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  1. Celiac Disease & Gluten-Free Diet Forum

    1. Gluten-Free and Celiac Disease Calendar of Events

      Enter your group's Gluten-Free and Celiac Disease events here.

        (179,495 visits to this link)

    2. Board/Forum Technical Help

      This section deals with questions and problems related to the use of this forum. All "old pros" are invited to help answer questions from the newer participants.

    3. Gluten-Free Foods, Products, Shopping & Medications

      Discussions regarding which mainstream products are gluten-free and which are not.

    4. Celiac Disease - Coping With

      This part of the forum is for techniques and information on how to cope with celiac disease and the gluten-free diet

    5. Celiac Disease - Pre-Diagnosis, Testing & Symptoms

      Discussions related to testing for celiac disease.

    6. Gluten-Free Recipes - Baking & Cooking Tips

      Discussions about gluten-free baking and cooking.

    7. Celiac Disease - Post Diagnosis, Recovery/Treatment(s)

      Discussions related to one's diagnosis with celiac disease.

    8. Celiac Disease - Related Disorders & Research

      Discussions concerning other health problems associated with celiac disease, and celiac disease research

    9. Gluten-Free Restaurants

      Discussions about dining out gluten-free.

    10. Celiac Disease - Parents of Kids or Babies With Celiac Disease

      Discussions with other parents of kids or babies with celiac disease.

    11. Other Food Intolerance and Leaky Gut Issues

      Discussions about additional non-gluten food intolerance issues, including cow's milk (casein), soy, eggs, corn, etc.

    12. Gluten-Free Ingredients & Food Labeling Issues

      Discussions regarding which ingredients are safe and which are not, and food labeling issues.

    13. Gab/Chat Room - To Discuss Anything BUT Celiac Disease / Gluten-Free Diet

      General Chat Unrelated to Celiac Disease - Discuss most things here EXCEPT Celiac Disease / Gluten-Free Diet. Keep it light and avoid controversial topics like global warming, gay marriage, gun control, euthanasia, speed limits on the Autobahn, prisoner torture, etc.

    14. Celiac Disease - Publications & Publicity

      Discussions related to books, articles and other press about celiac disease.

    15. Dermatitis Herpetiformis

      Discussions concerning the skin condition associated with celiac disease.

    16. Gluten-Free Travel

      Discussions concerning how to maintain a gluten-free diet while traveling, including great gluten-free places to visit.

    17. Gluten-Free Diet & Weight Issues

      Discussions about how to lose or gain weight while on a gluten-free diet.

    18. Celiac Disease - Doctors

      Discuss experiences with doctors, how to find a doctor, etc.

    19. Celiac Disease - Teenagers & Young Adults Only

      This area is where Teenagers and Young Adults can discuss issues related to celiac disease and the gluten-free diet.

    20. Gluten-Free International Room (Outside USA)

      Discussions about living gluten-free in Canada, Australia, Asia & Pacific Rim, UK, Europe, etc.

    21. Celiac Disease - Pregnancy

      Discussions related to being pregnant with celiac disease.

    22. Celiac Disease - Friends and Loved Ones of Celiacs

      Non-celiacs discuss their experiences dealing with a friend or loved one with the disease.

    23. Celiac Meeting Room

      A Place where gluten-free people can meet each other--Adults only please.

    24. Celiac Disease - Sleep

      Discussions concerning sleeping problems and celiac disease.

    25. Gluten-Free Sports and Fitness

      Gluten-free athletes discuss fitness, sports nutrition, working out, etc.

    26. Celiac Disease - Support Groups

      Discussions concerning celiac disease support groups and support group meetings.

    27. Gluten Intolerance and Behavior

      Discussions concerning behavioral issues associated with the consumption of gluten.

    28. Super Sensitive Celiacs & Gluten Sensitive

      Non-scientific discussions for those who have been gluten free for at least 6-12 months and suspect they are reacting to lower levels of gluten than the vast majority of celiacs.

