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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About mamabear

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    • Birthday 04/17/1953

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    mamabear's Activity

    1. mamabear added a topic in Gluten-Free Restaurants   

      Nola Restaurant In New Orleans By Emeril
      I tried to handpick a restaurant for a trip to New Orleans based on their online menus. I was really unsure I'd find anyone who understood gluten in the Crescent City, but decided on NOLA restaurant in the French Quarter. We had advance reservations(needed) and I was thrilled when the wait staff said they had several choices the chef could suggest from the menu and were very careful in the presentation of the meals. I had no problems from eating there(it's been 6 days now) and would recommend it to travellers to New Orleans. I'd still be careful as the city loves its beignets and croissants, but it was very nice to ask about gluten free choices and not get a blank look !
      • 2 replies
    2. mamabear added a post in a topic Top Five Reasons To Get A New Doctor   

      When I created this post a few years ago, it was mainly a comic relief effort to some really serious reactions from disengaged doctors. It has been gratifying to check in from time to time, because it still gives a chuckle; still gives a great vent and still educates us to keep pushing until you find a doctor who cares to be a partner in YOUR health and healing.
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    3. mamabear added a post in a topic Formal Diagnosis: Is It Worth It?   

      Worth it for the previous mentioned reasons of following specific lab tests that might be a creative stretch for your PCP to make the insurance company pay; worth it if you need the enforced mentality to stay on the diet; worth it if you need that for family members.
      Not worth it to get better. Too many doctors keep a blind eye to the variations and subtleties of gluten sensitivity to full blown celiac disease and do not advise negative- tested patients who fit the diagnosis to go gluten-free ! Sorry ,big run on sentence there. There is no harm there to advise the diet, especially if they've done everything anyway and still can't get a gold standard. By that time, they should have eliminated anything else, so where's the foul???
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    4. mamabear added a topic in Gluten-Free Restaurants   

      Great Cafe In Alexandria Va
      Just got back last weekend from the DC area in Alexandria VA Old Town and found 2 gems. Fontaine's cafe and creperie has gluten-free crepes. It is not 100% gluten-free restaurant but they are gluten savvy and the crepes were delicious.
      The Majestic Cafe was excellent; the servers well educated and the chef staff great.
      Hope someone else gets a chance to enjoy!
      • 2 replies
    5. mamabear added a post in a topic Testing For Non-celiac Gluten Intolerance   

      Thanks Davey Boy!! This is how I've been regarding gluten sensitivity for a lon time, and am happy to see it in print! I mean, why would a body make an antibody to FOOD(gluten) and have it considered normal???
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    6. mamabear added a post in a topic Invitation To Good Health   

      Hang in there,teemaree. It will get better. Promise!
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    7. mamabear added a post in a topic Drug: Levsin? Levson?   

      It works very well, I think . I always keep a supply of it with me; you never know if celiac symptoms might strike at an inopportune moment! I found a little bit goes a long way for me; I usually bite ONE tiny pill in halves so I don't end up going the other way
      It is a smooth muscle relaxer and non narcotic. It will RARELY just stop you up,so really safe to use with a few conditions excepted.. Also works for menstrual cramps!
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    8. mamabear added a post in a topic Kentucky Grilled Chicken   

      Costco rotisserie chickens do not have wheat on them........hope they never change!!
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    9. mamabear added a topic in Gluten-Free Restaurants   

      Kentucky Grilled Chicken
      Well, I was about to get excited, then went and checked their website, and it's got wheat/gluten
      In fact, the ONLY thing we can eat there is a side salad and a couple of salad dressings.
      Think I'll give that puppy a pass............
      • 4 replies
    10. mamabear added a post in a topic Age Of Diagnosis?   

