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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About fullofhope

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  1. My son is allergic to the chlorine in regular diapers. We did cloth, but finally found out what it was and use the Tender Care or Seventh Generation disposable diapers, which are unbleached.
  2. Skip Biopsy?

    I also have a 2 yr old who at 18 mo had signs of celiac. I actually opted not to do any test on him except the diet. Within a few weeks he was like a whole dif child- no more hyperactivity, no more 3 hr tantrums, his rashes went away, his stools became more normal, he bacame less obsessive about doors being shut and schedules staying the same. Like night and day. Also within 4 mo he was growing again. That was the only test I needed. Nowhere in his records does it say celiac, but that's okay with me. The doc still tracks his height and wt and all that, and I figure that's all he needs to do. About the dairy- I"d do gluten free first, it's not as easy as it sounds! and see what changes, then eliminate dairy. We'd already been avoiding dairy, so our next step after gluten was soy, and that has made things even better. Best wishes!
  3. I'd start with one (gluten) and then move to dairy. All at once could be too stressful for everyone. Alas I have not found a yogurt that isn't soy or dairy, and the same with cheese- maybe someone else has some source I don't know about, though! We use bob's red mill mixes (pancake, brownie, and choc. chip cookie), envirokids cereal, pacific rice milk, enjoy life cookies, cereal bars, etc, and food for life millet and rice breads (frozen- they toast up yummy but you'll need a dedicated gluten-free toaster so you don't cross contaminate), and tinkyada rice pasta or quinoa (keenwah) pasta. I use rice flour or millet flour for things like chicken nuggets (although Ian's red banner makes good chicken nuggets and fish sticks). I'm just beginning to realize how many mainstream brands are gluten free (I'm finally calling companies and looking at websites) and our options are opening before us. The AiA gluten and dairy free cookbook and special diets for special kids are wonderful cookbooks, and wheat free worry free or raising our celiac kids are both great books for info and recipes too. We told our son that it was gluten, dairy, and soy causing him to feel icky and itchy, but look at all the yummy things we can still eat. I carry his favorites with me, esp when we are eating out or at the grocery store or a friend's house where there are likely to be things he will look longingly at, so he can have his gluten-free treats too. Usually what happens is everyone gets jealous of HIM because his treats look so good. Best wishes, janel
  4. Speaking as a special ed teacher, my son would have been diagnosed with add or sensory integration disfunction had he continued to eat gluten! I myself have sensory issues that have gotten better since going gluten free, but elliot really takes the cake prior to going gluten free. Janel
  5. My son loses all ability to tell that he's peeing when glutened, and his potty abilities go out the window. I felt so bad when I realized that it was the gluten, as I had been chalking it up to lack of motivation or defiance. He can't feel when he has to pee and doesn't even realize when he's peeing. Weirdest thing. Also happens if he gets dairy.
  6. We were recently given a tank of tropical fish, and my son loves them. Problem is, their food has gluten, which means their water has gluten, and El keeps getting glutened despite careful handwashings after every feeding, tank cleaning, etc. Does a gluten-free fish food exsist? Thanks, janel
  7. With my own 2 yr old, I know that whatever we use will somehow end up in his mouth- like the shampoo/soap when he blows bubbles in the bath, the furnature polish/cleaning agents when he touches the table while he's eating, the lotion/sunscreen/chapstick when he touches his arms, then puts his finger in his mouth, etc. 2 yr olds for the most part are not yet past the oral stage, even though we think they should be. For adults I don't think it's as important as it is for a child, since they are touching everything and are not likely to be aware of then touching their mouths. Another thing to think about would be if anyone in your house eats gluten- is he touching the floor where there might be crumbs? Is he touching a chair or table that somebody touched after eating gluten? We had a lot of trouble crop up over that. We had to get meticulous about wiping down chairs as well as tables, and banning his toys from the kitchen floor while confining my hubby and his gluten to the kitchen (crumbs on the couch, living room floor....). Sounds impossible and paranoid but made all the difference and is now just a part of life. best wishes, janel
  8. the AiA Gluten and Dairy Free Cookbook is a great one! Special Diets for Special Kids is good, too. Both have very useful, yummy recipes and esp the first one I listed has a great list of substitutes to use. I've found good info from mamas dealing with the gluten free/casein free diet for kids with autism, which also works for my silly yak with a dairy allergy.