    29. Alternative Diets

      Discussions about alternative diets like the Vegetarian Diet, Specific Carbohydrate Diet (SCD), The Low FODMAP Diet. (FODMAP=Fermentable Oligo-Di-Monosaccharides and Polyols), etc.

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  • Posts

    • Did you have a celiac blood test?  NSAIDs are known for causing celiac like damage.   I think you should get another opinion, you may very well have non-celiac villous attrophy caused by the NSAIDs.

      From what I have read, NSAID use is the most common reason people are misdiagnosed with celiac.  And diagnosis critera generally advises doctors to rule out NSAID use before diagnosing celiac if there is not postive blood work to back up the biopsy.  
    • I avoid all chips and deep fried items unless I am absolutely sure they are being made in a gluten-free dedicated fryer. It's not only the ingredients you have to be concerned about, it's the surfaces and such. So if something is fried in oil that previously fried something with gluten, it's contaminated and a no no.
    • And keep eating that gluten until all that testing is complete!!!
    • I lost 30 lbs within a month after going gluten free. It was all inflammation! I do not believe it was because my metabolism suddenly revved up, I believe it was water weight from the inflammation, my doctor concurs.  My doc said he has had Celiac's who lost over 300 lbs after going gluten free!!!  Due to the malabsorbtion caused by Celiac's, underneath I had lost bone and muscle mass and looked emaciated.  It took over a year and with gradually increasing exercising, at first very very light.  I have gained 5 lbs and feel must stronger. So be careful now that you have lost the weight, you may need time to build back your structure and you don't want to break anything that may be compromised.
    • My newborn grandson (4 months old) is on one and thriving.  I have a friend with a three year old that is just learning to eat by mouth.  These tubes are very common, but I have no experience with someone of her age.  
    • First of all- who are these a-holes making fun of you? It's making me heated just thinking about it. Coworkers? If you don't like your job much I suggest taking a diarrhea sh*t in a bag and leaving it on their desk. Then see how hard they laugh. (sorry I have quite an interesting sense of humor/need to make people realize how not funny their jokes are). I haven't had a whole lot of people who poke fun at me, I get the annoying "oh! That must be why you are so skinny- you are SO lucky!" Even one of my very close friends says that to me sometimes- that she wishes she wouldn't absorb all the nutrients in her food so she could lose wait. I'm sorry WTF did you just say to me?! Seriously? IF you are that desperate to lose weight maybe TRY to do something about it instead of complain to me and wish you had some effed disease. Phew- tangent. Um. This might be against what others think or recommend. But I want to share so maybe you feel less overwhelmed. I didn't worry about other cross reactive foods or even think about it until later on. And with some worries about this and that (coffee mostly) I stopped thinking about it and stopped googling it. There are enough things for me to worry about just avoiding gluten. And I still drink coffee. Dairy has only recently become a (noticeable) issue after 3 years gluten free. The kissing thing- I don't worry about either. Maybe because I have been with the same guy for 11 years but we don't do a whole lot of hard make out sessions right after dinner. LOL. I don't know how sensitive you are- I don't know if you even know how sensitive you are. It takes a long time to really figure this whole thing out. And then once you get it figured out- something changes (just like parenting small children!) I think with the other foods issue, because you are feeling so depressed- I would just worry about the gluten part for now (after you get through this nightmare of eating it again). Do you have to have the diagnosis? Is it really worth it in the end? I know having the official diagnosis can make it easier to see necessary specialists and get tests done- when you stay in the hospital they try to feed you the right food. But. I don't know. Hard for me to say because my dr went about things a little differently and gave me a diagnosis just based on my symptoms being better without gluten and having a genetic test that was positive. After reading what you are going through I would bail in a heartbeat- eating that gluten for that long and still working and all that is a lot. And it will make the depression you are already going through seemingly worse. I am in no position to suggest what you should do in this instance but just a thought I wanted to share. Anywho- hang in there. Hire a hit man perhaps to take out these evil people. or leave flaming poop bags on their porch (so you can keep your job  )
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