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my apologies for hijacking this thread, but there is a health food store near pittsburgh - sunny bridge natural foods - no I don't work for them but I do love them... they have just about everything in a nice and convenient gluten-free aisle AND they give a 10% discount on gluten-free items to celiacs! however, I did make my second trip to trader joe's tonight and after spending forever the first time, this time was a relative breeze just grabbing the gluten-free stuff as I walked up and down the aisles (rereading labels, of course:)
so the point of this post for those outside of the 'burgh was break out your yellow pages and check out your local health food stores, you never know what you might find, or what you might be able to convince them to carry for you at a discount! (There is a little store in Georgetown, TX that has a punchcard discount, and one in Dover, NH that does it on special promo days only).
there is a short bit about this here: http://patients.uptodate.com/topic.asp?file=gen_pedi/18821
just thought I'd put up a reference to the idea that babies can have trouble with their oral motor skills and develop food/texture aversions if they don't learn to experience/manipulate food in their mouths in a certain time frame. it might be helpful to ask your pediatrician some more about this...
... and edited this to say that this is a really tough situation, so best wishes for you and your family with whatever you choose!
I've had good luck at the old library... they don't have a "gluten-free menu" but they know what I'm talking about when I say no wheat/flour. The hot bacon dressing on the spinach salad is excellent (w/o croutons, of course). I usually get the porkchop with a baked potato, but have had good luck with the steak (just have them check on the seasonings for you) and one time they even made me a flour-free version of the chicken with pesto sauce (they were really slow that night).
We've had such good luck there we really haven't tried other places... except beef and barrel once when I had a plain salad (no dressing) with plain beef on top (safe, but boring).
I've heard there is a smokey bones all the way in buffalo (and even a place that does gluten-free pizzas on wednesdays only, called the pizza plant - I've never been, but if you find yourself there it might be worth a try), and you can check the outback website... but I think the closest one is about 45 min away.
(oh, and tops sells tinkyada and a few other gluten-free things near the end of an aisle up in the front of the store, just ask someone to point you in the right direction!)
I did 2 of their events pre-dx... from what I remember, there is nothing provided that you'd be able to eat, BUT there were some people that had their families bring them food into the camp for dinner every night. You could probably pack breakfast stuff in your bags... lunch might be tricky on the walk during the day, but you could either bring a pack with you or have someone cheering you along the way bring some food too.
There are some ppl who question their operating costs for these events, but having done them, I think that they have been some of the most inspiring events of my life, so I think it would be worth figuring out the food issue.
Does anyone know what grist's policy is about cross-contamination? Especially where it looks like that company brews a lot of gluteny beers? It makes me a little nervous to drink a beer that is made in the same place as one with lots of barley, unless they're cleaning very well, and even then....
btw, if bards ever does start making beer again, it was really, really good! (well, the non-exploding batches, anyway)
Other good mail order brands are breads by anna www.glutenevolution.com, cause you're special (good biscuits and yellow cake) and 123 gluten free (yummy pancakes and brownies). Shipping isn't too bad and it'll save you a trip to austin, cause whole foods is pretty expensive and a lot of their bakery stuff is loaded with milk and soy, which can often cause issues for celiacs, too. If you're near georgetown, definately check out the herbery, they have a great selection of kinnikinnik breads, which are, in my opinion, a lot better than energ. I had a hard time shopping at TX walmarts, personally, but some HEB's even have gluten-free sections, and most have a good selection of minimally processed meats and such, like I know that there is at least one brand of chicken there (can't remember the name, sorry) that is ok due to having no extra broth or anything. Look on here for lists of the mainstream brands that you can buy... there may be more out there to eat than you think... just hang in there because there is a pretty big learning curve on this, but once you get the hang of it you'll be ok!
oh, also central market (also in austin, but part of HEB) does gluten-free grocery store tours a couple of times a month... you might want to find out if they have any plans to start doing this in their regular stores, it might give you some good new ideas.
How about Kauai? Long flight from Boston but worth it if you can stay at least a week. I really recommend renting a condo or cottage and not risking cross contamination or gluten at every meal... plus, celiac or not, who wants to eat restaurant food 3 meals a day for a week anyway, ick. So my advice it to check out vrbo.com (vacation rental by owner)... it can save you a lot of $ and I've had 2 good experiences, one on Maui and one on Kauai, with them. The last one we stayed at had a bbq grill, which was great b/c my hubby did a lot of the "cooking" and you just can't beat fresh fish on the grill. yummy.
The featherlight is nice for some things, especially things that you would like to be on the lighter side, I use it for pie crust but not tea breads, for example, but if you want to stay away from corn, any of the corn-free mixes that she lists in her book will work with any of the recipes, with slightly different results, of course. Really the best way to do it is experiment with different mixes in different recipes and see what you and your family prefer... I know my mom, bro and I all use different flours for different things tailored to how we like them.
When you're checking out at the herbery, just ask the person at the counter for a punch-card... they make a mark in it every time you spend $ there, I think it is one punch for every $25 (or maybe it was $15, I can't remember...) and when the card is full, you get a certain amount of $ off your next purchase (again, 15 or 25, just ask them and they'll explain it to you). They also have loads of supplements and stuff like that.
The people at the Austin meeting I went to were really nice, a mix of how and when people were diagnosed, too.
Try out the gluten-free cooking class at Central Market, it was cool, like a live cooking show, and you get to eat some of everything they make!
Also, products I've found in AZ that I never saw in TX but are worth mail ordering (in my opinion) manna by anna bread, if you don't want to have to go to wildwood every week to buy more , 123 gluten free brownies, and cause you're special biscuits and yellow cake. yummy.
Have a chicken salad for me, please!!! I miss wildwood, I used to go there at least once a week when we lived in Georgetown (and about once a month when we were in Killeen.)
Aren't they great there (the herbery)? They really need some better advertising, though, as they're a bit of a secret. Make sure you get one of their punch cards for frequent shoppers, $ off gluten-free food is always a nice thing! They will special order for you too if you have a request. Also, I really recommend a trip to Wild Wood for anyone in the area, I love their hamburger buns and Gluten-free Casein-free ding dongs... oh, I miss TX!!!
his food is authority (we found it at petsmart) brand large breed puppy food. it does list natural flavors that I haven't checked on but it is the dog eating it, not me, and at least the first ingredient isn't wheat!!! not sure if any of the rest of their brands are gluten-free, but I'll be looking for a gluten-free adult food in a couple of months, so when I find one I'll post that.
I'd heard of giving dogs people food treats, goodness knows that I always have fruits and veggies around. I'll have to talk to my husband about it b/c he was pretty serious about not giving the dog any people food... but I think as long as the stuff we give him is good for him he'll be ok with it. hmm.
We are housetraining our new puppy and he loves to get treats for going outside... but I haven't been able to find ANY that are gluten-free and my hands are so raw from washing my hands every time I have to take him out and give him a treat (and he goes out a lot and I just know that every once in a while I'm forgetting to wash my hands and then eating something and, well, its a pretty silly reason to get sick).
So has anyone found any gluten-free dog treats that would be safe for me to handle? His food is gluten-free, which is great, but treats have been hard to find... I'll even mail order them if I have to!!