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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About Karina

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    1. Karina added a post in a topic Not Pregnant, But "lady" Issue   

      I have this problem too. I have been to the RE and to other docs. For me, I think it is just messed up hormones that I have been trying to treat herbally. I may start myself on Progesterone cream in the next couple of months if things do not respond to my current regimine. My docs have prescribed the oral Progesterone, which I am not taking. I would rather try the cream first.
      The book everyone recommended is really, really good. Every woman should own a copy.

      Sorry you are going through this.
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    2. Karina added a post in a topic Permanent Gluten Damage   

      You know what's wierd, is that my FIL gave me his liquid B from GNC since I was out of mine...and it does not have nearly all the B vitamins that my Liquid Health B's do...but it has lots more B 12 and I have been taking that faithfully everyday until I can get my regular Liquid Health again. The GNC has 1000mcgs in it of B12, so I have been getting more b12 than I usually do.....maybe for me, I need the bigger complex of the B's.......who knows.
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    3. Karina added a post in a topic Permanent Gluten Damage   

      I wonder if this is why my numbness and tingling has come back lately? I will get it if I have been glutened like on vacation or something and it will last a couple of months or so! But you know, I improved when I was taking a liquid B-Complex with mega doses in it, and I have been off of it for like a month because the HFS where I get it was out and it takes weeks for them to get it in.....
      I should just order off the internet.
      So I wonder if that is what is causing my recent issues. I also have muscle aches and weakness too. When I think about it, I realize my symptoms returned around the time I stopped taking the liquid B complex.........
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    4. Karina added a post in a topic Breast Implants And Celiac Disease   

      Well I hope the OP has been able to get some good info from all of this. The only thing I would add is that if you havn't already had kids, you may want to wait. For one thing, you may not be able to BF with implants. Also, pregnancy, hormones, all that can change a persons body a lot and some people are bigger after having babies....even if they BF. Wasn't the case for me , but it was indeed for a friend of mine. I have thought about getting it done myself. However, for me, this whole Celiac thing has turned out to be a bit more complicated than I would have liked. I am still dealing with issues and finding CC hard to deal with. I am so thankful for the level of health and wellness that I DO have, that it keeps me from focusing too much on the more superficial stuff. Still, I totally understand why a woman in our culture would want implants. They really are very tempting.

      The other thing I would like to address is Ursula. I have done a lot of research on this subject in the past. I have read PRO studies and CON studies. I have frequented Mercola's sight myself. I havn't always agreed with everything there, but over-all it is a decent sight. THe facts are......breast augmentation is NOT a risk-free surgery. Plain and simple. The OP wanted feedback. Ursula was kind enough to go out of her way and provide a lot of food for thought. The word's against her were extremely confrontational and frankly if someone spoke to me that way, I doubt I would have as much class as she did.

      As for the comment about hippies or hippie wannabees....whatever it was. COME ON!! Give me a break! I too, have a real low tolerance for "BS" and I just got a load of it reading through these posts!
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    5. Karina added a topic in Gluten-Free Foods, Products, Shopping & Medications   

      I Need A List Of Foods, Cosmetics, Etc.
      OK. So I am not exactly brand new to this, but I think I am realizing you can't be too careful with this disease. I am trying to really get a handle on any possible sources of gluten in my everyday life. I feel OK, but I have a lot of weird symptoms still that come and go and unfortunately I am probably too relaxed about accidental glutening. I really want to make this as UNstressful as possible. I don't mind paying for a book or a list or whatever--I just want recommendations for RECENTLY or FREQUENTLY updated food/products lists. I have seen the Delphi thing mentioned a lot but I have no idea what that is.....

      • 0 replies
    6. Karina added a post in a topic Reflux?   

      I would call the company about the malt ingredient. I once took enzymes that were not gluten-free, but they were wheat free (duh--it said it right on the bottle ), and I got sooooo sick for days, because I kept popping more enzymes, thinking they would help!!!! When I called they explained the ingredient that contained gluten and it was a malt product......just check to be sure.

      Do you mix the ACV in water or something?
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    7. Karina added a post in a topic Can You See Your Heart Beating?   


