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Seizures And Celiac does anyone have both
#1
sellywelly 
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Posted 01 April 2007 - 03:43 PM
hi i am a teen that has seizures and celiac i was wondering if anyone else has them both. i know that having celiac can cause seizures . so write back
MultiQuote
#2
missy'smom
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Posted 02 April 2007 - 04:30 AM
http://www.glutenfre...howtopic=315471 2007, 07:43 PM'
My sister has seizures and shes' not diagnosed yet but I think she had celiac disease too.
Maybe this discussion will help. You can also go to the Example search box above and erase tomato sauce and type in seizures and search for other discussions that way.
My sister has seizures and shes' not diagnosed yet but I think she had celiac disease too.
Maybe this discussion will help. You can also go to the Example search box above and erase tomato sauce and type in seizures and search for other discussions that way.
GLUTEN-FREE July '06, CASEIN-FREE Nov.'07, several neg. tests for dairy but finally pos. for casein in Nov. '09, DIABETES DX Oct. '08, investigating LADA-Latent Autoimmune Diabetes in Adults as cause/DX Who knew food allergies/intolerances could trigger and autoimmune attack on the pancreas?!
DS:
ADHD '06,
neg. Celiac panel May '07
ALLERGY TEST "pos." to nearly 40 food and environmental, including wheat("positive" on both blood and skin test), which was found through dietary elimination trial to be the cause of his eczema '08
ENTEROLAB testing showed elevated Fecal Anti-tissue Transglutaminase IgA Dec. '08
Officially gluten-free-Feb. '09
DS:
ADHD '06,
neg. Celiac panel May '07
ALLERGY TEST "pos." to nearly 40 food and environmental, including wheat("positive" on both blood and skin test), which was found through dietary elimination trial to be the cause of his eczema '08
ENTEROLAB testing showed elevated Fecal Anti-tissue Transglutaminase IgA Dec. '08
Officially gluten-free-Feb. '09
#3
ravenwoodglass
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Posted 03 April 2007 - 04:34 AM
I was but not anymore. I do not seize now unless glutened and even then they are different and not as severe. I should note I did not have full gran mal seizures, I had seizures in the sub illeal cortex which have a different sort of presentation.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
#4
cybermommy
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Posted 10 April 2007 - 09:39 PM
I was diagnosed w/ idiopathic epilepsy 20 yrs ago (in college). Though by history we can document seizures in elementary school. I had mixed type seizures (mostly tempral lobe, but have had "grand mal" seizures too). I was on multiple meds & still had some seizures. When I went low gluten (only the hidden trace sources) I stopped having seizures. I am now totally gluten-free & off all seizure meds. The only seizure I have had since was when I got glutened & it was mild (eye blinking). I am not even having seizures w/ strobe lights or being startled awake. 
I still avoid Nutrasweet as it is unhealthy anyway & I am not willing to risk it. It is nice to be out of the fog that comes w/ celiac disease & seizure meds.
Hope this helps. Remember you can't suddenly discontinue seizure meds or it will cause you to go into a seizure that you can't get stopped (life threatening). Even people w/o epilepsy will have seizures if they take seizure meds then suddenly discontinue it. If you think having your celiac disease under control has resolved your seizure disorder, talk to your doctor about trying to wean from it. I hope yours is celiac disease related so you can be seizure free too. Keep me posted as to how you are doing.
God Bless,
Deb
I still avoid Nutrasweet as it is unhealthy anyway & I am not willing to risk it. It is nice to be out of the fog that comes w/ celiac disease & seizure meds. Hope this helps. Remember you can't suddenly discontinue seizure meds or it will cause you to go into a seizure that you can't get stopped (life threatening). Even people w/o epilepsy will have seizures if they take seizure meds then suddenly discontinue it. If you think having your celiac disease under control has resolved your seizure disorder, talk to your doctor about trying to wean from it. I hope yours is celiac disease related so you can be seizure free too. Keep me posted as to how you are doing.
God Bless,
Deb
Deb
Misdiagnosed:
1979 w/ IBS (atypical) & idiopathic epilepsy
1980's acid reflux, chronic appendicitis
1991 chronic severe pain (thought to be related to injuries & compensation for injuries)
1995 gallbladder surgery
2003 exzema (not responsive to treatment)
2006 pain put me into electric wheelchair
Recurrent depression & anxiety (1975-2006)
Diagnosed w/ Celiac Disease Feb. 2007
I am currently off of all seizure & pain meds & doing GREAT! I am walking w/o even a cane. Sleeping in regular bed now w/ lots of pillows, but back on reflux meds.
