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DaCat added a topic in Gluten Intolerance and BehaviorGluten IntoleranceI really need some help here......
I am currently seeing a naturopath and an MD that practices holistic medicine. One is telling me that my gut can be healed and eventually I can ingest gluten again (naturopath) and the other is telling me after staying off gluten for 6 months, I can then ingest, but only once a week for life - if I can tolerate (holistic MD). Which is true? At this point, I have not been diagnosed with Celiac.
Testing I've had done specific to gluten issues:
gliadin AB, SIgA (saliva): 34 (range: positive if >15 U/ml *high* [Diagnos-Techs]
food sensitivity IgG & IgE (blood): low for "wheat" gluten & "wheat" gliadin [uS Bio Tek]
Gliadin IGG (blood): 59.5 (equivocal: 25.1-49.9) *high* [Mayo Clinic]
Gliadin IGA (blood): 28.2 (equivocal: 25.1-49.9) [Mayo Clinic]
Enodmysial AB: negative [Mayo Clinic]
Reticulin ABS: negative [Mayo Clinic]
(I did ingest gluten for a few months before having the Enodmysial, Reticulin, IGG & IGA (blood) test.)
How can I show positive for gliadin on a saliva and blood test, but not show positive for wheat gluten or wheat gliadin on the food sensitivity test? That baffles me!
I would really like to know if I must remain gluten free for life or not. If anyone can help me with this I would greatly appreciate it.
Also, what occurs in the body when one is gluten intolerant and ingests gluten? Any web sites/links you could post?
Thank you for your time!
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DaCat added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsPlease Help Clear Up "testing" Confusion!As recommended by my naturopath, I had some saliva testing (along with stool analysis) done by Diagnos-Techs because of chronic constipation, chronic fatigue etc. My SIgA Gliadin test came back positive @ 34. I have posted about this before, but now I am more confused. So, is this an indication of Celiacs or not? Or could it mean that I just have an intolerance or sensitivity to gluten? I want to KNOW whether or not I have Celiac Disease, but the more I read here about the "gold standard" biopsy that I've read about elsewhere, it doesn't sound like that's as reliable either. ????? I'm getting more and more confused. Please help me understand my test results. My naturopath doesn't think I have Celiac because he said that number (34) would have been higher and I would have shown a stronger reaction to wheat, gluten and gliadin on my food sensitivity test (blood test by US Biotek). Does that sound right?????
One thing I DO know is I have been off all dairy, casein, pork, beef & wheat for approx. 5 months, and within the last month I eliminated all gluten completely after much research on celiac disease. Within 2 days my nagging symptoms of fatigue and brain fog left, the pain my ears subsided and I had energy. I was a tad amazed! I tried purposely having gluten on 2 seperate occassions, and both times I felt negative effects. Last time was 1 week ago, and I have not fully recovered since.
I know most here would say just stay off gluten then, and I do plan to do that for now, but I want to KNOW if I have Celiac Disease. I am concerned for our 2 children, especialy my daughter who has had similar digestion problems (constipation). How can I know for sure? Any input about the test I already had done would be great, and any recommendations for further testing would be appreciated as well.
Also, are there any "reliable" tests that can be done while off gluten? I hate the thought of ingesting it again, but will if I have to. I just recently read the book "Celiac Disease A Hidden Epidemic", and according to that book, there isn't. The book also states that the biopsy is the best and most reliable test.
Thank you for your time. And for those who caught my previous post a few weeks ago, thanks for your time.............again!
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DaCat added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsHow Long Do I Do A Trail Run Of Gluten-free Diet?I realize some people notice a difference sooner than others, but what is a general time frame that I should shoot for to determine what gluten is doing to me and/or affecting me? How soon have some of you noticed relief of symptoms.
The symptoms I am dealing with are chronic fatigue, brain fog, bloating, constipation (never diahrrea!), sinus/ear issues and muscle joint pain - that is very unnerving at times.
Thank you so much for your time!!!
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DaCat added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsCan Celiacs Or Gi People Have Pop/soda?I am going to try eliminating gluten from my diet and I have some questions:
1. Can Celiacs or gluten intolerant people have pop/soda?
2. Is it okay to have oats/oatmeal?
While I'm here, I just noticed on my GI panel that the anti-gliadin test that I had done was actually SIgA (saliva). Is that as accurate as testing stool? Seems like from what I have read it's not.
Here are my results:
Gliadin AB, SIgA 34
Borderline: 13-15 U/ml
Positive: >15 U/ml
*Tested at Diagnos-Techs, Inc.
What do my tests results mean to those of you that are living with Celiacs or Gluten Intolerance? If I am just gluten intolerant, can that be reversed eventually when my "leaky gut" is healed up???? My naturopath had me tested for food sensitivities too, and regarding gluten/grains, I scored low. I'm confused. If these were your test results, would you completely cut out gluten? I am so new to this. I am waiting for a couple of books to be returned at the library so I can learn more. Any help you all have would be greatly appreciated.
Thank you & God Bless,
~Shelly P.S. (I did print the forbidden and allowable food lists off this site.)
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DaCat added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsQuestions About My Tests......I have been seeing a Naturopath for approx. 5 months now. I have been tested for food sensitivities and also had a GI panel done. I do not know much about Celiacs, but started to look into in when my Gliadin came back positive (34). My Naturopath doesn't think at this point that I am dealing with Celiacs, because in his opinion, that number is rather low. And.............my food sensitivity test (blood) showed Gliadin, Wheat in the low range (there are 4 categories: no reaction, low, moderate, high). He said he usually sees those 2 things much higher with Celiacs. In fact, none of the other grains that have gluten were moderate or high either - all were either in no reaction zone or low.
I am just looking for a second opinion here to be on the safe side. I have struggled with Chronic Fatigue Syndrome, bloating, brain fog for 25 years (I am 40) and chronic constipation all my life, and I want to cover all the bases to get well.
FYI: I did eliminate wheat from my diet for approx. 4 months and only had oats occasionally (I checked labels extensively and did much reading on-line to know what to look for re: gluten). I've seen some improvement in my health, but it could be due to other things we have been working on - I don't know.
How do you know for sure that you have Celiacs? I've read about biopsies etc. on this board a little, but really am quite clueless. Any input would be greatly appreciated.
Thank you & God Bless,
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