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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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    2. Board/Forum Technical Help

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  • Posts

    • Advice on reintroducing dairy.
      You should be able to slowly reintroduce dairy at this point if your problem is lactose intolerance.  If you have a milk protein (usually casein, but occasionally whey) intolerance, then you might not be able to reintroduce--now or ever.  If you follow cyclinglady's schedule and can't even get past the hard cheeses (cheese is almost all casein with very little lactose), it might give you cause to suspect the problem is casein related.  If, however, you breeze past the hard cheeses and only start to have trouble with the "milkier" items (softer cheeses, ice cream, milk, for sure, etc.) then the issue is probably lactose and should resolve with time.
    • Gluten free diet, positive celiac screen...what should I eat now?
      Hi Purdue, You've gotten some good advice already.  That functional doctor may help some people, but you are better off to stick with a traditional GI for now IMHO.  You can do some studying and learning on your own by sticking around this forum and reading threads and articles and asking questions.  There is a lot of combined experience among the members. I am not sure where you live, but another thing you can try is finding a local support group for celiac disease.  There may be one close to you that can offer information and support.  Sometimes hospitals sponsor groups and there are also national celiac support groups.  Here is an article on support groups in the US: http://www.celiac.com/articles/227/1/A-List-of-Local-Celiac-Disease-Support-GroupsChapters/Page1.html The usual diagnostic flow is to have the celiac antibodie blood tests, and then an endoscopy to take 5 or so biopsy samples.  The endoscopy is done by a flexible tube they insert through the mouth.  They discourage singing during the endoscopy.   It's an outpatient procedure. I was gluten-free for 3 months before I saw my GI so I didn't have the endoscopy.  But lots of people have had it.  Sometimes they report a sore throat from the procedure. Sometimes there are research trials for celiac treatments and they only want people who have been through the full diagnostic process.  So if you think participating in a medical trial is something you'd want to do that is a consideration. In Britain I think they had a requirement for diagnosis to get a tax consideration on buying gluten-free food some time ago.  I don't know if that is still true though. Sometimes people find it hard to stick to the gluten-free diet without a diagnosis.  A diagnosis might help in the willpower department. If you did go gluten-free now and decided to get tested later they recommend 12 weeks of eating gluten before the endoscopy.  That can be tough to do if you are sick every time you eat gluten.  So it's easier on most people to do the testing up front. But you are right, there is no absolute requirement that you get fully diagnosed to go gluten-free.  It's a lifetime commitment so that may be easier if you know for sure.  Or maybe not.  Some people have such bad symptoms that resolve on a gluten-free diet that it doesn't matter to them if a test shows celiac or not. Lots of info can be found at the University of Chicago celiac center site. http://www.uchospitals.edu/specialties/celiac/
    • Itchy skin
      Cool compresses may help a bit. Hot baths or showers used to really aggravate my itchy skin so go with warm or cool ones to see if it helps. Keep well hydrated both inside and out. Be sure to check and make sure any lotions you use are gluten free. Shea butter, olive or coconut oil may help. Since you say this is not DH, no blisters etc. I would not advise Dapsone. It is quite a toxic med but if you do talk to your doctor about it make sure that they do blood work before prescribing and frequently during the time you are on it.  Some celiacs have liver impact and Dapsone can be damaging to the liver. I also had both DH and the all over itchies. Being strictly gluten free and avoiding obvious sources of iodine like iodized salt or iodine in supplements will help you heal. I hope you get some relief soon.
    • Where do I start??
      I will be going for my endoscopy on Februry 19. The other day in reading about Celiacs, I read about the strange rashes often associated with celieacs and gluten intolerrance. About six months ago, a rash exactly as you describe showed up on the backs of my knees. The doctor didn't know what it was, hought maybe it was ringworm, and gave me some topical medicine, and the spots did go away with time. However, I've had the same type of spots show up in other places occassionally. I know for a fact they were not ringworm.
    • Advice on reintroducing dairy.
      I can!   Start with hard cheeses, then yogurt/butter, soft cheeses and finally milk/cream.  Start slowly and build.  Give yourself time to get your body to release the enzymes necessary to digest lactose.  Certified gluten-free enzymes for lactose can help the transition.  Lactose free milk and ice cream are helpful too.  Remember, that genetically some of us are predisposed to being lactose intolerant no matter what (e.g. aging, race).   I wish you success!      
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