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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity

High-Tech Mom

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  1. Lynne, So sorry to just read this thread - I've been overwhelmed getting my family gluten-free, and myself a low-fat diet (thanks to you!!), and haven't had a chance to catch up on the new posts. I don't know how you all keep up! My husband had latent TB, and probably got exposed while traveling abroad. The previous posts are true for our experience too. He took antibiotics for 9 months, had his liver function regularly tested, and took the necessary vitamin supplements. The skin TB test, now that he has been exposed, will always return positive, so he will have to get chest x-rays for the rest of his life to determine if he is ever exposed again and it develops into active TB. Not cool, but that's the way it is. Thankfully for your daughter, if it was a true exposure to TB, it was caught in the latent stage and easily treatable. My husband was in denial for a long time because he did the research, and apparently there are false positives on the skin TB test. I'm glad, however, for the family's sake, that he went on the 9-month antibiotic regimen. Take care.
  2. Thanks so much for your response. That is consistant with what I have read and heard. It is interesting that your child has this symptom and is diabetic, though.
  3. Have newly diagnosed celiac in the family. I am considering purchasing a subscription and/or license for computer software listing gluten-free food products and drugs. Has anyone tried these? How helpful are the lists? How up-to-date are the lists? Which packages/subscriptions do you recommend? Thanks!
  4. Does anyone have a child that was diagnosed with celiac, and then diagnosed with diabetes type I? If so, what symptoms did your child exhibit before the diagnosis of diabetes? My child has been recently diagnosed with celiac. One of my child's symptoms seems to suggest blood sugar problems. If my child does not eat properly the night before, (which isn't uncommon for a picky eater prior to celiac diagnosis), my child will be nauseated and vomit the following morning. Since getting on the gluten-free diet, my child's picky eating habbits have improved. Could this type of symptom still be an indication of potential diabetes?
  5. From my experience, the Prometheus CeliaGene test is not accurate. My child was tested about 2 years ago at age 3, and the test came back negative. We re-tested my child at age 5 just last month through Quest (and tested the rest of the family), and my child's genetic blood test came back positive with DQ8. My husband's also came back with DQ8, so it is apparent that Prometheus made the mistake initially. After watching my child suffer celiac symptoms for years, enduring the battery of blood tests, and getting inconclusive (and even erroneous) results, my child didn't receive positive results for his celiac disease until the disease severely progressed. Had we found out years ago, at the time that we originally suspected celiac, our child could have been saved a couple of years of damage. We are now waiting for our EnteroLab results. Dr. Fine is pioneering research and rethinking the way celiac disease is approached. He's approach makes sense, and is in the best interest of the patient.
  6. Urgent - Need Advice Regarding Pregnancy Symptoms

    Yes, this is another great idea and I'm going to see if I can get a referral from the local support group. Maybe they'll have someone with an emphasis on celiac. Thanks again!
  7. Want To Buy A Bread Machine

    Thanks! Yes, with our newly diagnosed 5-year old, I desperately need a bread machine that can bake a decent loaf. I tried to do it with our current bread machine, and it came out awful. I'm ready to get the Zoji. I don't know what I'd do without and the forums!!!
  8. At the time that the blood test was taken, I was not gluten-free, I didn't want to bombard everyone with all of the details, but... My 3-year old and myself have very similar results: - Only AGA IgG is elevated - Negative AGA IgA, TTG IgA, TTG IgG - Genetic Markers: DQ5 and DQ7 Our 5-year old is our "celiac" and has positive everything (AGA IgA, AGA IgG, TTG IgA, TTG IgG), and marker DQ8. My husband has negative everything (AGA IgA, AGA IgG, TTG IgA, TTG IgG) and marker DQ8. Maybe my husband is a latent celiac case? It's clear that our 5-year old should be (and now is) gluten-free. What's not clear is what to make of my 3-year old's and my test results. My 3-year old has loose stools, which was written off as "toddler diarrhea" by a GI two years ago, and hasn't improved. A biopsy at this age would probably come back inconclusive. We're waiting on EnteroLab results in hopes that more data will help us pinpoint the problem. Other than the loose, inconsitant stools, my 3-year old is healthy. I was curious about the "other" conditions related to elevated AGA IgG in case we were barking up the wrong tree investigating celiac for myself and 3-year old.
  9. Want To Buy A Bread Machine

