General Chat Unrelated to Celiac Disease - Discuss most things here EXCEPT Celiac Disease / Gluten-Free Diet. Keep it light and avoid controversial topics like global warming, gay marriage, gun control, euthanasia, speed limits on the Autobahn, prisoner torture, etc.
My daughter and I both are diagnosed Celiacs through biopsy. I'm a category 8 - DQ2 Homozygous on the Prometheus genetic test. I think I'm reacting to corn and potatoes like I would with gluten. After 15-30 minutes of eating those things I start shaking like someone having a seizure or Parkinson's, then comes the bloating, stomach pain, dead brain and then hours of coma like sleep. Is this a common thing? Does anyone know why I would react to corn and potatoes? My daughter doesn't have a reaction to either of those foods.
A deficiency is classic celiac territory. Celiac disease can cause mal-absorption which leads to vitamin and mineral deficiencies. There has to be a reason for you to have a deficiency. Don't give up looking for the cause. Celiacs tend to have trouble absorbing the fat soluble vitamins. The sometimes have very good cholesterol readings, also because of mal-absorption.
Thanks for replying gluten-free in DC. I know I failed to finish and I readily admitted it to them. I also told them initially I wasn't willing to do the challenge that I'd prefer to be gluten-free and wait for technology to catch up with me. I knew however they would not order endoscopy if I did not do a challenge.
I'll take your sage advice and consider myself Celiac. I considered myself on the spectrum for 3 years.
I was perplexed the GI Dr said that celiac was the least of my concerns now that Barretts was found. I asked if she was sending the results to the celiac specialist I was seeing, she responded why would I do that? You're not celiac. My sarcastic answer was because she was the referring physician, but I figured the fight was not worth the stress that could aggravate if I have non symptomatic gerd. Surprised as this is a large metropolitan university medical hospital.
She did however tell my husband while I was still out from anesthesia if she really thinks she has a problem with gluten tell her not to eat it. That was my only validation.
My insurance company wont cover the next test/ procedure she suggests for Barretts . So my husband and I realize the trip to the city for specialists hit a dead end. now I need to find a different local GI for Barretts monitoring. I feel like this was an exercise in futility however I guess I am fortunate the Barretts was discovered as I have children . And the Barretts will require additional positive lifestyle practices that can aid the celiac too.
I agree, it's good news and bad news in my opinion. The only tests that were done were IgA and TTG IgA. I'm going to ask for them to send me copies of the lab information.
I'm really trying to find the cause. Not being able to figure it out is making me crazy. I hate going and only getting normal lab tests. Ugh. I should be happy I'm healthy but I'm not healthy if I feel like this, right?!
Anyways, thanks for all your help. Much appreciated.