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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

DownWithGluten

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  1. Did You Have A Trigger That Started Your Symptoms?

    I can't think of a trigger that makes sense (like stress or an infection). All I know is that there is an identifiable turning point for me. Just some vacation to Canada, I got "sick" in that special way for the first time that I can remember. I was about 15. Prior to that, I had some digestive issues here and there (bloating, throwing up, some chest pain/side pain after eating greasy food)...but this was the first of what I now call "gluten attacks." When my body painfully expunges itself, and not via vomitting. I was like ...wow what was that? Then a week later, it happened again, only not as bad. Within the next 7 years, this kind of thing happened off and on, and got more and more frequent as time went on. I started the GI doctors maybe 4 years after and heard things like IBS, trouble digesting food, etc. Then it still wasn't another 2 or so years later of it continuing to get worse that I just gave up and went on the gluten free diet which changed it all! So anyway...no infection or anything traumatic that caused the turning point, that I know of. However, there is a clear time that I can remember when it took a turn for the worse and "began" becoming a chronic thing.
  2. Started Dating - Dreading "the Talk"

    I, too, agree with this. If I was interested in a guy who suddenly lost interest when I said I had a dietary restriction...that might be a red flag of what kind of person he is. Self-absorbed, etc. Undoubtedly there might be some annoyances here in there long term...but someone who cares about you would be willing to accomodate. And if they're not...ya might want to reconsider lol.
  3. Endometriosis

    Hi all. This has probably been discussed before. I saw some threads of people having endometriosis in addition to celiac/gluten intolerance...also some suggesting there is a link. I'm beginning to wonder if I have endometriosis. Obviously I'm gluten intolerant (since i'm on this site!) and also have hashimoto's. But I've almost always had severe cramps. Not when I first started, but maybe a few years after my initial period, it's always been bad. I was prescribed Vioxx once for it, which actually worked like a charm, but now that's off the shelf for causing strokes. I was then told to take extra Ibuprofen which after 5 or so years started causing severe heartburn. They suggested going on birth control, to help. I have, but that really hasn't helped either. The doctor suggested at one point that the amount of pain could be endometriosis, and I'm beginning to wonder if, since even going on birth control hasn't helped, if I have it. Last night it was so bad that it was almost like sharp/intense pain that would wake me up, and my period hasn't even happened this month yet. I'm just getting frustrated about this and wondering if it's more than just regular menstrual cramps. So my question is - for those here who have it, at what point did you decide to get it checked out?
  4. Hmm. What I like along those lines is Simply Asia's sesame chicken soup. It's also an insta-soup thing, just open the packets and add hot water. That's my favorite ramen substitute. They're not found as easily as Thai Kitchen, though. And they are labeled "gluten free," I always check for that each time just in case it goes away one day lol. http://www.foodservicedirect.com/product.cfm/p/171669/Simply-Asia-Sesame-Chicken-Rice-Noodles-Soup-Bowl-2.5-Ounce.htm There it is. Make sure it's the Rice Noodle one. While looking it up, I see they make a wheat noodle one, too, although I've never seen that on the shelf.
  5. Milky Way Candy Bar

    Aren't dark chocolate milky ways gluten free? I thought so but have been too scared to try. The info should be available somewhere, though. I would avoid them though, personally. Regular Snicker's are gluten free, I eat them with no problem. Not the same as a milky way, but...something, anyway.
  6. Scared

    I was skinny and got skinnier after going gluten free. I think because the amount of food available for me to eat (conveniently) was reduced drastically. No more picking up a random cookie from Au Bon Pain, or some nice yummy convenient food somewhere else. It restricts your freedom to eat a lot of the stuff you might have been used to before. The only thing that's made me gain weight ever in my life is birth control. I swear I was at 100 for the past 8 years and finally gained weight with birth control. Anyway, the gluten or no gluten didn't seem to be a cause.
  7. Levoxyl?

