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Anyone Take Elavil For Sleep Or Pain? Or a low dose for something else?

#1 User is offline   jenvan Icon

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Posted 26 September 2006 - 12:33 PM

If you have any experience with elavil for sleep or pain...I'd love to hear about it... Thanks!
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Jen
Indianapolis, IN

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Posted 26 September 2006 - 12:41 PM

Jen...I"m stalking you :ph34r:

A good friend takes Elavil for her spastic bowels, can you believe it? She's NOT Celiac - went at my suggestion to my own wonderful GI - she really has spastic bowels due to nerves - he did every test. She has a lot of stress in her past and in her life, so he put her on a low dose of this, and it slows down her pooping and D urges.

I know she doesn't have any trouble sleeping, BUT this does make her feel a little tired in the morning...I think it's quite sedating and good for sleep if you're having troubles....you COULD just drink lots and lots of beer, you know..... :lol:
SUSIE

Diagnosed January 2006

"I like nonsense. It wakes up the brain cells." ~Dr. Seuss
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Posted 26 September 2006 - 12:47 PM

the doc gave it to me to help with the poor sleep caused by my fibromyalgia----it did help for awhile. i tried it again later, but it left me too sleepy in the day.
Christine

15 year old twins with celiac, diagnosed dec. 2005
11 year old daughter with celiac diagnosed dec 2005
17 year old son with celiac gene
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Posted 26 September 2006 - 04:11 PM

My 8 year old takes it for migraine prevention. It works for that and it helps her to calm down to go to sleep at night.
Karen

gluten free 4/06
casein free 7/06
DQ1, DQ8

Daughter (11) gluten free 5/06, casein free 6/06

Daughter (9) gluten free 3/06, casein free 7/06, soy free, trying peanut free
vegetarian
gluten lite on and off since 1999

All dx'ed by Enterolab
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#5 User is offline   jenvan Icon

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Posted 27 September 2006 - 07:22 AM

Thanks for the input ladies... Good to have a warning of extended sleepiness. My doc really would like me to try a very small doze for pain and sleep but I really hesitate. I've had the prescription for months vacillating over it ! Susan--Yeah, beer is always a good option :D Although a few shots would have less carbs :lol:
~~~~~~~
Jen
Indianapolis, IN

gluten-free since Feb 2005
dairy-free
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Post icon  Posted 27 September 2006 - 08:23 AM

Hi Jen
Just saw this. Gosh i don't know anything about this drug..but can send hugs
love ya
judy
Judy
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Posted 28 September 2006 - 07:34 AM

View Postjenvan, on Sep 26 2006, 12:33 PM, said:

If you have any experience with elavil for sleep or pain...I'd love to hear about it... Thanks!



I will answer the low dose of something else part of this, I used to take a very low dose of amytriplimine I don't think I spelled that right, but it was prescribed prediagnosis before my fibro and arthritis went into remission (with the gluten-free diet). I was told it had a low risk of side effects and was not addictive, I had no problems stopping it, so I chose that over a sleeping pill because at the time I was on enough addictive meds. Don't know if this info is any help but figured I would throw it in there.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
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#8 User is offline   whitball Icon

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Posted 28 September 2006 - 08:41 AM

I have taken elavil for pain for about 3 years. It helps me sleep through the night. It also stops me from staying awake to worry about life stuff. The only thing that I have noticed is when I forget to take it, I have very vivid, strange, off the wall dreams.
Positive biopsy, positive blood test in 2/2006
Muscle biopsy in thigh in 2004 to confirm metabolic myopathy (found denervated nerves)
Interstitial cystitis diagnosis 2004
Hysterectomy 2003
3 for c-sections, 2 laparoscopies to remove abdominal adhesions
Abnormal heart beat when tired or glutened
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#9 User is offline   jenvan Icon

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  • Location:Indianapolis, Indiana

Posted 28 September 2006 - 09:35 AM

View Postravenwoodglass, on Sep 28 2006, 09:34 AM, said:

I will answer the low dose of something else part of this, I used to take a very low dose of amytriplimine I don't think I spelled that right, but it was prescribed prediagnosis before my fibro and arthritis went into remission (with the gluten-free diet). I was told it had a low risk of side effects and was not addictive, I had no problems stopping it, so I chose that over a sleeping pill because at the time I was on enough addictive meds. Don't know if this info is any help but figured I would throw it in there.

No, that is helpful !

Whitball--
That's interesting...b/c I have those kinds of crazy dreams all night. I wonder if mine would go away ? :rolleyes:
~~~~~~~
Jen
Indianapolis, IN