    Does anyone have any other sources for good gluten-free bread receipes that would come out nice in the Zoj? It sounds like this is a must-have for those of us with gluten-free family members. Also, how do you think the cost-per-loaf compares: - Buying a gluten-free loaf (like KinnickKinnick sandwich bread) - Making a loaf in a bread machine with a mix - Making a loaf in a bread machine from scratch
  10. Need insight on my test results. The only elevated blood test was the Antigliadin Antibody (IGG). The others, including Antigliadin Antibody (IGA) and TTG Antibody (IGG and IGA) are negative, and the Immunoglobuin A was normal. Genetic test reports DQ5 and DQ7. From what I've read, the Antigliadin Antibody (IGG) is one of the least specific/sensitive tests for celiac, and can indicate other conditions. Does anyone know what "other" conditions this result might indicate?
  11. Hello Liz, Which of your daughter's blood tests came back positive? I agree with nini's feedback - positive results for gluten intolerance are positive, negatives can still be positive. Sound like your daughter has a severe enough gluten intolerance that it is showing up on the blood tests. I don't think that she can get an "official" diagnosis of celiac disease without a biopsy, but does have a diagnosis (at this point) of gluten intolerance (someone correct me if I'm wrong). Either way, sounds like damage is occurring internally, and getting your daughter gluten-free will help improve her health and reduce her risk of getting other celiac-related diseases such as diabetes, osteoperosis, etc. We are struggling ourselves as to how to proceed with our kids. My oldest child, now 5, has enough positive results with blood tests, genetic tests and symptoms that we don't feel a biopsy is necessary to diagnose celiac disease. Currently, the rest of the family is getting tested - blood tests, genetic tests and even EnteroLab tests. Properly diagnosing our 3 year old is more difficult. We don't want to uncecessarily put our 3-year old on the gluten-free diet, but we also don't want to just sit and wait for our child to have severe intestinal damage before taking action. Read Dr. Fine's essay, he is pioneering research in this area and explains the pitfalls of the current methods of testing and diagnosis of celiac disease: Early Diagnosis Of Gluten Sensitivity: Before the Villi are Gone I don't know what to tell you regarding whether to proceed with the biopsy or not. The biopsy is hit-or-miss. Your daughter could have an inconclusive biopsy - what will you do then? On the other hand, a biopsy might confirm celiac disease for you, and possibly uncover other co-existing conditions. Good luck to you!
  12. The blood tests aren't reliable. My child, who had classic celiac symptoms, was tested around 3 and everything came back inconclusive, even the hailed Promethius genetics test came back negative. We re-tested at 5 and the blood tests indicated a severe reaction to gluten. Even the genetics blood test was re-ordered with a different lab and that came out positive. From our experience, testing in the toddler years is inaccurate, and possibly testing at any age inaccurate. Celiac disease/gluten intolerance has to progress to significant damage before it can be detected with blood tests. We will be using EnteroLab for further testing. It's less invasive and claims to detect the disease earlier than the blood tests. Good luck.
  13. Urgent - Need Advice Regarding Pregnancy Symptoms

    Lynne, a huge THANK YOU, THANK YOU, THANK YOU!!!! You were absoutely RIGHT - it's my gallbladder!!!! I had an ultrasound today and there was no question about the source of the problem since there were visible gallstones. I have been suffering with these gallbladder attacks for 6 years through 3 pregnancies, not knowing the cause. Two different doctors blew me off whenever I brought up the symptoms. I cannot express to you how much of a relief it is to finally know the cause of these attacks. Lynne, your post diagnosed the problem and gave me the confidence to pursue it with another doctor. Thank you all for taking the time to respond to my post. Your thoughts and wishes are greatly appreciated!
  14. Urgent - Need Advice Regarding Pregnancy Symptoms

    Thank you all for your feedback! I really appreciate your responses. Lynn, the back pain IS coming from the right side of my back, and the pain radiates around to the front. It is difficult to take a full breath when the attacks occur, so I find myself taking shorter, shallower breaths. I'm not sure if I'm carrying low or high, but I have not had any c-sections. I'm not sure about the position of the baby either, since my last ultrasound was over a month ago. Lynn and GFBetsy, you might be on to something with the gallbladder. I've scheduled an appointment with my family doctor to run some tests. I'll post again when I get the results back. Hannahsue, I share your concerns too, espcially with the placenta problems that arise when celiac is involved. We have just recently discovered that celiac disease is in the family, and are still getting tested and waiting for results. It's possible that I may not have celiac disease, and the baby might have celiac disease, which still may contribute to the pre-maturely aging placenta. When I delivered my first son (who is celiac), my placenta was in bad shape. I wish I knew what kind of condition it is in now! I wish I could another doctor, but unfortunately, it's very difficult to find any ob/gyn to take on a pregnant woman this far along - it's too risky for them.
  15. I am ording tests for my 3 year old also. Here's the response from Entero Lab: "Children can be tested conclusively after the age of 18 months, and it may be closer to 12 months. Your 3-year-old is certainly old enough to be tested via the stool tests now." We're getting the whole family tested, since we just confirmed that my oldest child has celiac (highly elevated antibodies and positive genetic blood tests) and my husband has one of the genetic markers also. We have decided to use the EnteroLab "gluten sensitivity stool panel complete" to benchmark our children's progress before and after they go on the gluten-free diet (we will retest in 1 to 2 years). We have opted not to have our child biopsied.