wondering if anyone here has ulcerative colitis in addition to celiac. I was diagnosed with celiac first. the UC has been diagnosed for about 1 year. I've never been 100% in remission, but I've been doing okay with Asacol. Now it looks like prednisone will be in my very immediate future
I got some moisterizer for Christmas that contains colloidal oatmeal. Would you use it? I know it may have a small amount of gluten due to cross contamination, but I'm not sure whether that will matter as long as I wash my hands after applying it (so as not to get any in my food.)
Swimmy, I react to most foods, and I also have OAS to nearly all fruits and veggies. I also tested positive on allergy tests to *all* pollens I was tested for. The only fruit/veggie that I can eat raw is cranberries. Seriously! I also notice that when I develop an allergy I tend also to develop allergies to cross reactive foods. I wonder if your potato and eggplant allergies are related to your latex allergy . . . I'm pretty sure my potato, eggplant, and latex allergies are related.
The only grain I can eat is rice, but I haven't tried Lame Advertisement or teff yet. I'm officially allergic to corn and react to all the grains you mentioned. So I eat rice pasta/brown rice. In the morning I grind rice up in a coffee grinder (can't have coffee either) and then cook it like porridge. Or if I'm short on time, I just put some succanat/ maple syrup on brown rice and pour milk over it. thank goodness I can have dairy.
It is time consuming, but I made these really good sweet potato pancakes with ground rice/rice flour/maple syrup/succanat/cinnamon/ginger/cloves/nutmeg/salt/butter or safflower oil (I've made them dairy free before for my sister) and mashed sweet potatoes.
Veggies I find are more flavourful (I'm also limited in the spices department) if I stir fry them in olive oil. (Sweet potato fries are delicious and easy with just coarsely ground sea salt, cinnamon, olive oil.)
When you cook your fruits and veggies do you cook them very well i.e. until they are a bit mushy?? I find that I can have a variety of fruits and veggies if they are cooked really, really well. Some I can't---like carrots and celery are iffy. They make my mouth sting even cooked. Veggies which cross react with latex are out as are all legumes. I also seem to react to some leafy veggies....I do eat kale and chard, but I try not to overdo it because sometimes they bother me.
I know that allergists generally consider allergies in the same light as GI docs are supposed to consider celiac...i.e. either you are allergic or not. Once I'm diagnosed with a certain allergy, I'm not supposed to eat it because reactions can be unpredictable, and I'm prone to having anaphylactic reactions to some things. But I find that I go through a period of time when things bother me a little bit . . . and then when I continue to disregard this fact out of desperation, my reactions get worse over time. Once I'm majorly sensitized to something, there isn't any going back. For example---I've reacted to citrus on and off throughout my life. I started to react to citrus again, but I think I was in denial about it because of how limited my diet is. Now I majorly react to citrus, and I test positive for citrus allergy.
So I do think that if you are predisposed to develop an allergy to a certain thing and you are developing a lot of allergies that you can sensitize yourself to something by eating it every single day. Also, I suspect that using skin care products with potentially allergenic substances has caused some issues for me (I'm not sure about this, but that is how I explain my sesame allergy--I tested majorly allergic after using a sesame based skin cream for a period of time.) Stress, I believe, can be a factor.
But I've also heard that if you take a food out of your diet for a prolonged time and then reintroduce it that you are more likely to develop an allergy to it than if you are eating it regularly. (For this reason kids who outgrow a peanut allergy are now advised to try to eat peanuts once in awhile.)
ohsotired--it does sound like you have a ragweed allergy...maybe your reaction to bananas is related!
geokozmo-- a latex allergy = an adverse reaction to the proteins in latex. it is unrelated to celiac although people with celiac do have a higher risk of developing autoimmune diseases including allergies.
Folks with oral allergy syndrome usually have a localized reaction---tingling throat/lips/mouth. Some people have to carry an epipen for OAS, though.
If raw banana upsets your stomach, I'd wonder if it was a sensitivity/allergy rather than OAS per se. (Of course, I may be wrong on this.) Are you allergic to pollen? I know that folks with a ragweed allergy sometimes develop an OAS type reaction to bananas because the proteins are similar in structure--essentially, the body recognizes banana as 'ragweed' and launches a reaction. But yeah, you might want to talk to your doctor about it, especially since banana is one of those foods that people seem to react to more severely.
Great to hear from an expert on kitchen cleaning LOL! I was right! I was right! (my sister always brings out the kid in me )
Sounds like we have similar kitchen issues with family. That's good that your wife doesn't cook with flour anymore, though....while I have my own pans, my family does cook with flour sometimes. They cook with flour a lot less because of me, but for special occasions (i.e. Christmas, having people over), the flour comes out. I'd rather not have flour around, but they are quite careful with it.
