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Looking for answers

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    Orange County, California

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  1. Sign the petition!
  2. http://www.change.org/petitions/dr-drew-show-on-headline-news-we-would-like-a-public-apology-to-the-celiac-disease-community?utm_campaign=share_button_action_box&utm_medium=facebook&utm_source=share_petition&utm_term=656190
  3. Yes, if I eat something I'm intolerant to, the pain can get really bad. For a long time I was eating avocado, almonds and coconut and all three through trial and error cause this. It was like looking for a needle in a haystack and took me years to figure out it was yet other intolerances. I also have a hiatal hernia, which also I'm sure leads to increase inflammation in that area. Hope you are able to figure it out soon!
  4. I would definitely get a night guard. I bought mine from Amazon (they have them at CVS too) for $25. It's called Sleep Right and I got it because it's BPA free. It takes a few nights to get used to...pretty aweful at first, but now I can't sleep without one. For a long while, I refused to listen to the dentist and now I have several cracked molars and already have two crowns and will need a third. That can get really expensive and painful.
  5. A coworker of mine made everyone food-related gifts, but she gave me movie tickets instead. It does makes you feel good to know someone is thinking of you and your health.
  6. Hi, I'm terribly sorry to hear about your struggle. I was especially interested in your post because my brother has been dealing with the same thing since June of this year, and still has no answers. MRI comes up clean, but he does have disc issues and has arthritis of the spine. I hope someone else can shed some light on this for your sake and my brother's. All the doctors keep telling him is that "it's all in your head...take these anti-anxiety drugs."
  7. I had the same exact thing happen to me. I got a firm diagnosis, then I later looked at my bloodwork and started scratching my head. Luckily I have a friend who is a doctor and I had him look at the results, and he confirmed that based on the results, I shouldn't have received the diagnosis. I was so frustrated because I had alread stopped eating gluten by the time I discovered the error, and never want to go back eating it. I'll never have a clear diagnosis now.
  8. Have you heard of Sjogren's syndrome? Check it out and see if that matches up at all. My friend had the swelling your mention and the pain, and was later diagnosed with it.
  9. I'm so sorry. My heart goes out to you. Celiac does not discriminate. Your story reads so similar to what my brother is going through, and to this date, he has not been tested for Celiac disease or any other autoimmune disorder, even though they run in the family. Doctors just tell him he nuts. There are so many informative people on the board that will offer you great advice. Please keep us posted after your tests.
  10. No, I avoid medications at all costs. Gluten isn't worth it, and I can't even imagine it ever being appetizing again (I
  11. http://www.recallinsider.com/prolab-nutrition-inc-prolab-recalls-some-of-its-protein-items-that-may-contain-undeclared-milk-wheat-and-gluten-allergens/
  12. I use the brown rice tortillas from Trader Joes, cut one in half, spread on hummus and then top with deli meat from Whole Foods (I don't like the pre-packaged stuff with nitrates). I also like to throw on brocolli sprouts. Sometime when I can tolerate it, I will add avocado as well.
  13. That's interesting, thank you. Also interesting that my blood test showed major allergy to egg whites, but that didn't appear with the skin test. I guess they must not be accurate.
  14. You can try Chia seeds too...if you soak them for a few minutes they create a gooey gel that makes a decent substitute!
  15. I eat there often: Anaheim, Long Beach and San Diego...no problems. I also eat at Pei Wei, which is their take-out chain...so good. I eat there at least once a week in Newport Beach or Seal Beacg and never have had a problem. Other locations of Pei Wei are not as trust worthy, I have found.