  9. Hi! We've got a sensitive little one, too- We use cetaphyl (or the generic from walmart) as a soap- it's not actually soap and is kept in a separate location in the store, I think by the make-up. But we don't use it in the bath, just as a hand soap - el (2) bathes in plain water. Sometimes I add lavender oil, just a drop or two. Johnson and johnson baby shampoo on his hair once a week, and if he's really dirty I add a drop of the shampoo to the bath as it's filling. Anything else and he breaks out. Every night we cover him, head to toe, in jergens lotion. We used to use burt's bees apricot oil.... smelled so yummy, but the jergens works better for him, I think. El takes Yummy Bears vitamins. There are more that are gluten-free, but most of them contain other stuff he's allergic to. best wishes! janel
  10. I am a special ed teacher for kids with behavioral/learning issues, so I'm well-versed on all those labels that get put on kids. I had a few parents here and there refuse services for their child, instead opting to try dietary changes, and I have to admit I was skeptical. Then along came my own son. When he gets gluten, he could easily be diagnosed with ODD, ADHD, OCD, severe anxiety, and Aspergers, all in one, without exaggeration. He's a whole different child. I'm glad you are doing your research and asking questions! As far as foods, there are applegate farms hotdogs, frozen breads by food for life that toast up nicely (we love the millet variety), cereals like rice crunchems and gorilla munch, bob's red mill chocolate brownie mix and pancake mix, Ian's fish sticks and chicken nuggets (red banner), and I coat our chicken in rice or millet flour with spices after dipping in rice milk (we are egg and milk allergic). I believe Annie's makes a gluten-free mac n cheese. Fruit leather makes a great snack. Anyway, best wishes! janel
  11. I heard on public radio about a year ago that babies shouldn't eat gluten until after a year to decrease the chances of triggering celiac.
  12. 2-5 days. We nearly went insane trying to keep gluten (my hubby is not gluten-free) from elliot at that age, he got into everything and crumbs were dropped.... Then no regular bread or crumb-producing things came into our house anymore. My husband gets wheat tortillas for roll-up sandwhiches and he still has spreadables that aren't gluten-free, but we have not had a problem after we got rid of crumbs. We also taught elliot not to pick things up off the floor or eat them, and washed his hands quite often, which helped when we were at other people's homes. Then came teaching him to keep his food on a plate/napkin and not eating off the table or chair- again, helpful when we are out. Best wishes to you, I hope your little one is feeling better soon! janel
  13. My son is now past the babyfood stage (he's 2) but I seem to remember finding some rice/veg babyfood, and of course fruits, that didn't have gluten... it was at a health food store, sorry I don't remember the brand. It's an on-going frustration, I feel for you! Elliot wasn't big on babyfood anyway, though, so he ate mainly just steamed veggies, peeled fruits, rice (there's a kind of rice, can't think of the name, that is so sticky when made that you can form it into balls so it's finger food), rice pasta with veggie baby food on it as a sauce, beans, lentils, corn tortillas, and, our favorite most convenient snack- puffed corn or rice cereal by arrowhead mills. Nothing added, just the puffed corn/rice. Oh, and always rice cakes. For dinners he just ate what I ate (I'm gluten-free too). Sorry I can't help you in the prepared babyfood area, though, and soups- there is a brand at a health food store that I know is gluten-free, but again can't think of the name. Maybe someone else can be a little more helpful than me! janel
  14. Wow, thanks everyone! I know I need to get over my own issues so I don't pass them on to him. He does love fruit leather, and those keep for a loooong time and don't crumble. He also has some favorite cereals that he doesn't get often.... and I bought some brownie mix to make chocolate cookies out of- if I add flax and millet flour, it makes them not so rich- and I can freeze them to pull out at will. I think my pity party is largely in part to my in-laws comments, and they were just here on a visit. They think that I am depriving him of his childhood with all the food restrictions, and openly say so. My husband is the first to stand up to them when they go on about how it's such a major lifestyle upheaval, so far from the norm. This time he told them that if elliot needed medicine, they'd be the first to say he should have it, so why were they wanting to deny him his health when all it entailed was a dietary change? Maybe I need to have a heart to heart with mil. Might or might not help. I'll focus on my own outlook and reactions. Thanks!!!!
  15. I think that as his stools get closer to normal, he will learn to control them. Speaking from personal experience, D from celiac was the strangest thing. It wasn't like normal D, in that I (as an adult!) really honestly didn't realize it had happened til after the fact. Very very bizarre and demoralizing, esp to a child who feels pressure to train. Beyond that, in a child who has always had that kind of D, it may take a while for his body and brain to realize what it feels like to have to go- perhaps he's become desensitized. With time, he will train. We are dealing with similar issues with my son. He's been gluten-free for 9 mo, but had D from a number of other allergies and we are just now starting to sort them out- and I find myself frustrated, thinking "surely you knew you had to go!" but he didn't.