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Gemini

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About Gemini

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  1. I have 2 insurance policies, one with my husband's company and one through mine. I also stretch out the more major work into the next year, so I can make the most use of my benefits. So, a dental implant for me takes about a year for me to complete. I have the post put in at the end of one year and the tooth made about 6 months later. Honestly, the insurance company probably hates me because I max out my benefits every year. You do what ya gotta do! I still have to pay for some of the work out of pocket but about 75% gets covered. If you pay cash for procedures then they usually charge a lower price. Haggle with the dentist over price. They like getting cash.
  2. Hi Jen.......first the high total IgA. I am not a doctor but am going by my experience. I failed all but one of the tests by huge numbers and never went for the endoscopy. The one that was normal, funny enough, was the tTg IgG but my AGA IgG was very high. Celiac testing can be really bizarre. I am an adult and was really sick at time of diagnosis so skipped the endoscopy because I presented with classic Celiac and had massive gut issues so could not do the test. The doctor told me I did not need one because my blood testing was so high and I was so thin, they wanted me on the diet immediately. They don't like that scenario for kids so expect push back. My total IgA, at diagnosis, was over 700, when the normal range was much lower. After I healed and had repeat antibody testing done yearly, my total IgA started to drop and ended up within the normal limits for the testing. I think what happens is that when you go long enough eating gluten, it raises everything. Your total IgA would increase because your body is pumping out these antibodies in response to eating gluten. So, even though the total IgA test is not diagnostic for Celiac, they were elevated due to gluten consumption. When I went gluten-free, the numbers normalized over time, just like the other antibody testing. My EMA was very positive also so with that, it is about 99% certain it is Celiac. As for the whole family having it? I work with a man from Ireland, the land of the celiac. He is one of 6 children. His mother and all 5 of his siblings have it and he and his father did not. So, it is possible that a whole family could have it. It may seem less likely here in the States because doctors do NOT understand how prevalent it is and often, do not test first degree relatives as much as they do in other countries like Ireland. If they did, you would see more families of celiac here in the States. It is genetic, after all. Hope this helps!
  3. We do not have to worry about what animals eat in their diet as this will not cause a Celiac reaction.
  4. I think with cancer, the thing to be worried about is "monoclonal". With polyclonal gammopathy, that is more of an indication of infection or inflammation. I know this because I had elevated protein levels in my blood at Celiac diagnosis, which really makes sense because with Celiac, you are reacting to proteins, which in turn cause all sorts of inflammation. Everything resolved after I was gluten-free for about 3 years. Celiac can cause all sorts of weird blood results until you go strictly gluten-free and let your body heal. Lyme may do the same but I agree with the others that the doctor should never have said go gluten-free without investigating further. The only way the gluten-free diet could help with Lyme is if the patient already has Celiac.
  5. I have found that eating out successfully while being strictly gluten free is highly dependent on where you live. Some areas of the country (US) are much more gluten-free friendly than others but a few simple rules should help you to find a safe place to eat when not at home. I ma very sensitive also and have the same problem you do when I am glutened.....I'm a puker! I think it is actually better because it gets rid of the problem foods right away and then the aftermath isn't so bad to deal with. I have been gluten-free for 11 years so it is much easier to recover for me, at this point. I only eat at higher end restaurants, which have chefs with actual culinary school training. They are trained in cc and many now include courses on gluten-free cooking. There are a couple of places where I love to eat that are not high end but the family members have celiac so the restaurants get it right every time. I also do not eat out that much at all.....it's a treat when I do. You must become comfortable with talking to the waitstaff because that is crucial. I find that being very polite makes a huge difference and then I always write an e-mail to management when they get it right. I have gotten some pretty nice responses in return. With practice, it will become second nature. I think because you are going through a very hard time right now and are probably upset, eating out might not be a good idea. It can affect how your gut does. I am sorry you are having such a hard time but this will all pass and then it might become easier to deal with. Being stressed is really bad for us but you already know that. Check out this website: http://findmeglutenfree.com It is a listing, by state, of restaurants that have been vetted by other Celiac's so you might find a safer selection of places to eat at.....when you are feeling better. I know how you feel. I hate throwing up but, over time, I have gotten really good at not being glutened so it rarely happens now. You will get there! I hope you feel better soon.
  6. Hi icelandgirl! This tester was developed by MIT graduates and I work for MIT so I could not resist. Some of the developers have food allergy issues themselves so this is why they focused on doing this. They didn't actually say Celiac but I am guessing it is. I wrote to them and thanked them for doing this and if it proves to be a success, think how that could change travel for us? This is the response I got back from them: Such smart, young people.......
