concerning celiac disease support groups and support group meetings.

    27. Gluten Intolerance and Behavior

      Discussions concerning behavioral issues associated with the consumption of gluten.

    28. Super Sensitive Celiacs & Gluten Sensitive

      Non-scientific discussions for those who have been gluten free for at least 6-12 months and suspect they are reacting to lower levels of gluten than the vast majority of celiacs.

    29. Alternative Diets

      Discussions about alternative diets like the Vegetarian Diet, Specific Carbohydrate Diet (SCD), The Low FODMAP Diet. (FODMAP=Fermentable Oligo-Di-Monosaccharides and Polyols), etc.

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    • Seeing as the flu shot will stimulate your immune system, it stands to reason that it could make symptoms flare.  I have never had a flu shot because I am low risk for catching it.  Now, I am nervous to try having one in case the above happens. I am not against vaccines, either, but I have never had the flu and just do not want a flare of symptoms......which can happen at any stage of recovery. I have been under stress for awhile after a few deaths in my family and sure enough, for the first time in 11 years, I have been having some subtle symptoms again and I have not been glutened at all. The docs tell me this is completely normal for those with AI diseases.  Trying to keep the immune system calm and happy can be challenging at times!
    • There's a gluten sniffing dog?????????????  I WANT ONE!  That way, as a service dog, I could take the pup into a restaurant and not be kicked out.  I have always marveled how in Europe, you see some dogs in cafes, sitting besides their owners while they eat. But having a dog to sniff out gluten is just so cool!
    • So, if this supposed damage cannot be seen under a microscope, how does Dr. Fine state with any amount of credibility that the damage is there?  He also needs to distinguish between NCGI and actual Celiac Disease because there is a huge difference. Regardless of what he claims, it is a well established fact that only in Celiac Disease is there villi damage. I am in no way dismissing the very severe symptoms of some with NCGI or its existence as an illness but people without Celiac do not usually have anemia, malabsorption and the resultant vitamin/mineral deficiencies. Their villi do not curl up and die. If there were damage done to a person with NCGI, then if on biopsy, the doctor hits a sweet spot, they would be able to see the damage under microscopic exam. I am also in no way defending the mainstream medical establishment because they certainly nearly killed me with their ignorance.  I know no doctor was looking for Celiac 30 years ago when I was sick but I presented with classic Celiac and they still got it wrong. So, I do hear you on that point but in today's world, we do understand Celiac much better and what Dr. Ford comes out with does not match known science. The problem we have is finding a sure fire way of diagnosing people before their guts are totally trashed.  I am sure testing will become much better and more sensitive for people in the early stages of the disease. I have a very open mind on medical issues and my doctor is a functional medicine MD. They have helped me more than most. But if Dr. Fine wants to be taken seriously, he needs to publish his findings for review by others in the medical field. He should be working with the current medical establishment to enlighten them if he has discovered things they haven't. But when he makes statements like the one I quoted, its hard to take him seriously. BTW....I encourage anyone who becomes ill from eating gluten to be tested for Celiac and if that cannot be proved, then by all means go strictly gluten-free. I know there are people who fall through the cracks but when someone states they need to be gluten-free for health reasons, I believe them!  You don't have to have a diagnosis to want to improve your health with a dietary change.  I am glad your husband has become well on the diet!  That really is the bottom line......  
    • I'm going to hope for a gluten-sniffing dog!  Funny, my 5th grader's science project was about cancer sniffing dogs.  During her presentation, she used our labrador to demonstrate.  She trained our dog to identify food masking as "cancer cells".  It was hilarious!  Our dog actually did it!   Anyway, I can't agree more with Gemini about the TTG measuring dietary compliance.  I continue to test negative to the TTG.   I think the DGP should be included in helping to determine dietary compliance.   Finally, I was saddened to hear that Dr. Fasano's recent research showed that some 20% of children are not experiencing intestinal healing.  We know from other studies that some 2/3 of  adult celiac patients never heal.  It is disheartening!  More post-diagnosis research and better tools to manage celiac disease are desperately needed.  
    • The flu vaccines can also be a bit of a gamble with what strains they put in each year. I've been OK with them generally but one year I had a really bad reaction to it and ended up feeling like someone was shoving razor blades down my throat for the best part of a week 
    • Off and on for a few months. It turned out to be caused by soy in my case. If food seems to help try eating first thing in the morning.  Just make it something easy to digest like the Buckwheat cereal (also high in easily digestable prtein) or toast with a nut butter and a non-acidic fruit. You don't have to try and get down a full breakfast or at least I didn't.
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