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  1. Celiac.com Celiac Disease & Gluten-Free Diet Forum

    1. Gluten-Free and Celiac Disease Calendar of Events

      Enter your group's Gluten-Free and Celiac Disease events here.

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    2. Board/Forum Technical Help

      This section deals with questions and problems related to the use of this forum. All "old pros" are invited to help answer questions from the newer participants.

      6,594
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    3. Gluten-Free Foods, Products, Shopping & Medications

      Discussions regarding which mainstream products are gluten-free and which are not.

      100,298
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    4. Celiac Disease - Coping With

      This part of the forum is for techniques and information on how to cope with celiac disease and the gluten-free diet

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    5. Celiac Disease - Pre-Diagnosis, Testing & Symptoms

      Discussions related to testing for celiac disease.

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    6. Gluten-Free Recipes - Baking & Cooking Tips

      Discussions about gluten-free baking and cooking.

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    7. Celiac Disease - Post Diagnosis, Recovery/Treatment(s)

      Discussions related to one's diagnosis with celiac disease.

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    8. Celiac Disease - Related Disorders & Research

      Discussions concerning other health problems associated with celiac disease, and celiac disease research

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    9. Gluten-Free Restaurants

      Discussions about dining out gluten-free.

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    10. Celiac Disease - Parents of Kids or Babies With Celiac Disease

      Discussions with other parents of kids or babies with celiac disease.

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    11. Other Food Intolerance and Leaky Gut Issues

      Discussions about additional non-gluten food intolerance issues, including cow's milk (casein), soy, eggs, corn, etc.

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    12. Gluten-Free Ingredients & Food Labeling Issues

      Discussions regarding which ingredients are safe and which are not, and food labeling issues.

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    13. Gab/Chat Room - To Discuss Anything BUT Celiac Disease / Gluten-Free Diet

      General Chat Unrelated to Celiac Disease - Discuss most things here EXCEPT Celiac Disease / Gluten-Free Diet. Keep it light and avoid controversial topics like global warming, gay marriage, gun control, euthanasia, speed limits on the Autobahn, prisoner torture, etc.

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    14. Celiac Disease - Publications & Publicity

      Discussions related to books, articles and other press about celiac disease.

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    15. Dermatitis Herpetiformis

      Discussions concerning the skin condition associated with celiac disease.

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    16. Gluten-Free Travel

      Discussions concerning how to maintain a gluten-free diet while traveling, including great gluten-free places to visit.

      10,248
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    17. Gluten-Free Diet & Weight Issues

      Discussions about how to lose or gain weight while on a gluten-free diet.

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    18. Celiac Disease - Doctors

      Discuss experiences with doctors, how to find a doctor, etc.

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    19. Celiac Disease - Teenagers & Young Adults Only

      This area is where Teenagers and Young Adults can discuss issues related to celiac disease and the gluten-free diet.

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    20. Gluten-Free International Room (Outside USA)

      Discussions about living gluten-free in Canada, Australia, Asia & Pacific Rim, UK, Europe, etc.

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    21. Celiac Disease - Pregnancy

      Discussions related to being pregnant with celiac disease.

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    22. Celiac Disease - Friends and Loved Ones of Celiacs

      Non-celiacs discuss their experiences dealing with a friend or loved one with the disease.

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    23. Celiac Meeting Room

      A Place where gluten-free people can meet each other--Adults only please.

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    24. Celiac Disease - Sleep

      Discussions concerning sleeping problems and celiac disease.

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    25. Gluten-Free Sports and Fitness

      Gluten-free athletes discuss fitness, sports nutrition, working out, etc.

      3,565
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    26. Celiac Disease - Support Groups

      Discussions concerning celiac disease support groups and support group meetings.

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    27. Gluten Intolerance and Behavior

      Discussions concerning behavioral issues associated with the consumption of gluten.

      3,076
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    28. Super Sensitive Celiacs & Gluten Sensitive

      Non-scientific discussions for those who have been gluten free for at least 6-12 months and suspect they are reacting to lower levels of gluten than the vast majority of celiacs.

      5,144
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    29. Alternative Diets

      Discussions about alternative diets like the Vegetarian Diet, Specific Carbohydrate Diet (SCD), The Low FODMAP Diet. (FODMAP=Fermentable Oligo-Di-Monosaccharides and Polyols), etc.