Low Gluten since June 2006 (by accident) gluten-free since Feb. 2007
Other problem foods: Shellfish/iodine, dark green leafy vegtables, ie: spinach, tunip (greens as well as the root) I can cheat a little w/ spinach if it is raw. I love it in salads. Caffeine is also problem(fibroid cystic disease) & Nutrasweet causes me to have seizures.
Mother of 3. One w/ celiac disease & lactose intollerant, one non-sympomatic (allergic to blueberries, red #3 & red #33) & one thanking God he is adopted (though he is diabetic). I also care for toddler who is allergic to gluten, peanuts & soy. She is also lactose intolerant.
Misdiagnosed:
1979 w/ IBS (atypical) & idiopathic epilepsy
1980's acid reflux, chronic appendicitis
1991 chronic severe pain (thought to be related to injuries & compensation for injuries)
1995 gallbladder surgery
2003 exzema (not responsive to treatment)
2006 pain put me into electric wheelchair
Recurrent depression & anxiety (1975-2006)
Diagnosed w/ Celiac Disease Feb. 2007
I am currently off of all seizure & pain meds & doing GREAT! I am walking w/o even a cane. Sleeping in regular bed now w/ lots of pillows, but back on reflux meds.
Low Gluten since June 2006 (by accident) gluten-free since Feb. 2007
Other problem foods: Shellfish/iodine, dark green leafy vegtables, ie: spinach, tunip (greens as well as the root) I can cheat a little w/ spinach if it is raw. I love it in salads. Caffeine is also problem(fibroid cystic disease) & Nutrasweet causes me to have seizures.
Mother of 3. One w/ celiac disease & lactose intollerant, one non-sympomatic (allergic to blueberries, red #3 & red #33) & one thanking God he is adopted (though he is diabetic). I also care for toddler who is allergic to gluten, peanuts & soy. She is also lactose intolerant.
#5
hlm34
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Posted 19 April 2007 - 03:37 PM
I have seizures and celiac. They CAN be related, but it my case they are not. I wish the seizures were a result of the celiac though, and then being gluten-free would relieve them. Unfortunately, since they are not, i have to do the gluten-free diet AND take meds for the seizure.
Have you had an EEG done?
Have you had an EEG done?
#6
Ed_G
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Posted 19 April 2007 - 09:04 PM
sellywelly, on Apr 1 2007, 07:43 PM, said:
hi i am a teen that has seizures and celiac i was wondering if anyone else has them both. i know that having celiac can cause seizures . so write back
I have both celiac and epilepsy also, but they are also unrelated. I was born having seizures, and had a febrile seizure when I was two, but the epilepsy did not begin to develop in earnest until I was a teenager.
I am interested in what type of seizures you have.
Ed
banana baby
epilepsy dx'ed at 15
epilepsy dx'ed at 15
#7
imsohungry
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Posted 20 April 2007 - 04:00 AM
Yep, epilepsy and celiac...unfortunately, mine are unrelated. However, there is evidence that the two can be related; it just doesn't happen to be so in my case. Keep hope and keep researching.
-Julie
-Julie
Loves of my life: God, my hubby, and my baby boy!
"I will never give up on my dreams; I will simply modify my path for reaching them." (JH-me).
"Life's a dance you learn as you go, sometimes you lead, sometimes you follow"
(John Michael Montgomery).
"I'm gonna be somebody, one of these days I'm gonna break these chains" (Travis Tritt).
"Life is better left to chance. I could have missed the pain, but I'd have had to miss the dance."
(Garth Brooks).
"I will never give up on my dreams; I will simply modify my path for reaching them." (JH-me).
"Life's a dance you learn as you go, sometimes you lead, sometimes you follow"
(John Michael Montgomery).
"I'm gonna be somebody, one of these days I'm gonna break these chains" (Travis Tritt).
"Life is better left to chance. I could have missed the pain, but I'd have had to miss the dance."
(Garth Brooks).
#8
RobinN
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Posted 21 April 2007 - 04:45 PM
sellywelly, on Apr 1 2007, 04:43 PM, said:
hi i am a teen that has seizures and celiac i was wondering if anyone else has them both. i know that having celiac can cause seizures . so write back
My daughter has a new seizure disorder (first seizure at the age of 14). We have not had her tested for celiac and yet I put her on an elimination diet and we are waiting to see results. We have had one month free of seizures, and yet also started natural hormones, so I am not sure which is more helpful. Can say almost with assurance that the anti seizure meds are not helpful.
Thank God for the internet.
#9
zkat
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Posted 21 April 2007 - 05:04 PM
I was diagnosed with idiopathic epilepsy when I was 19 (13 yrs. ago), in hindsight it was one of the first true signs of the celiacs. I have weened myself off my meds (not recommended without a dr) and have been seizure free for 6 months.
Kat.
Kat.
