Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

  • Announcements

    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


Advanced Members
  • Content count

  • Joined

  • Last visited

Community Reputation

0 Neutral

About nikki182

  • Rank
    New Community Member
  • Birthday 02/18/1985

Contact Methods

  • AIM looniespoonie
  • Website URL http://

Profile Information

  • Location Ithaca Ny
  1. Happy birthday!

  2. I've also been told all the drinks are ok except the frapps with chips. I seem to be fine after having their drinks, but I also always wonder about cross contamination issues. I haven't been doing the diet for all that long, so I might not be as sensitive to traces of gluten. Personally, I feel fine about supporting Starbucks because of their use of recycled materials and their willingness to start using alternative energy sources. If I lived in Europe, I'd probably be disgusted with them, but as an American I am happy to see that they are at least making an effort, which is more than can be said for most companies. Starbucks has plenty of room for improvement but I think they are heading in the right direction. BTW how come they don't offer real mugs to customers who aren't taking their drinks to go? Whenever I say I am staying they give me real plates and silverware for the food (well in my pre-gluten-free days when I ate their food at least...)
  3. The Starbucks double shots that come in the can are made by Pepsi, who says they are gluten free. The caramel coloring comes from corn. I haven't had one lately, but I drink the bottled frappucinos all the time. I would die if I had to give up my Starbucks! BTW has anyone had problems with any Starbucks drinks made in the stores? Wondering if there's anything to steer clear of...
  4. Gluten Free Food Delivery

    Hmm.. not sure. They say they'll deliver to my zip and I'm in kind of a rural area. If I decide to give it a try I'll let you know how it is. It might be fun to order a meal every now and then...
  5. Someone sent me this to look at: On the first page it says: Every meal and snack has been lab-tested and approved to contain less than 20 gluten parts per million. What is that about? Is that a legit thing? I'm new, but I was thinking things are either gluten free or they're not. I don't know if I would ever have them deliver food to me or not, but has anyone used a service like this?
  6. Hmm.. deep fried mac and cheese looks exactly like something I would want to eat And that leads me to why I'm thankful to be a celiac... No matter how much I want to put junk like that in my body, it's not an option... I don't think I would want to go to dinner with people who would be ordering Fridays new appetizers though. That would be rough...
  7. I'm from Ithaca, specifically. Anyone close to there? I contacted the support group that was listed for Ithaca/ Cornell but I was sad to learn there's no active members anymore. It would be nice to know other gluten free people around here! Plus, being newly diagnosed, I'm scared to go to the restaurants around here. I was hoping someone would tell me some celiac friendly ones.
  8. Sue, I think you should give the gluten free diet a try. It's more conclusive than any of the tests. I put myself on the diet recently and I feel so much better. My doctors wouldn't even consider celiac as an option, and I ended up calling prometheus and ordering the blood tests myself. Even with immense improvement on the diet my doctors still won't admit that there is even a possibility of celiac. I've had doctors tell me I have chronic fatigue syndrome, fybromyalgia, lupus, and others that I can't do anything about. Another doctor is convinced I have MS despite normal MRI because I had so much numbness and tingling in my arms and legs. This has completely gone away now that I am on the gluten free diet BTW. They call it coincidence. I call it celiac. I spent years being depressed, thinking I would never feel better because I was listening to what my doctors told me. I'm your age, and I spent alot of time thinking how unfair it was that I couldn't get out of bed and all my friends were enjoying the best years of their lives. All I know is that I feel better than I have in years by being on the gluten-free diet, and that's good enough for me. If you try the diet you might feel a lot better. Your symptoms sound like they could easily be gluten related. And hey, what do you have to lose? If I've learned anything, it's that nobody (even the doctors who get paid for it) is going to care about your health as much as you. I'd go with your gut instinct (hehe, so celiac appropriate) if you think gluten is behind some of your problems... Good luck with everything! Everyone here is really helpful (I'm pretty new to this and have had a lot of my questions answered), so you've come to the right place.
  9. "the Trigger"