  7. I don't eat cold cereal at all because I just don't like cold cereals but my husband eats them because I won't allow gluten in the house. I have one of those NIMA food testers on order and when I get the thing, I am going to test those damn Cheerios. NIMA tests to 20ppm's so I'll let you all know what happens! As you can see, I am looking for things to test.....
  8. Where do you get these articles? There is some very wrong info in here. 1) All oats should be avoided if you have Celiac Disease. Certified gluten-free oats are very safe for some with Celiac Disease and I think that has been firmly established in Celiac world. 3) Here we go again with the distilled vinegar issue. It is safe and the only vinegar that isn't is malt vinegar or any vinegar that may have added flavorings after distillation that could contain gluten, of which I have never seen before in 11 1/2 years. But read the label just in case. 5) The baking powder issue is just another one where you have to read those labels. I have to admit, I have never, ever seen baking powder with flour mixed in for smoothness but they may exist. 7) Corn starch. I think it ridiculous that they say you should stay away from it. This is a basic cooking item for Celiacs so again, read the label because if there is wheat added, it has to be labeled. Never, ever have gotten sick from corn starch. 10) Sausages have gluten in the casings? On what planet? There are plenty of sausages out there which are gluten free and marked accordingly on the package....the frozen ones like Jones and Applegate Farms. I have had fresh sausage that did not contain breadcrumbs (which some do) and were perfectly fine and I never got sick. I am really sensitive so if there were gluten in sausage casings, I would have paid dearly for eating them. You have to ask/investigate where you buy them but they can be found. I would be more worried about what went into the sausage or them being cc'd by stuffing them before you think there is gluten in all sausages from the casings. No wonder people are confused.......
  9. There is just so much wrong with this article, it's ANNOYING. I think if you have Celiac Disease and are symptomatic, then it is not hard to stick to the diet long term. I don't know about you but having diarrhea and vomiting just isn't on my list of fun things to do, not to mention the severe anxiety and myriad of other symptoms that rear their ugly heads when I am even cc'd. I have been gluten-free for 11 1/2 years and, while it is not convenient at times, hard it is not. I realize if you are a person that likes to eat out often, that is going to have to change. You can still eat out safely but not every week or even every month. The biggest hurdle I have seen from reading posts on this forum is that many people do not take the time to read the correct books and take the time to LEARN the diet correctly. I see this in the other Celiac's in my family. It's like Type 1 diabetes....they have classes when you are diagnosed that you have to go to and I really think that needs to happen when people are diagnosed with Celiac. It is as serious of a disease as diabetes is so the medical profession and insurance people need to get a clue. As for weight loss, anyone can do it. I know that is going to piss some people off but weight loss is hard and you have to stick to a plan and that is what makes people lose their mojo and quit. With a good food plan and exercise, I have seen people lose more weight than I weigh myself so I know it can be done. You have to find the motivation to keep you on track, and that part might be harder than the actual diet and exercise. There is no miracle diet out there and it is work but most things of value take hard work to get there. The last crank from me..........why is it that if you don't eat a lot of carbs for fiber, they think you are doomed? Has anyone ever heard of fruits and veggies for fiber? That is where I get most of my fiber from and constipation is never a problem. I do eat some whole grain carbs, of course, but way more fruits and veggies. Eat a salad and see what happens......
  10. Hi Matijas! Usually when someone with a gluten issue goes strictly gluten free, their GI problems improve right away, as far as severity goes. There are some who have ongoing issues for awhile but with trapped gas, that might be something which dissipates more quickly.....no pun intended there! I know when I was an undiagnosed Celiac, I had the same problem. My gut would blow up with gas and it was very painful. In the US and hopefully in your country, there are over the counter medications that are sold in pharmacies which will break up the gas in your gut. https://www.gas-x.com/ These meds work very well so maybe you could see if you can use these in the short term until you see the specialist? I am not sure if this is gluten free but if you are going to be tested for Celiac, then that won't matter as you need to be consuming gluten for testing. I used these a lot before diagnosis and they really helped with the pain. They work fairly quickly after consuming also......which is great!