      231
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  • Posts

    • Thanks we did run the antibody test.  Upon retesting the thyroid had made improvement it came out okay.  I did make a mistake and had soy, which evidently triggers my celiac.  I took it about 200 days!
    • Vitamin B12 injections seemed to help with my ferritin levels.  The finally popped up to 58!  I worked with a physician to get the shots.  I believe I had been suffering from mal-absorbption and the shots helped me over the HUMP!
    • Thank you both.  With the help of my nurse, I recently I tried Vitamin B injections which seemed to help me.  Finally my ferritin level doubled + and I got this prickly sensation in my legs and arms.  I think that was cells taking in nutrients.  I used herbs recommended by my physician and supplemented with selenium and vitamin E.  Upon retesting (after about a month of treatment) my thyroid appeared to be "Okay".   I looked back where I had order the supplements and they had accidently marked them soy free; while the list of ingredients clearly had soy.  I did point this out to them, so hopefully others won't fall into the same trap.  My experience was a painful reminder to read every label for yourself every time.
    • Hi, I am 20yrs old and have had this weird stomach pains on and off for 2 years. They started by just having pains on my left side when I sucked in or pressed on my tummy. In the last 3 months they have gotten really bad, with a lot of bloating and used to occur almost every time just before bed I would get bloated, and feel constipated like I just needed a hole in my stomach to release the pressure. I have had tests for lactose and gluten, and they both came back negative. I was not having any gluten at the time of the test which I have read can affect the results. I had little help from my doctor so I went gluten free which was working really well and I would only have pain once every two weeks. The last three nights were awful, I was in so much pain I struggled to walk, and again they would go away in the morning. I looked like I was pregnant and relief was only through passing wind (sorry for the detail!). I was wondering if anyone has had similar experience, or could point me in a direction to help me. The weird thing is that I did have gluten one day and that didn't seem to affect me at all. Then I will have something like vegemite (I'm from Australia) and this is the only thing that I can think off that would set me off (it contains wheat). So I don't really know what do to or where to go, these stomach pains have been heightened since I had a horrible gastro for a week, and went to hospital. Could it be possible that my gut lining has been damaged? I have become really stuck on what I should do next, as tonight my stomach is fine, I actually feel hungry (previously I have felt super full as a result of being bloated), so I have no idea what triggered that horrible episodes before I went to bed for the last few nights. Any thoughts or suggestions would be amazing, thank heaps
    • I found when I went gluten free I started eating more dairy and that gave me worse stomach aches and bloating than the gluten did. So now I have to avoid gluten and dairy.  Maybe you have a similar problem with something you are eating.  I hope you feel better soon.  
    • Hi! I received my "official" celiac diagnosis last week. I had an endoscopy last month that was originally looking for ulcers and h. pylori, but they did some biopsies of my duodenum since they were in the neighborhood and the biopsy came back "consistent with Celiac's disease" and later. They urged me to get my blood checked and follow up with my primary doctor. My blood work came back negative, but my doctor was confident it's Celiac so told me to stay away from gluten. I've been completely gluten free (or to the best of my knowledge) for 2 weeks now, and my results are mixed. At first, I felt great! My stomach was no longer CRAZY bloated once I stopped eating pasta and bread, my acne started healing, and the red rash on the back of my arms started to fade. That was the first few days. Lately, though, my acne is once again flaring up and I've been SO EXHAUSTED. I feel so tired all the time. Even now I have fatigue in my head, limbs, and I could hardly walk or move my body earlier today. I'm overweight and I like to go to the gym, but what used to be an easy workout for me is kicking my ass! I used to go to the gym and tear it up: HIIT on the treadmill followed by 40 minutes of heavy weight lifting. Now I can hardly finish 3 reps in my first set without feeling like a nap. I can't run anymore because my body feels clumsy and heavy. Also, I'm still bloated. I don't suffer from painful, acute bloating, but I struggle to pass gas and I look like I have pregnant belly. I think I'm also retaining water all over my body, and I'm not sure if that's normal? For whatever reason, I have this belief that water is mainly retained in the core and not arms, legs, and face. Anyway, I'd love to hear what you have to say/what you've experienced. Is this typical to first going gluten free?
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