[kim26]

are quaker rice cakes ok?

[Ursa Major]

Most people here react to all Quaker products, apparently they are all cross-contaminated.

[kim26]

i thought so. I've read conflicting reports. my dd has been acting whiny and cranky, and says she's nauseated the past couple of days, i thought maybe it was because she just got a new retainer(following her braces being taken off), but since she started the gluten-free diet she only reacts this way to gluten...not every little stress in life the way she used to. the rice cakes are the only thing that has even been remotely questionable in her diet. however, usually when something says "processed in a facility that also produces products with wheat" she doesn't typically have any problem whatsoever with those foods. is it just quaker or is she just becoming more sensitive, she's been gluten-free following diagnosis 3 months ago??

[chasing4]

I was wondering about this myself. Another girl who's diagnosed as celiac was eating rice cakes and sharing them with dd. I thought it was okay, but then dd was getting cranky and she got this weird rash around her mouth. I asked her many times if she had anything else, but her and her sister were both telling me that it was only the rice cakes.

Now, I do have a question about the rash. Do celiacs get a rash around their mouth if they consume anything with gluten? She hasn't had that in a while and then it flared up after the rice cakes.

[rick_spiff]

My kids are fine with the rice cakes (the non dairy ones)


And my son got into dairy which he's allergic and he got the rash yesterday which he hasn't had in a while either.

[OBXMom]

Kim, thank you for bringing this up. My son lives on these and I never thought to question them, but after your question I did a search through the board and found that Quaker responds to inquiries that they cannot guarantee their rice cakes to be gluten free. If his IgA that we are waiting for comes back high, I will know one of the main culprits. Yikes, wonder what else I'm missing . . .

[rpf1007]

Quaker rice cakes made me violently ill! It was my worst gluten reaction yet. I'm glad some people aren't reacting to them though because they are the best. Quaker doesn't say anything they make is gluten-free because of the way they store things.

[Lisa]

Here is a link to a previous discussion regarding Quaker Rice Cakes

http://www.glutenfre...php/t44181.html

[Dyan]

I am now questioning them also. My daughter has been gluten free for almost 6 months without 100% improvement. She is thinking it is dairy and wants to go dairy free after her birthday. (She wants some sherbert) But now I don't know, she eats rice cakes everyday. Two for lunch and throughout the week she finishes the pack. I guess I'll have to try going back to the health food store brand that is labeled gluten-free and do a little test.

But it is hard for me to get answers out of her about how her stomach feels. She doesn't really know how to describe her pain and she doesn't remember a lot of the times. I think I will have her keep a food diary and then track her stomach pains after eating. I don't know what else to do.

I am interested to hear the results of the one posters lab work. That would give us all a little more info about how contaminated those little styrofoam disks really are.

[SunnyDyRain]

chasing4, on Apr 29 2008, 02:04 PM, said:

I was wondering about this myself. Another girl who's diagnosed as celiac was eating rice cakes and sharing them with dd. I thought it was okay, but then dd was getting cranky and she got this weird rash around her mouth. I asked her many times if she had anything else, but her and her sister were both telling me that it was only the rice cakes.

Now, I do have a question about the rash. Do celiacs get a rash around their mouth if they consume anything with gluten? She hasn't had that in a while and then it flared up after the rice cakes.

My #1 Sure fire way to know if i have been glutened is if I get little pimple like things around (and some times in) my mouth. They are like pimples, but have clear fulid and take a LONG time to go away. Though I have found that drinking alcohol does help the ones in my mouth, next time i will try swabbing my lips in vodka to see if it helps at all.

I had tried eating quaker rice cakes, they were fine in the digestive tract, but I was still getting the pimples. I now avoid. Aldi's has good rice cakes that don't seem to be contaminated.

[OBXMom]

Dyan, on Apr 29 2008, 03:16 PM, said:

I am now questioning them also. My daughter has been gluten free for almost 6 months without 100% improvement. She is thinking it is dairy and wants to go dairy free after her birthday. (She wants some sherbert) But now I don't know, she eats rice cakes everyday. Two for lunch and throughout the week she finishes the pack. I guess I'll have to try going back to the health food store brand that is labeled gluten-free and do a little test.

