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About Gemini

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  1. I have a plan when I retire to finally have another dog. If he/she could sniff out gluten, what a bonus that would be! Thank you for the link!
  2. As long as they don't have gluten sniffing cats, I am good. I am allergic to cats but not dogs. And yes.......I have a cat! Isn't that always the way?
  3. Seeing as the flu shot will stimulate your immune system, it stands to reason that it could make symptoms flare. I have never had a flu shot because I am low risk for catching it. Now, I am nervous to try having one in case the above happens. I am not against vaccines, either, but I have never had the flu and just do not want a flare of symptoms......which can happen at any stage of recovery. I have been under stress for awhile after a few deaths in my family and sure enough, for the first time in 11 years, I have been having some subtle symptoms again and I have not been glutened at all. The docs tell me this is completely normal for those with AI diseases. Trying to keep the immune system calm and happy can be challenging at times!
  4. There's a gluten sniffing dog????????????? I WANT ONE! That way, as a service dog, I could take the pup into a restaurant and not be kicked out. I have always marveled how in Europe, you see some dogs in cafes, sitting besides their owners while they eat. But having a dog to sniff out gluten is just so cool!
  5. So, if this supposed damage cannot be seen under a microscope, how does Dr. Fine state with any amount of credibility that the damage is there? He also needs to distinguish between NCGI and actual Celiac Disease because there is a huge difference. Regardless of what he claims, it is a well established fact that only in Celiac Disease is there villi damage. I am in no way dismissing the very severe symptoms of some with NCGI or its existence as an illness but people without Celiac do not usually have anemia, malabsorption and the resultant vitamin/mineral deficiencies. Their villi do not curl up and die. If there were damage done to a person with NCGI, then if on biopsy, the doctor hits a sweet spot, they would be able to see the damage under microscopic exam. I am also in no way defending the mainstream medical establishment because they certainly nearly killed me with their ignorance. I know no doctor was looking for Celiac 30 years ago when I was sick but I presented with classic Celiac and they still got it wrong. So, I do hear you on that point but in today's world, we do understand Celiac much better and what Dr. Ford comes out with does not match known science. The problem we have is finding a sure fire way of diagnosing people before their guts are totally trashed. I am sure testing will become much better and more sensitive for people in the early stages of the disease. I have a very open mind on medical issues and my doctor is a functional medicine MD. They have helped me more than most. But if Dr. Fine wants to be taken seriously, he needs to publish his findings for review by others in the medical field. He should be working with the current medical establishment to enlighten them if he has discovered things they haven't. But when he makes statements like the one I quoted, its hard to take him seriously. BTW....I encourage anyone who becomes ill from eating gluten to be tested for Celiac and if that cannot be proved, then by all means go strictly gluten-free. I know there are people who fall through the cracks but when someone states they need to be gluten-free for health reasons, I believe them! You don't have to have a diagnosis to want to improve your health with a dietary change. I am glad your husband has become well on the diet! That really is the bottom line......
  6. I think this might be a good idea for those who do not trip antibody blood testing. However, I noticed that Dr. Hill made the remark: "as opposed to relying on dietary review, symptoms, and TTG testing." You do not use tTg as a test for dietary compliance. We all know you have to do a repeat DGP, in those who were diagnosed using blood antibody testing. DGP is pretty damn sensitive so why they keep omitting this is beyond me. Personally, I would rather have a blood draw than do stool testing but I do agree this would be great for a certain subset of Celiac patients.
  7. None of Dr. Fine's work is recognized by any valid medical institution, with good reason. You cannot test for food intolerance's through stool testing. The only valid testing they do is gene testing for Celiac because that's well established testing and everyone's doing it. Trying to test for Celiac or NCGI through Enterolab is a complete waste of money. Also, having an IgA deficiency does not mean your immune system is not functioning properly. It just means you do not make enough of the IgA antibody so Celiac testing for that class of antibodies cannot be used. That is why they use an IgG panel also. Good grief, people! Start reading books on Celiac written by valid medical professionals, not internet based doctors who spout ridiculous ideas about cross reactivity and stool testing that isn't recognized by anyone. Maybe in future testing will become easier and much more accurate than it is now but stool testing is not a valid test protocol for anything related to Celiac. It can show malabsorption, which is an indicator of a GI problem, but that's about it.
  8. Many, many Celiac's have no problem with either whey or soy so people should not cut out either unless they have a known problem with them. I have Hashi's thyroid disease, on top of Celiac, and eat soy with no problems. It is a good source of protein for those who want to limit their consumption of meat.