    I'm part of the mono club too! I'm pretty sure that's what triggered it. That and I'm sure the stress of having to go to work and school while being sick with mono didn't help... My mom and aunt both had pregnancy as their trigger. For my mom, it was the birth of my brother, so she can't blame me! Hehe
  10. Wow, I can't believe there are people out there who would do something like that! You're not overreacting at all; what they did was downright rude. I'm sorry that you have to put up with people like that. I'd say it's also pretty irresponsible of someone to purposely spread germs in an area where little kids come in to play. Whether or not you decide to talk to your boss, I think you should confront the "friends". If you could tell them how serious it is that they purposely made you sick when you already have a compromised immune system, without being too emotional (though it will be hard since they were so rude), I think you can make them see that what they did was absolutely not funny like they think and that it was very disrespectful. What if she unknowingly had something worse than a cold and passed it on to you? BTW, I think I'm going to go get some disinfectant spray. Now I'm paranoid...
  11. I was glad to read this. I've been dealing with this the last few years. I felt so miserable and yet I actually looked fairly healthy and I had all normal bloodowork. People started treating me like I was"lazy" which I'm not, or as if I was just out looking for attention. I went from being an A student to just barely passing my classes and just struggling to get anything done in a day. I kept getting told that i just wasn't trying hard enough, and god forbid I take part in some kind of fun activity and then of course that was the reason behind everything-- I was just too busy goofing off and partying all the time. I also got fired from my research job because as I continued to get sicker with no diagnosis my boss told me I "just wasn't up to meeting the intellectual demands of the job." I don't think he was too impressed with my foggy brain. Nevermind that for years before that I did an excellent job. I started thinking that I actually was lazy, or that I just wasn't smart enough. I'm so glad to know now that there was a reason I was that way, even if its just for my own knowledge. I'm really new to all this, but I'm learning fast how un-understanding people can be. I feel for all of you! At least when others don't understand, we can vent here and draw on the support of those that do know how tough it can be.
  12. Thanks for sharing your experiences! Hopefully it will all work out. I've just been worrying about it lately because I know I'm very non confrontational. Plus it's just been irking me that when I tell friends what I have they either say something about how it's so great I have nothing serious, that I just have a little allergy or else something along the lines of how a gluten free diet is no big deal because hey, they tried south beach for a couple weeks once and it wasnt too difficult. I went out to eat with some people the other day and they kept encouraging me to break my diet for just one night so I could have some appetizers like everyone else. I know people dont know better and are just trying to be positive, but grr... And this looked like a good place to vent, hehe. Sorry bout that.
  13. Anyone have some advice on how to tactfully inform roommates and college friends about having celiac? When I left college last year I was undiagnosed, and I'm sure my friends have plenty of memories of me chugging beer and insisting that we order late night pizzas. I just figured out that I was gluten intolerant this summer and am feeling much better on the diet. I have talked a little bit about my disease with the people I will be living with, but I'm not sure they are really understanding it. They are happy that I got a diagnosis and that I'm feeling better, but they think that the whole ordeal is over now. They don't really understand how strict I have to be with the diet for the rest of my life. I know I need to talk to them about rules and stuff for the kitchen so it will be safe for me to cook there. I just don't want to sound psychotic or overbearing by telling people that they absolutely can nott touch my stuff or use my toaster, etc. I was just wondering what other people's experiences were like and if anyone had some advice. Also, a somewhat related question: If I have pots and pans that i used to cook gluten containing foods last time I was at college, do I need to replace those when I get back? Or are they safe to use after cleaning? I guess I also need to know if I can share pots and pans with roommates who aren't cooking gluten free. I got myself a seperate toaster oven to use for bread.
  14. Hi I'm new here, so please let others correct me if I'm wrong, but I read a couple scientific papers about gluten withdrawal. I guess that if you have a leaky gut and gluten is in your blood, cutting it out of your diet can cause the same symptoms someone gets when quitting drugs like heroine. Something about how in celiacs the gluten protein is not cleaved in the right place on its trip through the intestines, so it ends up with a molecular structure similar to morphine. In short, the pain gets worse for a short time before it gets better. Also, this definitely happens when you detoxify. I made my mom go on the gluten free diet with me because I'm convinced she's a celiac, and she definitely had bad headaches and joint pains for about the first week and a half of the diet. She is slowly starting to feel better now. I;m not sure how much truth is in all that, but my point is that my suggestion would be to try to stay on the gluten-free diet even if it causing you some extra pain right now. See if it improves with more time. Also, good idea to cut out dairy and soy like everyone is saying. I hope you can get your diagnosis figured out soon. It's definitely frustrating, but don't give up. =)
  15. Test Results

    You guys have answered my question; I'm not going to worry about the diagnosis. For some reason I was thinking it would be a plus to have it on my medical record, but that's a good point about insurance. I'm going to have to get my own starting next year and other than the celiac I've been really healthy all my life which will be a help for that. I'd say I'm feeling about 20x better since I started the gluten-free diet and that's good enough for me. =) pat e, I know I'm new to this but I know that even if you aren't experiencing symptoms, damage is being done to your body if you have celiac. My main symptom was fatigue and also joint pain without any swelling. I got a repeated diagnosis of depression from every doctor I saw but I knew inside that I was experiencing a physical problem. I also had really bad brain fog, and that mixed with how tired I was forced me to take a year long leave of absence from school. I didn't have any g.i. symptoms at all until pretty recently. Like everyone else is saying, it would be a good idea for you to find a new doctor. Although going gluten free can be an inconvenience I really don't think it would be worth it to risk doing lots of irreversible damage to your body by not doing the diet. Also, about your symptom of pain below the diaphram, I got that all the time and it has gone away since I started the gluten-free diet. I accidentally ate gluten one night and that was one of the first symptoms to return. Good luck with everything!