But it is hard for me to get answers out of her about how her stomach feels. She doesn't really know how to describe her pain and she doesn't remember a lot of the times. I think I will have her keep a food diary and then track her stomach pains after eating. I don't know what else to do.

I am interested to hear the results of the one posters lab work. That would give us all a little more info about how contaminated those little styrofoam disks really are.

Dyan, we were in the exact same boat, not enough improvement in 6 months. The bloodwork came back better but not normal. (From 216 before diagnosis to 6, with 3 being the top normal.) The nurse wasn't concerned because his numbers had been very high and dropped a lot, but it is still hard for a Mom not to worry.

You know, we switched brands of rice cakes and are having less tummy aches, so I would give it a try if I were you. I'm not sure how old your daughter is, but for our food diary, we came up with a one to 10 scale to rate tummy aches, with words by each number. We've never had a 10, which is take me to the hospital now, and 1 is it hurts so little I can hardly feel it. It is really hard when a child says his tummy hurts, and you say how much, and all they can say is less or more.

Good luck on the food diary, hope it gives you answers soon.

[Dyan]

Thank you OBXmom. For some reason my dd cannot get the jist of 1-10 scale. So I changed it to 1-5 so she could have an exact middle. That didn't seem to help much. I have told her over and over taht she is the only that knows how she feels and saying things like "I dunno" only hurt her. Anyway I read on Enterolabs website that 3/4 of Celiacs are also sensitive to yeast. So we now had 3 variables to try out, dairy, rice cakes, and yeast.

We are 2 days without rice cakes and she has less pain then when eating rice cakes. (I really wish she understood 1-5) I would be interested in your words that go along with your scale. But, I am feeling good about the rice cake test, since she is taking yogurt for lunch instead. But then I am also disappionted to find out that we have been being so careful with every single thing she eats or drinks, only to find out I serving her gluten every single day.

[OBXMom]

Dyan, on May 2 2008, 07:53 PM, said:

Thank you OBXmom. For some reason my dd cannot get the jist of 1-10 scale. So I changed it to 1-5 so she could have an exact middle. That didn't seem to help much. I have told her over and over taht she is the only that knows how she feels and saying things like "I dunno" only hurt her. Anyway I read on Enterolabs website that 3/4 of Celiacs are also sensitive to yeast. So we now had 3 variables to try out, dairy, rice cakes, and yeast.

We are 2 days without rice cakes and she has less pain then when eating rice cakes. (I really wish she understood 1-5) I would be interested in your words that go along with your scale. But, I am feeling good about the rice cake test, since she is taking yogurt for lunch instead. But then I am also disappionted to find out that we have been being so careful with every single thing she eats or drinks, only to find out I serving her gluten every single day.

I know, it is terrible to think you could be so careful and still be serving gluten. Today I read in The Gluten Free Bible that you shouldn't worry so much about disclaimers from companies if gluten isn't in the actual ingredients, but that seems contrary to what lots of folks around her say. And when your child is suffering, you have to keep searching.

That is interesting about the yeast, I'll have to look into that. The foods my son has reacted to are dairy, soy and corn, and they seem to be really common culprits from what I have read here. I removed eggs about the same time we switched rice cakes, so I am not positive about that, but they may be a no no for us, too.

I think a scale of 5 is probably enough. My son helped come up with the words, and some of ours are a bit redundant, but here are some words you could see if your daughter likes:

1 - I can hardly feel it.
2. Not a lot of pain but you can't miss it
3. I'm thinking about it all of the time.
4. Very bad but I can still play
5. I can hardly play.

You know, looking at our scale for the first time in a while, what makes me sad is that we never, ever hit zero. Hopefully one day soon.

[Dyan]

Thank you again. I asked my daughter and 2 days off the rice cakes she says she has gone from a 4 to a 1 and a half. (She can never just give me a straight answer). So I'm positive we are going off the Quaker Rice cakes.

I like The Gluten Free Bible also. I think she makes a lot of sense on somethings, but she seems to contridict herself on some things.

[Kibbie]

kim26, on Apr 29 2008, 10:01 AM, said:

are quaker rice cakes ok?

The popcorn people Orville redinboker make rice cakes that we've had no problems with