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gfr123 added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsWaiting Forever For Test ResultsHi,
I have had terrible, debilitating stomach problems for a couple of years now. I've had loads of blood tests. One turned up that i have Pernicious Anaemia, and the doc said I would feel fine once I started B12 shots and Folic Acid pills. I've been getting steadily worse - both stomach related and general health.
Eventually my doc referred me to the GI unit at the local hospital. I had blood tests taken - for what I don't know. Brittish health care may be free, but it's not the best. I waited at least two months for the blood results, and actually never got them - but I did get called in for an endoscopy. I wasn't worried until I was informed, once I had the tube down my throat, that they were taking a biospy. It's hard to ask questions under these circumstances. I went to my doctor for my results - surprise surprise - they weren't in. I did manage to find out there was an anti-body for celiac found in my blood terst. Should I assume I have celiac disease until the doctors finally get their act together, or is there a good chance I don't have it?
All I know is that I feel really ill, and also have a blistering rash which could be that DH.
Any advice on how to cope with the uncertainty would be really great. I can't get my head round going gluten free until I have a diagnosos. I don't know how I'll manage even if I do have it - also if I don't have celiac, what else could they be analysing a biopsy for?
Hope that wasn't too rambling - thanks in advance for any advice or help.
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