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I anyone here a member of a support group in Auburn or Syracuse?
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Syracuse/auburn Area Question. Support groups.
#1
Imanistj 
- Advanced Community Member
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- Group: Advanced Members
- Posts: 117
- Joined: 19-October 09
- Gender:Female
- Interests:Responsible pet ownership. Advocating and assisting pet adoption, rescue and transport to new homes.
- Location:NY, near Syracuse.
Posted 20 November 2009 - 07:48 AM
Nancy
I really am an ISTJ (Myers-Briggs Personality Type).
Responsible pet owners spay and neuter.
Please Google prosopagnosia, a neurological deficit also called facial amnesia or faceblind. Yup, I have it.
Poor me--gluten free.
I'll have a grilled cheese sandwich--hold the bread.
I really am an ISTJ (Myers-Briggs Personality Type).
Responsible pet owners spay and neuter.
Please Google prosopagnosia, a neurological deficit also called facial amnesia or faceblind. Yup, I have it.
Poor me--gluten free.
I'll have a grilled cheese sandwich--hold the bread.
MultiQuote
#2
ravenwoodglass
- Advanced Community Member
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- Group: Advanced Members
- Posts: 6,968
- Joined: 17-April 04
- Gender:Female
- Interests:Gardening, photograpy, painting and drawing, textile arts, glass art, reading
- Location:Upstate NY
Posted 20 November 2009 - 08:12 AM
Imanistj, on Nov 20 2009, 07:48 AM, said:
I anyone here a member of a support group in Auburn or Syracuse?
If you find one in Auburn please let me know as I am close to there. I do know there is a support group in Rochester but I don't know about Syracuse. You could try calling their hospital and asking, it seems like they would know if there is one.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
#3
Imanistj
- Advanced Community Member
-
- Group: Advanced Members
- Posts: 117
- Joined: 19-October 09
- Gender:Female
- Interests:Responsible pet ownership. Advocating and assisting pet adoption, rescue and transport to new homes.
- Location:NY, near Syracuse.
Posted 20 November 2009 - 09:35 AM
I read recently that the Auburn group for celiac children is adding an adult group. I'll try to find the info.
Nancy
I really am an ISTJ (Myers-Briggs Personality Type).
Responsible pet owners spay and neuter.
Please Google prosopagnosia, a neurological deficit also called facial amnesia or faceblind. Yup, I have it.
Poor me--gluten free.
I'll have a grilled cheese sandwich--hold the bread.
I really am an ISTJ (Myers-Briggs Personality Type).
Responsible pet owners spay and neuter.
Please Google prosopagnosia, a neurological deficit also called facial amnesia or faceblind. Yup, I have it.
Poor me--gluten free.
I'll have a grilled cheese sandwich--hold the bread.
#4
jerseyangel
- My other Sam
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- Group: Advanced Members
- Posts: 16,792
- Joined: 29-September 05
- Gender:Female
- Location:Texas
Posted 20 November 2009 - 09:40 AM
Did you try here:
http://www.celiac.co...ters/Page2.html
I found this on the list, maybe she could point you in the right direction:
Syracuse - Support Group
Contact: Ruth Wyman
Central New York Celiac Support Group
263 Roxbury Road
Syracuse, NY 13206
Tel: (315) 463-4616
E-mail: jwyman1@twcny.rr.com.
http://www.celiac.co...ters/Page2.html
I found this on the list, maybe she could point you in the right direction:
Syracuse - Support Group
Contact: Ruth Wyman
Central New York Celiac Support Group
263 Roxbury Road
Syracuse, NY 13206
Tel: (315) 463-4616
E-mail: jwyman1@twcny.rr.com.
Patti
Celiac
Microscopic Colitis
HLA DQ2
"Life is what happens while you're busy making other plans"
Celiac
Microscopic Colitis
HLA DQ2
"Life is what happens while you're busy making other plans"
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