      I dont really feel my heart pounding...if I am really still I can feel my aorta pulsating (I think), and I think that is what I see "beating" in my chest, right below the sternal notch. Sometimes the "beating" looks like pounding and other times it is more subtle--like it beats harder after a hot shower or climbing the stairs.
      I do experience the burping thing like you described it, but no rash or redness, and only hot flashes around my period usually.
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    8. Karina added a topic in Celiac Disease - Related Disorders & Research   

      Can You See Your Heart Beating?
      I am skinny. I guess for as long as I can remember I could see my heart beating right below the breast bone and kind of down my abdomen. I once asked a doc about this (I am a nurse, and didn't want to have an abdominal anurism sp? go undiagnosed ).

      Anyway, it seems like it is way more noticeable now lately (last week or so). I kind of feel this tightness in my chest and I think that might be gas related, because sometimes I'll just have this big burb (that I don't usually have). I'll reach down and touch my upper abdomen and can feel it pulsating. Also the last week, my hands and feet are very cold a lot (our weather is just now getting cooler). I was out of town this past weekend and could very well have gotten glutened (my reactions are not as bad now, that I have been gluten-free for awhile).

      I am under a lot of stress too. Nothing bad, just real real busy. I feel like I am always on the go, and I know my diet has suffered (NO, I have not cheated, I would never do that).

      So anyone else experience this? It may very well be stress. I have had these symptoms before, and like I said I have always seen the pulsating in the middle of my chest--it's just more noticeable now.

      • 4 replies
    9. Karina added a post in a topic Anyone Have This?   

      My doctor told me a couple of years ago that I have costochondritis--this dx came before my celiac disease dx. It has been really unnerving as I'll start having chest pain and have to remind myself, I am probably NOT having a heart attack! Mine is usually on the left but migrates sometimes to the right, and I don't have it all the time. It's like it will get irritated or something and be around for awhile. I pick up my kiddos all the time (who are three and five), and I am a very tiny person (5'4", and 105 lbs). I am pretty active and need to pay better attention to body mechanics. Prevention, prevention.
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    10. Karina added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)   

      What Supplements Do You Take?
      Now since I have been gluten-free for awile, I am thinking that my "recovery" has reached a plateau with regards to simply being gluten-free. I have been doing some research and have found that there are a few diets and supplement ideas for people with chronic digestive disorders such as Celiac Disease. I have not seen many other "diets" talked about here other than our good ol' gluten-free diet. My hypothesis here is that there is some "total healing" that still needs to take place--not only in the gut but the rest of the body as well. Although I suspect of course that it all begins in the gut. For example an overgrowth of yeast can cause intestinal damage and needs to be dealt with. Even after one has removed gluten from his/her diet, he/she may have other issues to deal with--such as a yeast overgrowth, or other "bad" bacteria infestation, etc. In fact, it is now suspected that many other disorders originate from problems in the gut--such as certain forms of autism and other behavioral disorders. Since some of us are further along on our journey than others and have done more research than others, I thought it would be good to share what supplements we use (with a brief why), and what other diets and/or treatments we have used (with a brief why).

      Here are mine (I don't take much--I am researching things, which is why I posted this ).

      1. Supplements: New Chapter probiotics--9 billion (3 caps) in the am on empty stomach. Why? I suspect my good bacteria count to be down, and will back off to a maintenance dose in a week or so. New Chapter was recommended by very knowledgeable newly liscensed-not-yet-practicing chiropractor who works at Vitamin Shoppe and it was cheaper than Natren which I knew was good.

      2. Vitamins: still researching do I need multi, B complex and what about Cal/Mag combo?

      3. Diets: gluten-free of course. Recently started Maker's Diet. Sugar is totally restricted accept minimal amounts of pure forms such as raw honey and maple syrup--this is hard for me (sugar addict ). High protein, high fat (good fat--coconut oil, olive oil, animal fat), high raw veggie emphasis and fruit. Pretty much a primitive diet. All organic with an additional emphasis on raw goat's milk products that are supposed to be VERY beneficial for gut disorders such as Celiac.
      I also have interest in the SPECIFIC CARBOHYDRATE DIET which is highly recommended for celiac disease, but is a bit more restrictive than even the Maker's Diet--but a lot of the same ideas.

