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  1. Celiac.com Celiac Disease & Gluten-Free Diet Forum

    1. Gluten-Free and Celiac Disease Calendar of Events

      Enter your group's Gluten-Free and Celiac Disease events here.

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    2. Board/Forum Technical Help

      This section deals with questions and problems related to the use of this forum. All "old pros" are invited to help answer questions from the newer participants.

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    3. Gluten-Free Foods, Products, Shopping & Medications

      Discussions regarding which mainstream products are gluten-free and which are not.

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    4. Celiac Disease - Coping With

      This part of the forum is for techniques and information on how to cope with celiac disease and the gluten-free diet

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    5. Celiac Disease - Pre-Diagnosis, Testing & Symptoms

      Discussions related to testing for celiac disease.

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    7. Celiac Disease - Post Diagnosis, Recovery/Treatment(s)

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    10. Celiac Disease - Parents of Kids or Babies With Celiac Disease

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    11. Other Food Intolerance and Leaky Gut Issues

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    12. Gluten-Free Ingredients & Food Labeling Issues

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    13. Gab/Chat Room - To Discuss Anything BUT Celiac Disease / Gluten-Free Diet

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    14. Celiac Disease - Publications & Publicity

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    15. Dermatitis Herpetiformis

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    16. Gluten-Free Travel

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    17. Gluten-Free Diet & Weight Issues

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    18. Celiac Disease - Doctors

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    19. Celiac Disease - Teenagers & Young Adults Only

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    20. Gluten-Free International Room (Outside USA)

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    23. Celiac Meeting Room

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    24. Celiac Disease - Sleep

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    25. Gluten-Free Sports and Fitness

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    26. Celiac Disease - Support Groups

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    27. Gluten Intolerance and Behavior

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    28. Super Sensitive Celiacs & Gluten Sensitive

      Non-scientific discussions for those who have been gluten free for at least 6-12 months and suspect they are reacting to lower levels of gluten than the vast majority of celiacs.

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    29. Alternative Diets

      Discussions about alternative diets like the Vegetarian Diet, Specific Carbohydrate Diet (SCD), The Low FODMAP Diet. (FODMAP=Fermentable Oligo-Di-Monosaccharides and Polyols), etc.

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  • Posts

    • 62 yr old woman...celiac?
      I have to agree with Gemini, you must not go gluten free until you've had an endoscopy with biopsies (first you get the blood work done, then you get your confirmation by a follow-up endoscopy), it's the reaction to the gluten that creates the antibodies' you won't get that reaction if you don't eat gluten. It might seem inconvenient, but in the long run it will be worth it.
    • Probiotic Help
      Hi Mom...I take Florajen 3.  It has worked really well for me.  It is kept refrigerated.  I have a hard time finding it where I live so I usually have to order it.
    • Awaiting Biopsy Results
      Hi monkeyloaf......with a positive tTg and EMA, that is a slam dunk for Celiac Disease. It doesn't matter that they are weakly positive, a positive is a positive with Celiac!  With a positive EMA, I am sure you will show damage on biopsy BUT if it happens that damage is patchy and they miss those spots, please do what you already stated and go strictly gluten-free.  You have Celiac!  Couple that with Type 1 diabetes and other relatives with Celiac, it is of the utmost importance  that you be gluten-free.  Your intuition is talking to you on this so these words you spoke are very smart!    I am sorry you have both AI diseases but with the right diet, you are going to be feeling so much better so hang in there!
    • Awaiting Biopsy Results
      I'm still awaiting the results of my biopsy. I have Latent Autoimmune Diabetes of Adults, which is basically type 1 diabetes diagnosed as an adult. (I was 32.) I have second degree relatives with celiac, although, my mom and my sister have yet to be tested. My mom's side of the family has a variety of autoimmune issues. My tTg-IgA was weakly positive (7.5), my DGP IgA was weakly positive (26), and my EMA was positive. My GI MD said he could see some inflammation on my duodenum during my EGD. I desperately want an answer to the issues I've been having. My primary complaints have been fatigue and joint pain, so I hadn't really considered celiac, thinking my GI issues were due to exhaustion. I am thinking I may stay gluten-free regardless of the biopsy results. I've been feeling better since cutting out gluten immediately after my EGD. I also feel like my lab work, diabetes, and family history are enough to warrant caution. Any thoughts or advice on this would be greatly appreciated. Thanks!
    • Probiotic Help
      I have Celiac and I am looking for a really good probiotic.  I have taken several different probiotics over the last year.  Can anyone recommend a good brand.  My local health food store said I should be taken ones that are kept in the frig.  Any advice would be helpful
    • 62 yr old woman...celiac?
      Sass.......please do not go gluten free until you have done a complete Celiac panel and possibly a biopsy for Celiac Disease.  I know it is hard when you have extreme symptoms but I think it important to try and get an official diagnosis.  Doctors do that to us older ladies and there is no excuse for that behavior.  If you do not get results from your doc, then I would suggest a new doctor. Really...it is that important. https://celiac.org/celiac-disease/diagnosing-celiac-disease/screening/  I would take this information to your doctor and demand a full panel.  Do not take no for an answer.  I am not hopeful as anyone who would prescribe tranquilizers to someone with your symptoms is an asshat.  If you noticed that much of a difference between partial gluten-free and regular diet, then you probably have some degree of an issue with gluten.  But you must be very willing to go strictly gluten-free and not cheat in order to feel better and many people feel that an official diagnosis will help them do that. FYI....I was diagnosed via blood work only.  I failed all tests except the tTg/IgG by huge numbers and had all the symptoms of classic Celiac.  That was enough for me because like you, I was really sick with extreme symptoms for a long time. I have never looked back and never cheat.  If there had been any discrepancy on the blood work, I would have gone for the biopsy. Do the panel and see what it comes up with.  Good luck!
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    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
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