Am rushing here, so might have missed some of the questions in this thread.
But a latex allergy would not be related to celiac (celiac disease is not an IgE mediated allergy). If wheat proteins are similar in structure to latex proteins, then a wheat allergy could be related to latex allergy. (I've never heard that about wheat, though.)
Balloons (except for latex free balloons) are made from natural rubber latex and can be a major problem for the latex allergic!!
A word of advice to everyone who reacts to latex--it is probably a good idea to go get tested. There are two types of reactions--contact dermatitis and an allergy (the latter is more worrisome). I thought I was reacting to latex, but it took me awhile to get around to asking my allergist about it. He pointed out that "mild" reactions could become more severe when latex comes in contact with mucous membranes or with internal organs (surgery).
I also developed allergies to a number of foods which crossreact with latex at the same time that I developed a latex allergy---tomatoes, potatoes, bananas (but I've always been allergic to bananas), eggplant, pineapple, even tapioca. I don't eat kiwi or papaya just in case. Not everyone with a latex allergy will develop allergies to other things. I think most people who react to other foods react to some of them--not usually to so many.
Unfortunately, reducing contact with latex won't make the other allergies go away. Reactions do vary from time to time, but I haven't read anything suggesting that removing latex will help the other allergies any. (Kind of like how avoiding peanuts won't make peanut allergy go away.)
Those of you with oral allergy syndrome---most folks with OAS are allergic to the raw fruit or veggie but can eat them cooked because that particular protein isn't heat stable (unlike, say, the allergenic proteins in nuts, dairy, etc.) There are exceptions to this rule.
My sister and I have been arguing about gluten crumbs in the kitchen. Usually, I just mention that there are gluten crumbs and I say I'll clean them up this time but I ask her to be more aware in the future. That wasn't working, so today we had a frank discussion, and everything that we weren't saying about the situation came out in the open.
I maintain that she should clean up all kitchen surfaces after cooking/eating. She holds that since I have my very own gluten free counter I should be okay with crumbs here and there elsewhere in the kitchen...I have my space that she doesn't use. So I should not be using her space. Other people have to use the kitchen too.
The thing is that I do occasionally use other parts of the kitchen. i.e. "my" counter is not near the sink, and it is nice to have a place to stack dishes if there are too many to put in the sink. Also, I sometimes use up all the available space on "my" counter and put a few things temporarily on another one. As for the kitchen table, she says I shouldn't sit in her spot if it has crumbs. But when people read the paper, etc., crumbs spread. And they get on the floor, too, and I don't want to be tracking gluten everywhere. Aside from health/safety issues, I just don't like having gluten everywhere. It would be kind of like having...oh, say, salmonella bacteria spread on counters which I don't use. I just feel like the space isn't "clean."
I have just been cleaning the kitchen before using it, which I guess is a solution, but I do resent having to clean up after other people all of the time. I'm really upset because my sister isn't taking my concerns seriously. She even admitted that she thought I was being "excessive." I don't think she really believes that gluten crumbs should be that big of a deal as long as I'm not ingesting them.
Even aside from celiac and allergy issues, I consider cleaning kitchen surfaces to be a basic part of keeping things clean.
Mostly, I'm just really hurt. I don't feel very confident about explaining my food issues to others because even my own family thinks I'm neurotic about this. My sister and I actually get along really well, and I don't want this problem to come between us. Because to me it is a really, really big deal.
I've avoided plane travel for various reasons.....but plane travel is no longer going to be avoidable for me! I bring all my food with me (multiple food allergies + celiac) so liquid restrictions are something I've thought about.
You can bring a limited amount of liquid on board--but it has to be in a plastic ziploc bag ready for inspection
Ice and gel packs probably aren't a good idea---I need to keep my food refrigerated, and so I plan to take a cooler bag for my carry on and to use dry ice (if I can find any...don't know where to get it) or frozen oranges/ frozen bags of cranberries in place of ice/gel packs.
I'm definitely going to bring a doctor's note....
I don't mind watching other people eating stuff I can't eat...but I'm in a different situation because I can't eat in restaurants period. Sometimes I check with the restaurant to see if I can bring my own food and other times I eat in advance and order a drink. I usually carry food with me in case I get stuck somewhere.
But I do think it was thoughtless for them to go to a place where you can't eat when there was another option...but sometimes people who don't have celiac have a difficult time knowing what is safe and what isn't. They might not have realized that there was somewhere close by where you could eat. (Still, they might have asked.)
I don't think there is anything wrong with saying that you are hungry and can't eat anything at that place but can eat across the street.