[Nanjee]

Hi everyone .......
Along with severe gluten intolerance,numerous other food allergies, fibromyalgia,
I also have Hashi's hypothyroidism.

I know that thyroid disease is seen often with gluten intolerance.

I am wondering how many have this condition, and what thyroid replacement med has helped you the most ??

I have done a lot of research about Armour replacement - natural instead of synthetic. I tried the Armour, and seemed to tolerate it well - except it gave me loose stools. After 4-1/2 years of having diarrhea - this was NOT a welcome side effect !!!

Wondering if anyone else has had luck with Armour - or if Synthroid has been a better med for you ??

Also - once the hypothyroid is treated, and TSH levels come down, did you feel even better ??? I feel so much better stomach and intestine wise, but the energy level is in the ditch .... and I am hoping that with the proper thyroid treatment, recovery would be better. Even the muscular pain I think could become better with optimal thyroid treatment.

Thanks in advance for your responses .... be wishes for good health

Hugs,
Nancy

[jenvan]

Nancy-
I don't have too much to offer--but my mother has Hashimoto's. She has been taking a low does of synthroid for years with little issues. At this point, she hasn't tried any other meds for it. I don't believe she had many other symptoms besides the growth on the thyroid.. Good luck!

[Nanjee]

Thanks, Jen, for you reply.

Hoping there are some others out there who have been diagnosed with Hashi's ??

Thanks a bunch,
Nancy

[Nanjee]

Thank you Stacie

I will keep on trying till I feel the best I can !!!

Best health wishses to you ....
Nancy

[Sovern]

Hi! I have Grave's disease (thyroid disorder) and celiac. I was diagnosed with hyperthyroid in 11/04. I was treated with radioactive iodine and then in 02/05 was severely hypothyroid - (my TSH was 202 - I didn't know that was possible!) Now I'm on Synthroid 0.125 mcg and my thyroid levels are more normal but I'm having problems with weight gain (despite diet and exercise) and hair loss. I too am having muscle pain - unofficially diagnosed as fibromyalgia but I believe it's thyroid related. It's such a struggle to find a doctor who can correlate all my problems and find a solution. I have gone to several and I'm in the process of finding new ones. It sure is frustrating!

Diagnosed with Celiac 10/03

[sspitzer5]

Hi, I was diagnosed with Hashimoto's about 7 years ago, long before I found out about the Celiac's. I tried taking Synthroid, Armour, and one that is now off the market. I had problems with Synthroid. Armour wasn't bad, but the ratio of t4 to t3 isn't exactly what a human body needs (although great for pigs - that's where it comes from) and sometimes people end up taking a pure t4 replacement along with it (like Synthroid or Levoxyl). I am now taking pure t4 and t3 that is compounded at a special pharmacy. This seems to work fairly well for me. If you get it compounded, you don't have to worry so much about fillers. I think the fillers were the problem with me and Synthroid.

It's very hard for me to tell which symptoms are thyroid and which are Celiac (except the digestive stuff). My energy level is still sometimes pretty low, but I have only been gluten free for a few months. Hopefully I'll see some improvement soon.

Susan

[Nanjee]

Thanks to both of you

Yes it is sometimes difficult to know what right now is gluten related, Fibro related, or hypo related ........ arrgghhhhhh

The exhaustion is frustrating - because I was used to being such a high energy person, even with FM.

I have a lot of strange dizzines - not vertigo - just a strange dizziness. I haven't figured out yet if it is my body still mending from the gluten damage, or if it is from the thyroid. It gets to be trouble some enough that I need to lie down for a while. Frustrating.

Time will tell - and it's nice to be able to chat with people who understand.

Thanks for taking time to read my post ...... I look forward to getting to know you all better

Have a good holiday weekend,
Nancy

[tammy]

Hi,

I have hypothyroid, gluten sensitive, casein sensitive, adrenal issues and hormones issues. I manage my thyroid with Levoxyl and Compounded Sustained Release Cytomel. I seem to feel better when my TSH is around 1.5 but it is a balancing act at best. Yes, you should feel much better once your levels are in a normal range.