#10
marciab
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- Interests:Jan 1990 - Virus triggered CFS/ME/FM (URI's, ataxia, myoclonus, orthostatic hypotension, insomnia, swollen lymph nodes, sore throat, brain fog ... ) <br /><br />Sept 2005 - GFDFEFSFCF + chemical free. <br /><br />September 2006 - Ataxia, myoclonus, insomnia are gone as long as I don't get any gluten. <br /><br />June 2007 - Positive for DQ2, Dx Celiac
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Posted 22 April 2007 - 08:23 AM
I had myoclonus and petite mal seizures and both appear to have been eliminated by going gluten, diary, soy, egg, corn and chemical free. My stomach was killing me so I had to eliminate all of these at once, so I have no idea which one was the culprit. Or if some combination of these caused it.
However, I know I will get myoclonus, insomnia and horrible "D" if I accidently eat gluten again. I haven't had a petite mal seizure in 6 - 9 months ? but those weren't happening every day like the myoclonus.
I have read that dairy, etc can cause symptoms in others though. I haven't tested dairy, etc solely to see if any of those would cause my symptoms to come back.
If you google "gluten epilepsy" or "gluten seizures" you will get plenty of reliable sites on how the two are related.
Marcia
However, I know I will get myoclonus, insomnia and horrible "D" if I accidently eat gluten again. I haven't had a petite mal seizure in 6 - 9 months ? but those weren't happening every day like the myoclonus.
I have read that dairy, etc can cause symptoms in others though. I haven't tested dairy, etc solely to see if any of those would cause my symptoms to come back.
If you google "gluten epilepsy" or "gluten seizures" you will get plenty of reliable sites on how the two are related.
Marcia
Jan 1990 - Dx CFS/ME/FM (URI's, Ataxia, myoclonus, orthostatic hypotension, insomnia, brain fog, swollen lymph nodes, sore throat... ) Completely Disabled (housebound and bedridden at times)
2004 - Digestive pain all the time.
May 2004 - Hiatal hernia, erosive gastritis, gastroparesis (endoscopy)
August 2004 - Colon polyps, diverticulitus, internal hemorrhoids (colonoscopy)
No relief from Nexium, Prilosec, Protonix, Zelnorm, Miralax, Imodium, Lomotil ...
July 2005 - GP recommended WFDFSFEFCF + vegan (Also, anything that hurts free)
Immediately stopped needing naps and digestive pain reduced.
Sept 2005 - GFDFCFSFEF + chemical free - Immediately stopped feeling jittery / buzzing and digestive issues were much better.
June 2006 - Dx B12 and iron deficient. Started B12 injections and using cast iron pan.
August 2006 - MYOCLONUS GONE. (off Klonopin)
September 2006 - ATAXIA, INSOMNIA and Feeling like the floor was moving under my feet gone.
June 19, 2007 - Positive DQ2, Dx Celiac
October 2007 - Sleeping like a baby, waking up with energy, but still having fatigue/stamina issues
Nov 2007 - Started Paleo diet for chronic hypoglycemia
April 2008 - GTT normal. I'm no longer hypoglycemic. Started Low oxalate diet for kidney stones.
May 1, 2008 - Began salt loading for OI/NMH - noticed immediately muscle weakness was gone. I was sodium deficient but my labs don't reflect it. Still working on OI and PEM.
2004 - Digestive pain all the time.
May 2004 - Hiatal hernia, erosive gastritis, gastroparesis (endoscopy)
August 2004 - Colon polyps, diverticulitus, internal hemorrhoids (colonoscopy)
No relief from Nexium, Prilosec, Protonix, Zelnorm, Miralax, Imodium, Lomotil ...
July 2005 - GP recommended WFDFSFEFCF + vegan (Also, anything that hurts free)
Immediately stopped needing naps and digestive pain reduced.
Sept 2005 - GFDFCFSFEF + chemical free - Immediately stopped feeling jittery / buzzing and digestive issues were much better.
June 2006 - Dx B12 and iron deficient. Started B12 injections and using cast iron pan.
August 2006 - MYOCLONUS GONE. (off Klonopin)
September 2006 - ATAXIA, INSOMNIA and Feeling like the floor was moving under my feet gone.
June 19, 2007 - Positive DQ2, Dx Celiac
October 2007 - Sleeping like a baby, waking up with energy, but still having fatigue/stamina issues
Nov 2007 - Started Paleo diet for chronic hypoglycemia
April 2008 - GTT normal. I'm no longer hypoglycemic. Started Low oxalate diet for kidney stones.
May 1, 2008 - Began salt loading for OI/NMH - noticed immediately muscle weakness was gone. I was sodium deficient but my labs don't reflect it. Still working on OI and PEM.
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