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Karina added a topic in Gluten-Free Foods, Products, Shopping & MedicationsI Need A List Of Foods, Cosmetics, Etc.OK. So I am not exactly brand new to this, but I think I am realizing you can't be too careful with this disease. I am trying to really get a handle on any possible sources of gluten in my everyday life. I feel OK, but I have a lot of weird symptoms still that come and go and unfortunately I am probably too relaxed about accidental glutening. I really want to make this as UNstressful as possible. I don't mind paying for a book or a list or whatever--I just want recommendations for RECENTLY or FREQUENTLY updated food/products lists. I have seen the Delphi thing mentioned a lot but I have no idea what that is.....
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Karina added a topic in Celiac Disease - Related Disorders & ResearchCan You See Your Heart Beating?I am skinny. I guess for as long as I can remember I could see my heart beating right below the breast bone and kind of down my abdomen. I once asked a doc about this (I am a nurse, and didn't want to have an abdominal anurism sp? go undiagnosed ).
Anyway, it seems like it is way more noticeable now lately (last week or so). I kind of feel this tightness in my chest and I think that might be gas related, because sometimes I'll just have this big burb (that I don't usually have). I'll reach down and touch my upper abdomen and can feel it pulsating. Also the last week, my hands and feet are very cold a lot (our weather is just now getting cooler). I was out of town this past weekend and could very well have gotten glutened (my reactions are not as bad now, that I have been gluten-free for awhile).
I am under a lot of stress too. Nothing bad, just real real busy. I feel like I am always on the go, and I know my diet has suffered (NO, I have not cheated, I would never do that).
So anyone else experience this? It may very well be stress. I have had these symptoms before, and like I said I have always seen the pulsating in the middle of my chest--it's just more noticeable now.
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Karina added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)What Supplements Do You Take?Now since I have been gluten-free for awile, I am thinking that my "recovery" has reached a plateau with regards to simply being gluten-free. I have been doing some research and have found that there are a few diets and supplement ideas for people with chronic digestive disorders such as Celiac Disease. I have not seen many other "diets" talked about here other than our good ol' gluten-free diet. My hypothesis here is that there is some "total healing" that still needs to take place--not only in the gut but the rest of the body as well. Although I suspect of course that it all begins in the gut. For example an overgrowth of yeast can cause intestinal damage and needs to be dealt with. Even after one has removed gluten from his/her diet, he/she may have other issues to deal with--such as a yeast overgrowth, or other "bad" bacteria infestation, etc. In fact, it is now suspected that many other disorders originate from problems in the gut--such as certain forms of autism and other behavioral disorders. Since some of us are further along on our journey than others and have done more research than others, I thought it would be good to share what supplements we use (with a brief why), and what other diets and/or treatments we have used (with a brief why).
Here are mine (I don't take much--I am researching things, which is why I posted this ).
1. Supplements: New Chapter probiotics--9 billion (3 caps) in the am on empty stomach. Why? I suspect my good bacteria count to be down, and will back off to a maintenance dose in a week or so. New Chapter was recommended by very knowledgeable newly liscensed-not-yet-practicing chiropractor who works at Vitamin Shoppe and it was cheaper than Natren which I knew was good.
2. Vitamins: still researching do I need multi, B complex and what about Cal/Mag combo?
3. Diets: gluten-free of course. Recently started Maker's Diet. Sugar is totally restricted accept minimal amounts of pure forms such as raw honey and maple syrup--this is hard for me (sugar addict ). High protein, high fat (good fat--coconut oil, olive oil, animal fat), high raw veggie emphasis and fruit. Pretty much a primitive diet. All organic with an additional emphasis on raw goat's milk products that are supposed to be VERY beneficial for gut disorders such as Celiac.
I also have interest in the SPECIFIC CARBOHYDRATE DIET which is highly recommended for celiac disease, but is a bit more restrictive than even the Maker's Diet--but a lot of the same ideas.
4. Enzymes: Still researching, but pretty ready to take this plunge as it has been HIGHLY recommended from people here, other nutrition books, and other naturally minded health concious people I know--plus it makes physiological sense to me.
Ok, so that's me......what about you?
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Karina added a topic in Gluten-Free Ingredients & Food Labeling IssuesCitric AcidThis is in a lot of things, so it is important to know. Has anyone heard this is NOT always gluten-free? Someone told me today that they have a friend who cannot have citric acid as it is sometimes from a gluten-containing source. This was news to me. Anyone heard about this?
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Karina added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)BloatingOk, so I have been gluten-free for about nine months with accidents in the early months of course, but I know what I am doing now. I think . Anyway, I still bloat. I started the Maker's Diet in hopes of regaining really good health and I think I started to detox really fast. I started allowing myself some things like Buckwheat waffles and gluten-free bread (just a little) and some dairy and started bloating again. Now I don't think it is the dairy, because I have had it without any bloating before...someone told me today that a friend of theirs who has celiac can't have citric acid because it is sometimes made from a gluten source! Now while I have tried to go "all natural" with stuff there are some things I have that are preserved with citric acid...like chopped garlic and some fruit.
Because I feel so much better than I did I wasn't even going to worry about it...but now that I think about it I am still tired a lot, and have bouts with low energy and occassional abdominal pains. I think sugar is involved in this too, and I have drastically cut back, and when I went off the wagon with the sugar this past week, the bloating returned.
Sorry this post is sort of all over the place, but I am hoping to get some insight from anyone who might have struggled with this too, and if anyone has found sugar to be a culprit in not feeling well. It is one of the few great things we get to eat....maybe some of us overdo it?
One more question. Is it normal to have SOME bloating? I am really skinny. In the am my tummy is flat as a board, but even when I wasn't bloating...I was...a little bit. It wasn't uncomfortable or anything, and if I hadn't been checking for it, I wouldn't have noticed it--is that kind of "bloating" normal? I was thinking maybe it was b/c I am so skinny. Thoughts?
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Karina added a topic in Gluten-Free Ingredients & Food Labeling IssuesWheat Grass, Barley GrassSo, I am trying to find a green superfood supplement that is gluten-free. Now the research I have done so far indicates that wheat grasses and barley grasses are gluten free they are the young plant before the gluten protein "berry" forms--they are cut young. Various manufacturers are all claiming that this is gluten free. The natural health pharmacist lady at a store here told me the same thing once, but she wanted to call the company to double check since this is such an important issue and she couldn't get through.
Does anyone here supplement with this type of green superfood? Does anyone know about this?
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