Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Chris E

Advanced Members
  • Content count

    31
  • Joined

  • Last visited

Community Reputation

0 Neutral

1 Follower

About Chris E

  • Rank
    Community Member
  • Birthday 10/14/1986

Profile Information

  • Gender
    Male
  • Location
    UK
  1. Happy birthday and may God bless you today!

  2. Hi Susie Is that Dr Barry Peatfied? I done a search and I see he does a clinic not to far away from where i live once every 3 months, although his last clinic was on 7th march so i have just missed it. What testing does he do with you? Is he a proper fully qualified doctor? Would you recommend an appointment with him? Chris
  3. Hi Susie I see your in the UK too. Have you actually found a doctor who accepts candida as a condition. I have been suffering for a few years now and recently been told i have oral thrush, but doctors can't find out why i have it. When i suggest candida overgrowth as apossible explanation they don't want to know. Thanks Chris
  4. Thank you! I do believe that that was the only celiac bloodtest i have had and doctors here in the UK are not very helpful at all really. I just don't know where to go next - i was hoping that celiac disease as going to be my problem because it would have been an explanation for all of my symptoms. I have also had a white cell scan that highlighted possible inflammation of the small intestine and also thought that could be an indicator to celiac disease, but the GI said that the scan findings were nothing serious. GRRRRRRR!!!!! I just don't know where to go now Chris
  5. Yes i had been eating wheat at the time of the blood test -I'm still yet to try the gluten free diet. I would prefer to positive diagnosis frst. So does this mkean that i have had all of the blood tests that are recommended? Sorry i'm still confused. Chris
  6. Hi All! I have been having symptoms simiar to those of celiac for over a year now and have been investigated by tow GI's who have both came to the conclusion of IBS. I know that in the UK celiac is often underlooked and that doctors often do not carry out the required blood tests. My recent letter from a GI reads: "Bloods are entirely normal and include antiendomysial/anit TtG anitibody which effectively excludes coeliac disease". My questions - should other blood tests have also been done? Anyone????? Thanks Chris
  7. Hi I gather your from the UK by your reference to the NHS? Where abouts are you from? Just wanted to say..... don't accept the diagnosis of depression. Only you know when there is something wrong with your own body. I have been unwell for over a year now and have not yet got to the bottom of my problems and depression has been suggested as an explanation. However i know that i am not depressed and will not keep giving up with my doctor. My symptoms seem to be extremely similar to those of celiac, but i do not want to try such a hard diet until an official diagnosis. I have had the blood test and it was negative. Like yourself i have also experienced Bells Palsy although this was about a year before the onset of all of my problems. Does anyone know if Bells Palsy is related to celiac in anyway? I have lost all trust i have in doctors now and some of my own family also think im mad. So annoying! keep going Chris
  8. Hi Jay! I was just wondering how your meeting went with the Neurosurgeon? Would be good to know what he said as we both seem to be experiencing similar symptoms. I have my appointment with my new Gi tomorrow so hopefully will get somewhere now. Keep us updated Chris
  9. Hi Jay, I don't know what it would show to be honest, but i still think you could be celiac. I have started with a slightly numb face and brain fog again after a while without it. We both seem to have extremely similar symptoms. I had a full MRI scan last october when i was getting leg tingling, numbess around the body and headaches all day everyday. My result was all clear and these symptoms went away after a couple of months. Last time i seen my neurologist he did suggest that if the symptoms return he would test my Cerebrospinal fluid. Don't know what such a test would highlight though. I know you also live in the UK? Do you mind me asking---- are you paying privately for your treatment?? I paid to see my neurologist and for the MRI scan i had although seeing another GI later this month on the NHS! Chris
  10. Hi Jay, I don't know what it would show to be honest, but i still think you could be celiac. I have started with a slightly numb face and brain fog again after a while without it. We both seem to have extremely similar symptoms. I had a full MRI scan last october when i was getting leg tingling, numbess around the body and headaches all day everyday. My result was all clear and these symptoms went away after a couple of months. Last time i seen my neurologist he did suggest that if the symptoms return he would test my Cerebrospinal fluid. Don't know what such a test would highlight though. I know you also live in the UK? Do you mind me asking---- are you paying privately for your treatment?? I paid to see my neurologist and for the MRI scan i had although seeing another GI later this month on the NHS! Chris