  9. Here is an article, albeit short, about Myocarditis and Celiac disease. I have read before about a connection between the two and A-Fib is another one that can happen with undiagnosed Celiac. From one over-thinker to another......its the inflammation thing, along with maybe some genetic components to it. I can't remember how long you have been gluten-free but it can take awhile for things to settle down, especially if your thyroid is wonky also. I have Celiac and Hashi's so feel your pain, even though I have not had any cardiac involvement. Some doctors really suck. I have a lifetime of bad with them so do not go that often, only when I have to and am leery about seeing any new ones. I am so done with that attitude of theirs. I think you need to find someone who has knowledge of Celiac and it's related conditions and who actually listens to the patient. That might be harder than finding a needle in a haystack but I wish you luck!
  10. I have 2 insurance policies, one with my husband's company and one through mine. I also stretch out the more major work into the next year, so I can make the most use of my benefits. So, a dental implant for me takes about a year for me to complete. I have the post put in at the end of one year and the tooth made about 6 months later. Honestly, the insurance company probably hates me because I max out my benefits every year. You do what ya gotta do! I still have to pay for some of the work out of pocket but about 75% gets covered. If you pay cash for procedures then they usually charge a lower price. Haggle with the dentist over price. They like getting cash.
  11. Hi Jen.......first the high total IgA. I am not a doctor but am going by my experience. I failed all but one of the tests by huge numbers and never went for the endoscopy. The one that was normal, funny enough, was the tTg IgG but my AGA IgG was very high. Celiac testing can be really bizarre. I am an adult and was really sick at time of diagnosis so skipped the endoscopy because I presented with classic Celiac and had massive gut issues so could not do the test. The doctor told me I did not need one because my blood testing was so high and I was so thin, they wanted me on the diet immediately. They don't like that scenario for kids so expect push back. My total IgA, at diagnosis, was over 700, when the normal range was much lower. After I healed and had repeat antibody testing done yearly, my total IgA started to drop and ended up within the normal limits for the testing. I think what happens is that when you go long enough eating gluten, it raises everything. Your total IgA would increase because your body is pumping out these antibodies in response to eating gluten. So, even though the total IgA test is not diagnostic for Celiac, they were elevated due to gluten consumption. When I went gluten-free, the numbers normalized over time, just like the other antibody testing. My EMA was very positive also so with that, it is about 99% certain it is Celiac. As for the whole family having it? I work with a man from Ireland, the land of the celiac. He is one of 6 children. His mother and all 5 of his siblings have it and he and his father did not. So, it is possible that a whole family could have it. It may seem less likely here in the States because doctors do NOT understand how prevalent it is and often, do not test first degree relatives as much as they do in other countries like Ireland. If they did, you would see more families of celiac here in the States. It is genetic, after all. Hope this helps!
  12. We do not have to worry about what animals eat in their diet as this will not cause a Celiac reaction.
  13. I think with cancer, the thing to be worried about is "monoclonal". With polyclonal gammopathy, that is more of an indication of infection or inflammation. I know this because I had elevated protein levels in my blood at Celiac diagnosis, which really makes sense because with Celiac, you are reacting to proteins, which in turn cause all sorts of inflammation. Everything resolved after I was gluten-free for about 3 years. Celiac can cause all sorts of weird blood results until you go strictly gluten-free and let your body heal. Lyme may do the same but I agree with the others that the doctor should never have said go gluten-free without investigating further. The only way the gluten-free diet could help with Lyme is if the patient already has Celiac.
  14. I have found that eating out successfully while being strictly gluten free is highly dependent on where you live. Some areas of the country (US) are much more gluten-free friendly than others but a few simple rules should help you to find a safe place to eat when not at home. I ma very sensitive also and have the same problem you do when I am glutened.....I'm a puker! I think it is actually better because it gets rid of the problem foods right away and then the aftermath isn't so bad to deal with. I have been gluten-free for 11 years so it is much easier to recover for me, at this point. I only eat at higher end restaurants, which have chefs with actual culinary school training. They are trained in cc and many now include courses on gluten-free cooking. There are a couple of places where I love to eat that are not high end but the family members have celiac so the restaurants get it right every time. I also do not eat out that much at's a treat when I do. You must become comfortable with talking to the waitstaff because that is crucial. I find that being very polite makes a huge difference and then I always write an e-mail to management when they get it right. I have gotten some pretty nice responses in return. With practice, it will become second nature. I think because you are going through a very hard time right now and are probably upset, eating out might not be a good idea. It can affect how your gut does. I am sorry you are having such a hard time but this will all pass and then it might become easier to deal with. Being stressed is really bad for us but you already know that. Check out this website: It is a listing, by state, of restaurants that have been vetted by other Celiac's so you might find a safer selection of places to eat at.....when you are feeling better. I know how you feel. I hate throwing up but, over time, I have gotten really good at not being glutened so it rarely happens now. You will get there! I hope you feel better soon.
  15. Hi icelandgirl! This tester was developed by MIT graduates and I work for MIT so I could not resist. Some of the developers have food allergy issues themselves so this is why they focused on doing this. They didn't actually say Celiac but I am guessing it is. I wrote to them and thanked them for doing this and if it proves to be a success, think how that could change travel for us? This is the response I got back from them: Such smart, young people.......