This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
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I want to send an e-mail to my 5 year old's girl scout troop. How does this sound? Thanks! Hi everyone! I wanted to make you all aware that my daughter has celiac disease and must be strictly gluten free. This involves avoided direct gluten (anything containing wheat, barley, or rye) and any items that may be cross-contaminated (from cutting boards, peanut butter containers, etc). Celiac does not cause a medical emergency, but a crumb from a cracker can cause significant damage. To avoid any risk or confusion, if you can let me know what snacks will be served then I can send her with something similar. Please let me know if you have any questions! Thank you for helping me keep my child healthy!
Hi Cycling lady, I really do not remember anymore. I was so hungry at that time that I just concentrated on it being gluten-free free, dairy and soy free but I did not think about containing oats. However, I do not think it did. I think it was just dried fruit (dates) with coco and coconut. I meant to take a photo of a wrapper but forgot. I also try to stay away from oats. I enjoy lettuce wraps as well. I usually eat them with chicken and veggies. Hi Nvsmom, you are right about myfitnesspal. I used to use it religiously when I was healthy (at least believed I was, before my diagnosis) and exercising every day to make sure to track my food and water intake. I need to start using it again and it can also serve as my food journal. Thanks for reminding me about it.
Hi Christiana, After 3 years strict gluten-free last December I began using cert. gluten-free oat flour in a bread recipe. We had not been fond of the gluten-free breads our local stores sold so we had not eaten that very often for the 3 years. The bread I made was delicious & after pretty much not having any bread for 3 years we went nuts eating bread. We had sammiches often, toast with breakfast, garlic toast, cheese toast, bread & butter, we had bread every time we could work it in. It was so nice to be able to just have a sammich for lunch & not have to cook! When I began to make this gluten-free bread with the oat flour; slowly all my celiac symptoms began to return, 1 by 1. However, I did not associate it with the oat flour. I was going crazy nuts trying to figure out where the gluten was coming from. I must back up a bit & explain that I have dh (celiac rash) & didn't really have the "D" - once every 4 - 6 weeks maybe. So it's not like I have this immediate reaction & run to the bathroom like most people do. It began with me getting dizzy. The dizzy comes & goes in waves getting stronger with continued exposure. Then the pounding heart beat that is like drums in my ears, then 1 by 1 symptoms returned. Mild migraines began, red rimmed eyes, twitching nerves in my eyelid, brain fog, burping & then elevated to belching, bloat, then severe bloat, hands & feet getting that needles feeling, gasssssssssssss, blood pressure began rising, that super weird buzzing feeling inside my body - it keeps you awake - sort of like restless leg syndrome but it involves the entire body - sort of like being on speed, mucus in eyes, blepharitis, then the bone & muscle & nerve pain set in & began to make itself known and lastly was the "D" with those horrid, horrid screaming cramps AND the rash flared up. I had always thought the rash would be my first sign of a glutening. I was wrong. We have a totally gluten-free household, never eat out, & are religious about being careful with making sure everything is gluten-free. It took time for all the symptoms to build up but I was aware & was looking for the source of gluten. I could not figure out where it was coming from. I even tried to convince myself it was all in my head - psychosomatic. But it wasn't. Then it dawned on me that it had to be the oats. Quit the bread making, threw out the oat flour, cleaned everything & began anew minus oats. I went back to normal -- all symptoms gone. Then our store began carrying Udi's gluten-free bread. We tried it & we loved it!!!!! We were eating an average of 3 to 4 loaves per week & also having Glutino cookies. A few weeks in & here we go again -- symptoms returning again . Now why? Where is the gluten coming from???? Not eating anything with oats so what is it?????? Then a lightbulb went off in my head. Udi's is made in a gluten-free facility where they also make things containing gluten-free oats. Since it's a gluten-free facility & they use gluten-free oats do they worry about the oats cc'ing the rest of the products???? I called them. The lady I spoke with said they don't clean the lines because everything in the facility is gluten-free including the oats. She told me there is certainly cc with the oats going on. So not only the Udi's bread is cc'd with gluten-free oats but also Glutino products since they are made in the same facility. Just my experience, your mileage may vary.
I have just tried certified gluten-free pure oats again. I last tried them in November and had a burning sensation in my gut for some weeks so did not want to eat them for a while before trying again. So I had hoped now I am nearly two and a half years into the gluten-free journey I might be able to eat them again but I am in pain, yet again ,so have decided that I am probably one of those celiacs for whom avenine is a problem and I intend to steer well clear of them in future. Very disappointing for someone with Scottish ancestry! One thing I would be very interested to know is if anyone who has a problem with oats, as a celiac, has also experienced neurological symptoms after eating them. I have just started a new tingling symptom in my upper thigh and don't know whether to pin this on the oats or sciatica, as in fact I have been doing some heavy lifting in the last couple of days. Many thanks.