  11. I eat a lot of mash potato anyway so that can only be a good thing maybe. Though i'm not on a gluten free diet yet, still just going as 'normal' as i possibly can. I don't see a GI doc until the 29th (remember this is the UK NHS we are going with - always going to wait at least a month). I just hope this guy is better than the last guy who said that there was nothing wrong with me. Hopefully we can help each other once one of us has got somewhere with our doctors. Do you get any other symptoms other than the pain in your stomach area? How about neurological symptoms? Pins and needles in the hnds and feet? Bone and joint pain? I experience such pain and tiredness regularly..... so annoying. Chris
  12. Hi Jay, I'm from Newcastle. Thanks for that and yeah i have found Nikki-uk to be extrememly helpful to me. I'm no expert but from what i have read i would say that inflammation in the duodenum would be celiac. I think you should just keep pushing those doctors until you get an official diagnosis. I'm so fed up with them, but i'm still pushing. I'm seeing a new GI at the end of June and wil hopefully get somehere then. The most annoying thing is when you keep going back to see your GP and they come out with 'IBS, Depression, Chronic fatigue syndrome, it's all in the mind. Hav eyou experieced this with the NHS? So annoying, but i know there is something up and it seems really like celiac and so i am going to keep pushing. This board has been great for me and the fact that thee is something out there that can help explain my symptoms has prevented me from going extremely mad....... I'm only 20 and really should not be like this. Hope you get somehere soon with all of your problems. What are you main symptoms????? Chris
  13. Hi Nikki, Thank you! Like i say it is the people on here who are keeping me sane. I have lost all trust i used to have in doctors. Further questions though..... how can celiac cause pain in the rib cage area including behind the brest bone, under arm, shoulder, back etc? I know how it can cause stomach problems and that vitamin def can cause the bone pain, tingling etc? Any idea anyone? Also how does the UK gluten free prescription work? Thanks in advance Chris
  14. Hi I fullyappreciate your replies. So i still have hope that it could be celiac eh? I don't actually want to try the gluten free diet yet becasue i have an appointment next month with a new GI for a second opinion on my symtoms. Hopefully he may pick it up this time and suggest a biopsy of the small intestine, therefore it is probably worth being on gluten for another month to see, so that i don't begin to heal beforehand. Also, i don't think my family would be supportive without an official diagnosis. They think it's "all in the mind" and accuse me of looking into to much. GRRRRR!!!!! Basically, it is reading the posts on this board and the fact that a test has hinted at some inflammation of the small intestine that is keeping me from going crazy. The knowing that symptomns could be celiac even though my blood work is negative. Thank you again for your help. Would also appreciate any comments/suggestions at all from anyone. Thanks again Chris
  15. Hi all, As some of you are probably aware i have had celiac symptoms since feeling extremely fatigued nearly a year ago with my symptoms including tiredness, D (on and off), regular floting/yellowish/frothy stools, join pain, bone pain, back ache, severe brain fog (although this has cleared up now) and depression/anxiety. When this first started i lost a lot of weight, but have since put it back on and i am now rather over weight with a big appetite. When i first started to feel unwell i kept getting pain and aches behind my breast bone, armpits and chest area (im 20 year old male) These went away, but have recently returned and i went to my doctor today and she listened to my chest and felt the breast bone and said that it was nothing to worry about. Another major problem that i have experienced the whole time is a tingling burning feeling down the backs of my legs when i walk. I regularly seem to get pain in my stomach area (upper left hand side) althought the whole of my intestines seem to grumble at me often and i have extreme wind. During this time i have also had shingles which hurt like crazy and now i seem to get an ithy spot keep coming and going on my right arm (weird eh?). As for testing i've had a colonoscopy, a white cell scan and barium swallow. I have also had blood tests for celiac disease which came back negative. A certain liver enzyme test seem to come back elevated everytime they are tested although my doctor said that this can happen and is nothing to worry about ( am i right in thinking this could be celiac related? As for the white cell scan..... the GI said that it hinted at some inflammation in the small intestine and he therefore ordered a barium swallow to look at this further. Conclusion was that this showed nothing and therefore said there was nothing wrong with me...... i got the good old IBS diagnosis. Is a barium follow through sufficeint to look for possible celiac? Would inflammation of the small intestine hint at celiac? When i met with my doctor she has referred me for a second opinion with another GI, but says she does not at all think it is celiac related because the blood tests are fine (don't know what tests they have done.... i live in UK). Could i still be celiac with this negative blood work? Sorry to go on for a bit, but i now really can't take much more of feeling like this everyday. I know its not "depression/anxiety" something is causing it. What afe peoples viewpoint of my symptoms/tests? Has anybody else had a simialr expereince? Thank you Chris