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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About 2boysmama

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  1. Her best bet is to try to keep it simple with whole foods - meats, veggies, and fruits. When you try to incorporate too many of your "old" foods, it gets entirely too frustrating, I've found.
  2. My older son had that "protruberent belly" (as his allergist called it), just like your daughter (she's a cutie, BTW!). He was diagnosed through Enterolabs at 3, and at the age of 5 now has a little washboard belly. My youngest does, too (he's 2.5 and has never had glutens). I'd get her checked out, or do a gluten-free diet trial.
  3. Refractory Sprue

    Well, if I'm understanding your question correctly....the standard definition of celiac disease is villi damage. BUT, that's a little tough to depend on because it depends on the right section just happening to be biopsied, and enough damage being done to be detectable. However, that doesn't rule OUT celiac, it can rule it IN if they find that type of evidence. If your markers were that high I would assume, at the very least, your immune system reacts to gluten and to cut it out of your life. It doesn't really matter what the official term is - you know your body reacts to gluten, and whether it's called celiac, gluten sensitivity, or anything in between, the treatment is to go gluten free.
  4. A Celiac Wish.

    Of course the spray would have to be non-toxic, gluten, dairy, egg, nut, soy, corn, etc. free so as not to make anyone with other allergies sick too!
  5. Do We Have Compromised Immune Systems?

    The way I look at it, FWIW, isn't that my immune system is weakened - but rather highly sensitive. So I keep things like immunizations to a minimum because of all the garbage in them. I don't immunize my youngest, and none of us gets the flu shot. I prefer my immune system be allowed to do the job it's supposed to do - fight off illness, rather than trying to manipulate it. I believe that's what weakens it.
  6. My older son had negative bloodwork too, but tested positive through EnteroLabs, and also stopped having diarrhea, gas, bloating, stomach aches when we took him off gluten. He was also tested for food allergies, but didn't test positive for soy allergy. Soy milk gave him HORRIBLE diarrhea. According to his allergist, he "couldn't" be allergic to soy since he didn't test positive for it, yet when I took him off soy milk, he improved. You know gluten makes your child sick, regardless of what the tests say. That's all the "proof" you need.
  7. Oh boy, do I remember having that struggle with my son's GI doctor as well. They sure have a knack for making you feel incompetent, don't they?? For what it's worth (maybe nothing! ), here's what I did. I had my older son tested through Enterolabs (he was my only child at the time). It came back that he did in fact have malabsorption and two genes for gluten intolerance, none for celiac disease. I also had that same stool test and bloodwork done through his GI - those came back negative. I started my son on the gluten-free diet when he was 2 1/2 - and within a week the change in him was AMAZING. He never had growth problems - and in fact was always off the charts above the 97th percentile in height, and never less than 50th for weight. But he would have 10 or more HUGE VERY SMELLY blowout diarrhea diapers a day, EVERY DAY. I had him off dairy, soy, and eggs since he was a year, but he continued with diarrhea every day. Looking back, I can't believe he grew so well and had such a sweet disposition. My GI doc wanted to do a biopsy too, and when I refused, she would no longer help me and told me "oh the gluten free diet sucks. It's really hard to do." Nice, huh?! So I also went gluten free because I noticed that my youngest son was reacting to glutens through my breastmilk at just a couple weeks old, and his reaction stopped when I stopped eating glutens. Now all 4 of us are gluten free for 3 years and have never looked back. I understand your fear of going against the doctors, I was where you are. I know I'm a total stranger to you, but PLEASE trust me when I say you need to follow your gut (no pun intended). If you feel the biopsy would be too much, don't do it. Try the diet instead - you'll get the answer you need if your kiddo improves. The gluten-free diet is very healthy anyway, so either way you have nothing to lose.
  8. Just wanted to throw in my .02. Gluten DEFINITELY passes through breastmilk. We started the gluten-free diet for my older son when my younger was just a couple weeks old. I noticed the younger one (exclusively BF at the time) started having stinky orange poop - definitely not the usual yellow mustard-seed breastfed baby poop. I took glutens out of my diet - it went away. Then I purposely introduced gluten again - same reaction. Stinky, orange poop (and a lot of it). That's when I permanently went gluten free. My older son had diagnosed allergies to soy, dairy, and eggs, so I was also off those as well (turns out youngest is sensitive to those as well). Being on a restricted diet is hard, believe me I understand! But as you know, SO worth it when you know you're giving your baby the absolute best start in life that you can give. Keep up the good work, mama!
  9. We've been gluten-free for three years now, and to be honest, even I have trouble telling still. Complicating matters further for us is my youngest is also allergic to dairy, soy, and eggs, and exposure to those causes diarrhea as well. For me personally, gluten exposure symtpoms are different than flu symptoms, but it's definitely hard to tell with kiddos. Unless things have changed (I haven't been around here much), regardless of the cause, all you can do is symptom management. Make sure your son drinks plenty of fluids, and I've also found that taking probiotics help with tummy bugs pretty quickly - and they definitely don't hurt for gluten exposure.
  10. It is funny. My son seems to be able to handle whole soybean flour and soy oil, but any other form of soy - forget it. I have high hopes he'll outgrow his allergies (egg and dairy along with the soy), like big brother did when he was 3.
  11. Same here. I hate that garbage, it's almost as pervasive as glutens.
  12. ohhh I see what you're looking at. I did miss the soybean oil ingredient. For some reason my son doesn't seem to react to soybean oil, and from what I understand some soy-allergic individuals can tolerate soybean oil, but he most definitely reacts to soy lecithin - irritability (MAJOR irritability) diarrhea, diaper rash...the "new" rice bars are new to my area (the ones with the penguin) - I've never seen them before. I wonder if they'll be replacing the cheetah ones with those?
  13. Nope, unless I'm missing something. I even double-checked it online (where they show an "old" box). Here's one: (scroll down for the ingredient list) Here's the new one - unless it's a completely different product (I wasn't the one who went to the store, so that's why I'm not sure) :
  14. Recently my DH went to Whole Foods and bought EnviroKidz rice bars (a regular staple at our house). My younger son is allergic to dairy, soy, and eggs along with his gluten intolerance. I noticed the boxes looked different, flipped it over and the berry ones now contain soy lecithin. He had a couple bites of one while I was reading the label....the next morning he got diarrhea, diaper rash, and was SUPER irritable all day. Why in the heck would they start adding that crap?! Anyway, just thought I'd let you all know.
  15. My son has two copies of the DQ1 gene. His results are HLA-DQ 1,1 (subtype 5,5). He was diagnosed at 2.5 years and never had any neurological symptoms - though he did have added food allergies - egg, soy, and dairy, and would react VERY quickly to an exposure with rash/hives around his mouth, and a little later would have diarrhea/diaper rash. I've noticed that one of my main symptoms was edema with glutens as well. I have a history of migraines starting at the age of 10 - I'm not completely sure if they're really gone at this point. I wouldn't get them very often, and I've only been gluten-free for a little over a year and a half - no migraines so far. I'm happy to answer any questions if I can.