  11. I did not re-test my antibodies for a full year after diagnosis but I think your daughter should be checked again in 6 months. If she does have celiac, and I really am sure she does regardless of what this doc seems to think, they should decrease in 6 months. If she is fast healer, they could potentially be in the normal range but it varies from person to person. She did show damage in her small intestine but at 4 years of age, damage would not have progressed to the point where this doctor could be convinced it is Celiac. They set the bar way too high. Kind of silly to require you to damage her insides further to prove it to the AMA. I think she should go gluten-free, as you have stated, and re-scope her in 6 months to see how the original damage looks then. If it is gone, then maybe that would convince them. The 4 out 5 criteria is not done in kids because, I am convinced, of liability issues. They just do not want to get sued if by some small chance, they diagnosed someone who did not have Celiac. I think the odds of that are pretty slim, when you think about it. Even with a misdiagnosis, eating gluten free will never harm anyone. But as children are minors and cannot legally make medical decisions on their own like adults can, that rule is out for them.
  12. No, I did not state anything about exact conditions and lesser exposure. The study focused on animal feed, which did contain gluten, and how some people had reactions from exposure in confined spaces while feeding animals. Comparing that study to exposure from a wheat field is apples and oranges. I have yet to find any reputable literature on whether living near wheat fields at harvest time is a danger to someone with Celiac Disease. It would be helpful if there was some information on this. You did get support on this forum and we tried to tell you that you really need to see a medical doctor if you are that sick. That really is your only option right now. This coming from someone who hates doctors but even I know when I need to see one. You have a baby to take care of so need to be well. If you feel that you do have a gluten problem and do not want to be tested for it, then you might want to try the Fasano diet of only whole foods. You cannot go wrong with eating that healthy but you have to be strict about it.....no cheating. It is a pain in the butt to have to always cook your own food but that is something you have to get used to if you want to eat strictly gluten free. I do not eat out that much and cook EVERYTHING pretty much from scratch and I work full time. It is a royal pain and time consuming but we have no other choice, do we? Please do not stress about walking past a bakery or pub because you cannot be glutened from that. What might be happening is....and this happens to me so I am not criticizing you in any way........psychosomatic reaction. When I am in the room with food that is very gluteny and has strong smells, it makes me nauseous and I get a pounder of a headache. Regular pizza smell makes me absolutely gak. When I go out into the fresh air, symptoms go away within a few minutes. I look at it as my body protecting me from food that will make me very sick if ingested. I am not embarrassed about it either because it's real. That is what may be happening to you. I hope you stay on the forum because there are very smart people on here who want to help. It is good to work with a nutritionist to help you develop a healthy diet but if you continue to be this sick, you really need to see a doctor to figure out if there is another underlying condition you are missing. If you do have Celiac, then there are other autoimmune diseases that occur with frequency with Celiac. I know......I have 4 autoimmune diseases in total and 1 of them gives me more grief than the Celiac does. I hope you feel better soon...I really do! I understand what it feels like to be that sick.
  13. After reading these few posts, I really think it all depends on where you live and the doctors attitude about the whole process. I think a biopsy is not always needed. It depends on the circumstances and symptoms, etc. Sometimes it is harder to piece together a proper diagnosis while other times it's so obvious. Many people now do not even have GI issues, which used to be the hallmark of Celiac. This is why it is so difficult for some. It would be nice if there was a very definitive test that was either positive or negative, with 100% accuracy!
  14. Not to beat a dead horse here but I looked at the linked article you provided and it talked about exposure to animal feed in enclosed spaces, not driving or walking near wheat fields on a windy day. Unless you are a farm hand, feeding cattle or horses with gluten containing feed in an enclosed, non-well ventilated area, it's not an issue. The Fasano diet is a short term diet for those who are slow to heal. Some people do have problems with grains and they found that putting them on a whole foods diet only, many of them went on to heal and could then consume processed gluten free food items like bread. Lots of people do this in the beginning for faster healing. But it only works for people with Celiac Disease and you aren't even sure that is what the problem is. I posted this so anyone new to the diet reading these things will not become confused and think you cannot walk past a wheat field or a bakery. Inhaling visible wheat flour in a bakery is not a good idea for anyone with Celiac Disease and will make you sick/react and you won't be able to work in one but walking past bread or any gluten containing food is not cause for concern.
  15. Have you seen a doctor to figure out what is wrong? If you don't know for certain you have Celiac, then you don't know what really is wrong. The situations you listed for being glutened should not cause any reaction, no matter how sensitive you think you may be. You need to ingest it to cause a reaction and cannot be glutened from walking past a bakery or pub. I have no doubt you are as sick as you say you feel but your symptoms of being too weak, tired and depressed are serious symptoms and should be addressed by a doctor. They can be symptoms of many things and you may be missing something else. You say you are caring for an infant....is this your child? Is it possible you may have postpartum depression? I think the fact you say you are constantly ill means you really need to see a doctor to find out what is wrong. If you actually do have Celiac and are eating gluten free, you should not be constantly sick. I wish you well but please see a doctor......you have a young baby to care for.