    As an update...first StephanieGF thanks for your help. I did call the Levoxyl people first, who re-confirmed it is gluten free. After some discussion, she said basically what you said and what I later saw...since my dosage was raised (especially from taking expired lower dosage), it's "speeding" things up, including my digestion, to get to the right level -- something along those lines, which could be causing the abdominal discomfort. She said it could be a sign of over-dosage too, and if I started seeing other symptoms (can't sleep, nervous) to call my doc. I'm supposed to see him in a few months anyway. I figure if the abdominal weirdness doesn't go away in a week or so I'll call.
  8. Spices

    How do you know this stuff. Lol, you and someone else on the board...I think Richard or something? Always seem to have these obscure but helpful answers. (It's a compliment!) I'm like the second guy who responded...I don't assume anything and always check first. Maybe as I get more versed/knowledged I'll get braver. It'll take time, though.
  9. Levoxyl?

    Thanks. I'll try calling them to see what they say, at least if it's normal for this kind of reaction with a dosage/brand switch etc, or if it'll indicate the dosage is too high - anything. It's just depressing, b/c the symptoms are reminiscent of when I was eating gluten and those feelings of helplessness are coming back. And being in pain is distracting me from the studying I'm trying to do, and a lot of things are coming up that will make me busy...so I really can't be dealing with feeling like this. Hence the helplessness creeping in. I can't think of anything in the week that had gluten, plus it's just lingering as opposed to an 'attack' like the two times I've been 'glutened' in the past gluten free years.
  10. Levoxyl?

    Well, a few reasons why I switched. I was diagnosed at 10 yrs and that doctor retired a long time ago. So I'd just been getting refills of the same thing w/o an endo. Then finally went to see one, and he preferred Levoxyl. Which was fine w/ me b/c I'd read some gluten people have problems with Synthroid now, even though they didn't used to. I'm not sure if synthroid guarantees they're gluten free status anymore. And yes the dosage did change b/c I had been taking expired Synthroids for a few years. So you think it'll go away eventually?
  11. I have hashimoto's hypothyroidism. I recently started taking Levoxyl instead of Synthroid. I started taking it last Thursday. This Monday, I noticed my colon/bowels gurgle-ly and having slightly 'glutened' feelings. Not a full gluten-attack...just some cramping and aching and unsettled colon. It's been continuing for the week and tonight is getting more annoying, loose-ness...etc. Could it be the Levoxyl? I can't think of anything else that has changed, and it seems a little weird with the timing. I'm hoping it's not, though...I just don't know. I didn't think Levoxyl had gluten in it. But maybe it's not gluten...maybe it's just causing those side effects? Or maybe I just caught a bug that will go away?
  12. How Sensitive To Gluten Are You?

    Um, that's pretty bad. Because who's the waiter going to believe at the end of the day - you a 'lay' person, or an almighty doctor? That was just uncalled for for that doc to undermine you like that. No, it's not like a peanut allergy in that I'll DIE and have my throat swell up if I eat gluten. But my symptoms are wretched and if I can help it, I do NOT want that.
  13. Mucinex

    Yeah. Last time I took it, it was.
  14. Hasn't happened to me yet, sorry to say, and it's been over three years. I remember reading that I would be "singing on my way to work" and overall more lighthearted and joyous after going gluten free. But that has yet to happen! I mean...more directly...of course my quality of life has improved because I'm not hopelessly/helplessly sick every 3-6 weeks, which would denigrate my mood by many degrees. So that's gone. But as far as an overall improvement in mood etc...hasn't happened to me. I also have hashimoto's hypothyroidism for what it's worth.
  15. Ibs And Celiac?

    I agree. Probably everyone diagnosed with 'IBS' has some more specific condition. Such as Chron's, celiac, other food intolerance, maybe even conditions we haven't discovered yet. I was diagnosed with IBS "C-D." I used to post on an IBS board, and was struck with how varying everyone's symptoms/triggers were. That's when I got a little suspicious...