      I was 2 weeks shy of my 50th birthday....let's say we had to modify the birthday party menu really quick!!
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    11. mamabear added a post in a topic Anger At Pcp Who Didn't Diagnose Celiac   

      Actually the bottom third of med school classes usually went into ortopedics and OBGYN. The top students in the past went into Internal Medicine which used to be the cream of the crop. With big business driving insurance companies(HMO,PPO,POS plans) into getting the diagnosticians(Internal Med) to being a "PCP",many of the docs responded into volume practice and not quality. IM docs are/were trained to think and diagnose.....carefully consider a differential diagnosis and have the diagnosis by HISTORY and PHYSICAL alone 95% of the time. Lab,xrays were to only add 5 %. It just ain't so anymore. FP's have 6 months of Internal Medicine in their residencies, so they aren't generally comparable to IM. There are some good FP's out there, and some good IM's, but I am unhappy to say that many quality Int Med docs have succumbed to the 30-40 patients a day vs under 15 per day. For anyone wanting to use that to vet out an Internist, it would be a reasonable question to ask the office front desk.
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    12. mamabear added a post in a topic Many Doctors Are Trained By Big Pharma   

      I think we are way off topic now, but here goes.
      Seems like there is a lot more attention given to all our negativity, rather than to a positive movement to solutions. There is a syndrome called HRC or "help---reject--complain". Someone calls for help;rejects the help and then complained they didn't get help. Of course that's a presumption that the help was what was needed. I'd like to propose a new syndrome called CRC. Complain---reject--complain some more.
      Several days ago I posted about a very positive post about a current medical article directed towards PCP's. There were a 100 or so views, but very few responses. Does good news not carry any weight? Have we turned into a mini version of the 6 o' clock news?? Are we turning into a group of "Debbie Downers"?
      I well understand the need to rant about medical mistakes/misdiagnoses and disappointments, but the tendency to bold highlight the misery needs some help!
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    13. mamabear added a post in a topic Anger At Pcp Who Didn't Diagnose Celiac   

      Even the best neurologist in West TN was unaware (until we talked and I gave him a 10 minute discourse) that unexplained peripheral neuropathy was a sign of celiac disease. The hematologists here are worse(unexplained iron deficiency has a 5-25% chance of being celiac..varies depending on which study) and they roundly here blithely ignore it even when it smacks them up close! I posted an article a couple of days ago about a Cortlandt Forum article this month about how to diagnose celiac and how to follow us. Jersey Angel kindly provided the link. Hope this helps ypu deal with your anger and frustration. It will take some time for that to heal,too. Good luck!
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    14. mamabear added a topic in Celiac Disease - Doctors   

      A Little Encouragement From The Doctor Education Debate
      I would like to present a gift to all the celiacs past.present and future! The latest edition of Cortlandt Forum has a wonderful eye opening article on celiac disease aimed at PRIMARY CARE DOCTORS !! It is on the front page, and is accessible to all. Just go on and scroll down to the article. It is the Jan-Feb '09 edition. This is a free medical journal mailed to thousands of docs.
      I have not been able to create a link, so maybe some kind member will do this.
      I am very encouraged to read the medical literature specifically targeting the front line doctors in a good way.
      • 6 replies
    15. mamabear added a post in a topic Many Doctors Are Trained By Big Pharma   

      I would like to respectfully disagree with the overall tone of this thread. Doctors are required to participate in CME(continuing medical education) in order to remain on staff at their hospitals. It varies somewhat from specialty to specialty as to how many hours are required. These credit hours are not given in "big pharma 101", but in approved courses from legitimate institutions which may be at the local medical school,out of state, or an excellent course is from the NEJM(New England Journal of Medicine) which can be completed online or the old fashioned way of reading and filling out a form. CME is generally a service that physicians pay for. I find information about PRODUCT is being disseminated by the pharmaceutical representatives and not "education". It is not serving self to constantly degrade and berate physicians as some posters do on this forum. Who do you think sponsors all the PA's,RN's and NP's?? Who do you think they turn to when they have a need to ask someone with 8-10 more years of education??
      There is also an apropos quote for this thread........
      He who treats himself has a fool for a physician and a jack*** for a patient.
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