      4. Enzymes: Still researching, but pretty ready to take this plunge as it has been HIGHLY recommended from people here, other nutrition books, and other naturally minded health concious people I know--plus it makes physiological sense to me.

      Ok, so that's me......what about you?
      • 11 replies
    11. Karina added a post in a topic Birth Control Pill   

      I can't take hormonal BC anymore. We use FAM here. I don't know if it was a pregnancy or the BC that triggered my celiac disease but I blame something like that. Now I may have had this my whole life, but I started having symtoms after baby #2. i got better going gluten-free and then still better when I went off of the BC, still have some issues but I know I can't do hormones.
      Just my experience.
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    12. Karina added a post in a topic Cd & Exercise   

      I am going to hop on the exercise train again soon here. I have osteopenia and the doc said I need to do weight bearing exercise. I have since heard that lifting weights is the best thing to get bone growth--muscle grows the bone has to grow with it. I think I am going to start my am yoga stretches again too as I am very inflexible and really need to work on this.

      Bob, I get chest pains sometimes too. The docs think it is muscular and i have had EKG and bloodwork and echocardiogram done too to be on the cautious side. I agree with others, that it is definately worth mentioning to your doc--(I am a CCU nurse ). But I thought I would let you know it could be something muscular like costochondritis. It is scary though, because it does sometimes feel like it could be cardiac or something, but for me I have decided it must not be. I just know how it can feel to have a symptom that others don't seem to have and you mention it and people are like "RUN don't walk to the doc about this!" . The anxiety of that could bring on a heart attack all by itself ! Anyway you need to be smart, and if you get any other symtpoms with that pain then by all means see your doc soon. Otherwise you still should mention it when you get a chance, but it could very well be muscular--esp. b/c increased activity seems to relieve it.

      Take care and happy walking!
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    13. Karina added a topic in Gluten-Free Ingredients & Food Labeling Issues   

      Citric Acid
      This is in a lot of things, so it is important to know. Has anyone heard this is NOT always gluten-free? Someone told me today that they have a friend who cannot have citric acid as it is sometimes from a gluten-containing source. This was news to me. Anyone heard about this?
      • 30 replies
    14. Karina added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)   

      Ok, so I have been gluten-free for about nine months with accidents in the early months of course, but I know what I am doing now. I think . Anyway, I still bloat. I started the Maker's Diet in hopes of regaining really good health and I think I started to detox really fast. I started allowing myself some things like Buckwheat waffles and gluten-free bread (just a little) and some dairy and started bloating again. Now I don't think it is the dairy, because I have had it without any bloating before...someone told me today that a friend of theirs who has celiac can't have citric acid because it is sometimes made from a gluten source! Now while I have tried to go "all natural" with stuff there are some things I have that are preserved with citric chopped garlic and some fruit.

      Because I feel so much better than I did I wasn't even going to worry about it...but now that I think about it I am still tired a lot, and have bouts with low energy and occassional abdominal pains. I think sugar is involved in this too, and I have drastically cut back, and when I went off the wagon with the sugar this past week, the bloating returned.
      Sorry this post is sort of all over the place, but I am hoping to get some insight from anyone who might have struggled with this too, and if anyone has found sugar to be a culprit in not feeling well. It is one of the few great things we get to eat....maybe some of us overdo it?

      One more question. Is it normal to have SOME bloating? I am really skinny. In the am my tummy is flat as a board, but even when I wasn't bloating...I was...a little bit. It wasn't uncomfortable or anything, and if I hadn't been checking for it, I wouldn't have noticed it--is that kind of "bloating" normal? I was thinking maybe it was b/c I am so skinny. Thoughts?
      • 2 replies
    15. Karina added a topic in Gluten-Free Ingredients & Food Labeling Issues   

      Wheat Grass, Barley Grass
      So, I am trying to find a green superfood supplement that is gluten-free. Now the research I have done so far indicates that wheat grasses and barley grasses are gluten free they are the young plant before the gluten protein "berry" forms--they are cut young. Various manufacturers are all claiming that this is gluten free. The natural health pharmacist lady at a store here told me the same thing once, but she wanted to call the company to double check since this is such an important issue and she couldn't get through.

      Does anyone here supplement with this type of green superfood? Does anyone know about this?
      • 2 replies

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