gluten-free since Feb 2005
dairy-free
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#10 User is offline   ravenwoodglass Icon

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Posted 29 September 2006 - 07:50 AM

View Postjenvan, on Sep 28 2006, 09:35 AM, said:

--
That's interesting...b/c I have those kinds of crazy dreams all night. I wonder if mine would go away ? :rolleyes:


If you are aware of dreaming for a large part of the night you are not getting enough of the deeper levels of sleep. Human sleep patterns have a number of levels and all of them need to be reached for a certain amount of time in a cycle that goes on all night. Once you are able to sleep soundly the crazy dreams should lessen. Vivid dreams can also be a side effect of some meds, I don't know what you may be taking so I don't know if this might be a possibility.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
0

#11 User is offline   jenvan Icon

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  • Location:Indianapolis, Indiana

Posted 29 September 2006 - 07:59 AM

View Postravenwoodglass, on Sep 29 2006, 09:50 AM, said:

If you are aware of dreaming for a large part of the night you are not getting enough of the deeper levels of sleep. Human sleep patterns have a number of levels and all of them need to be reached for a certain amount of time in a cycle that goes on all night. Once you are able to sleep soundly the crazy dreams should lessen. Vivid dreams can also be a side effect of some meds, I don't know what you may be taking so I don't know if this might be a possibility.

I actually don't take anything now. Just birth control and allergy meds. I have thought that I probably don't get to all those levels. Yes--lots of dreams, pretty much every night, vivid and I usually remember most of them. Gives me this feeling that when I wake up in the morning, I feel like I was "working" all night in my sleep.

Just thought of two questions for you--how long did you take it and did you get a sleep hangover during the day ? I know some people get that effect initially...
~~~~~~~
Jen
Indianapolis, IN

gluten-free since Feb 2005
dairy-free
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#12 User is offline   loraleena Icon

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Posted 29 September 2006 - 08:06 AM

Birth control pills can cause candida overgrowth wich can in turn cause fibro symptoms. I got off that stuff a few years ago and just deal with plain old condoms now.
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#13 User is offline   ravenwoodglass Icon

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Posted 30 September 2006 - 06:07 AM

View Postjenvan, on Sep 29 2006, 07:59 AM, said:

I actually don't take anything now. Just birth control and allergy meds. I have thought that I probably don't get to all those levels. Yes--lots of dreams, pretty much every night, vivid and I usually remember most of them. Gives me this feeling that when I wake up in the morning, I feel like I was "working" all night in my sleep.

Just thought of two questions for you--how long did you take it and did you get a sleep hangover during the day ? I know some people get that effect initially...


When I was still taking the amytriplimine I did not notice any 'hangover' effect at all. I took it for over a year prediagnosis. When I did the elimination diet with my allergist I weaned off all my meds during the first couple of weeks. I had no withdrawl symptoms from this drug at all, not the case with many of the 'mood elevators', sleeping pills or other psychotropics I have taken over the years. I am of course only speaking from my experience but if I needed something again Amy would be what I would ask for.

One additional note, is there a possiblity that your allergy meds may be causing your sleep problems? Have you brought the issue up with your allergist? I ask because when my allergies were real bad prediagnosis one of the meds they gave me kept me up for 2 full days from just the first days dosage. I was literally bouncing off the walls. If you haven't mentioned it to your doctor you may want to, you may just need a different allergy med.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
0

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