Are you getting adequate amounts of calcium, magnesium and Vitamin D?
I too find it more than a challenge to know what is the right treatment when managing multiple issues.


I would love to hear from you.



T.

[Nanjee]

Nice to meet you Tammy .... isn't this all just fun !!!!

I think that I have adrenal issues as well - now to find the appropriate tests for me. So many docs think of only Addison's disease - but there are so many out there with just plain hypoadrenia - and it is miserable.

I have researched this quite a bit - and until adrenal issues are treated - it can be very hard to treat the thyroid. Thyroid meds are one of the biggest stressors to sluggish adrenals.

I am taking calcium supps, and get mag injections twice a week. Off days from the injections I take a low dose mag glycinate.

My Vit D level had been down to 6 - so yes I am supplementing with Vit D3 as well.

This hasn't been easy - I am doing somewhat better - but this has really been a long road.

Are you addressing your adrenals ?? A lot of people are helped tremendously with very low doses of Cortef - the natural form of hydrocortisone.

And yes -I'm sure my female hormones are just as screwed up as the rest of me !!! I use natural progesterone cream at bedtime, and sometimes during the day. It helps my mood, and is also helpful with sleep issues.

It is nice to meet you. Hoping to get to know you better. Maybe we can figure out all of this hormone mess together ?????

Thanks for your reply ..... have a great holiday weekend.
Nancy

[sspitzer5]

Yeah, these issues are really a mess. In addition to the thyroid and Celiac's, I also think I have low adrenals and messed up female hormones. I'm not sure how to go about sorting it all out, but like you ... it's been a LONG road. Sometimes I feel fine, but frequently I am tired and have extremely persistent headaches. My life would be much better if I could get rid of the headaches. I'm only 38, but I feel like I'm in my 70's at times.

It's nice to know that I'm not alone in all this, as it certainly feels that way sometimes.

Susan

[Nanjee]

Thanks for your responses

Susan .... I have the constant, unrelenting headaches too. Magnesium injections have helped tremendously, so that the severity is not as bad - but the frequency has not changed.

I don't get the migraines as frequently since the start of the Mag IM's - before I was having "auras" almost daily, and it was hell !!

I know that many people who are hypo can have a lot of problem with headaches, and severe muscle pain ...... ???

Barb - thanks for your input on Vit D/Mag/Calcium. I have done a lot of research on Vit D deficiency - it is scarey what this deficiency has been linked to.

I am taking "baby steps" right now - adding and uping the minerals and vitamins as my body adjusts to them. I am not like a "normal" person - who can just take a handful of vitamins/minerals and go about their day !!!

I may try adding some malic acid - hoping my stomach likes it

Thanks again - there is a wealth of info here - and sharing like this is so valuable.

Good health wishes ......
Nancy

[samsmom13]

Oh I am so glad I found this thread!! I too was diagnosed with Graves Disease in May of '04, had RAI in July of '04 and after my thyroid finally "died" in Oct '04, I have gained 50 lbs despite of weight watchers, etc.! My T4 and T3 are in normal range but my TSH has gone from 151 in April (under .075 L-thyroxine) then to 21 in May (under .2 Synthroid) then I was diagnosed with Celiac (IgG was 42, but did not have the biposy) have been Gluten-free since mid May and my re-check with the Endo in June showed my TSH rising again (to 28) so the Endo put me on Levoxyl .225 and Cytomel 5mcg about 2 weeks ago. I dont feel any different on these drugs, I just feel horrible and my weight wont budge downwards. My emotions have been all over the map due to my lowering self-esteem and the fact that I so want to have another baby, so after braking out in tears in front of my Endo, he put me on Lexapro 20mg.

My question is, I just got a copy of the "Gluten-Free Bible" and it says in there that Levoxyl contains gluten. But on the glutenfreedrugs.com website and the Drug Smartlist says it is gluten-free....does anyone know for sure?

Thanks!
Heidi

[KaitiUSA]

Heidi-
The "Gluten Free Bible" is filled with numerous errors with what is and is not gluten free. I would not listen to everything in that book. This site is a much better resource.
I also have Graves Disease