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geminigal

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About geminigal

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  1. It is baking soda
  2. I get sick when I eat blue cheese. I am also allergic to mold though. When I went to the Mayo on Monday they had blue cheese listed as a no no because some of them make the mold from bread crumbs. I just double checked the list and it said no for blue cheese and no for imported roquefort cheese and only eat "real" aged cheeses such as cheddar or swiss. HTH!
  3. definately make sure you call because that is what took so long for me. As soon as I got the slides down there they called back a week later and a week after that I was at the Mayo. I had a 10am appt, a 1:15 appointment, and a 3pm appointment with the nutritionist (this is the only one I was not impressed with) I am from St. Paul so I just took the day off. And I was gluten free for quite a few months and then starting doubting myself and called the Mayo. After I got the call back that if I sent the slides the doctor would look over them I started eating "normal" again. It was only about 3 weeks and Dr. Murray said that that might cause the bloodwork to come back negative so he wanted me to continue eating a gluten filled diet in case he needed to re-test (if it shows that I carry the gene) after having a longer gluten challenge. So you might want to start scarfing down the donuts if you can handle the after effects...........I've had a constant headache, diarrhea, nausea, heartburn and vomiting........Oh JOY! I don't know where you are in MN but I run a small home daycare if you needed someone to help you out for an appointment day......I'm pretty cheap
  4. Did they check to see if you have the gene for Celiac? I am waiting to get my tests results tomorrow morning from the Mayo here in MN, and the doctor I saw said that he looks to see if you carry the gene if the other results are negative. He said that if you don't carry the gene then there is almost (99.9%) sure that you do not have celiac, but if you do carry the gene you could have just gotten a false negative and they do more testing. He also said just because someone doesn't have "celiac" doesn't mean that you don't have an intolerance by any means. With an intolerance you just need to find the amount of gluten you can ingest without symptoms or don't eat it all ......but if you do eat it it won't damage your intestines like if you had celiac. I would see if they tested you for the gene.
  5. I forgot to ask my Dr. about this on Monday............ Do some of you get the feeling in your arms and hands like they are falling asleep...the pins and needles feeling? I had this start a couple of months ago and it is horrible. I also seem to have a very weak grip....as in it is very hard/painful to try to hold a blow dryer and blow out my hair, and I have lately noticed that I can barely use a screw driver because my hand is weak and it becomes very painful. Even right now as I type my pinky and ring finger are tingling..........
  6. Just a heads up............ make sure they send you to the right place to get the slides sent down from MNgastro. I sent in the release to the fax they gave me and waited and waited and then finally got a letter saying that the glass slides were in a new building so I would have to call there and get them to send them. I still don't know why they didn't just do this for me!! I didn't need to send a new release or anything....the woman that I spoke to just agreed to send them, so I'm sure if the orignial records department person would have just called over there instead of writing me a letter with all the information (it was hand written) it would have all been a lot quicker.
  7. After yesterday I don't think I would ever think of going anywhere but the Mayo for help with anything serious. Dr. Murray was as great, if not better than everyone said. He listened to me and every little symptom I had. He explained things well and took the time to answer any questions that I had or that my husband had (and he always has a lot). They seemed really up-to-date and the lists of questionable foods (and there were quite few that you don't have to look for anymore on the labels) They took 14 vials of blood so i am pretty sure they ran all the tests they needed to I have to call him Thursday morning to get the results of the celiac specific ones. He also said that unless the DNA marker comes back that I don't carry the gene (because he said it impossible to have celiac disease then) I would be having a endoscopy. He said that the one that MN Gastro did was inadequete......... Let me know if you have anymore questions for me and I really hope you choose to go there!!!
  8. Actually, from the time I first called until my appointment it has only been 1 month! I was so suprised that I got a call back and an appointment so fast. The biggest delay was from MN Gastro in processing my request. It was a big ordeal which makes me not want to deal with them again...... I will let you know how it goes!!!
  9. Are they really not gluten-free? If you have read my previous post you know I am not 100% sure I have a gluten problem, but when I read this I just about fell over...... Every time I went to the doctor with my symptoms they would ask "have you tried tums" and I would always say "yes, but I swear it makes it worse" and then they would look at me like I was nuts. If Tums really do have Gluten in them I am feeling more confident by the minute!!!!! Thank you for posting this!!!
  10. I had previously went to MNGastro in Maplewood and the doctor there didn't do any blood test and just recommended and endoscopy. After the endoscopy the doctor said it looked like celiac disease (this was the first I had ever heard of celiac). I got a letter saying that they didn't find any cancer and everything was fine. I still went ahead with the gluten-free diet to see how I would feel and I felt 10x better, but not REALLY having a diagnosis was bothering me. I called down to the Mayo to see if I could see a doctor down there but the woman I talked to said they didn't usually treat you unless you were referred or had a diagnosis of celiac, but if I sent down my glass slide biopsy from the endoscopy she would see if a doctor would take a second look..............so........I got a call last Monday saying that the doctor would be happy to see me this upcoming Monday and they have set up an appointment for blood tests (a bunch she said, and she said she was suprised no one did a blood test before doing the endoscopy), and appointment for meeting with Dr. Murray, an appointment with the dietician and he also was thinking of having me have a bone density test done. Now I am wondering if he saw something on the biopsies that the other doctor missed or if he is just willing to see me based on my other symptoms? I am wondering what to expect from him as I am very nervous with doctors as so many of them have already looked at me like I am crazy when I have tried to find a reason for all my GI problems. Does anyone know if Dr. Murray is nice?? Has anyone had a similar experience with having someone take a 2nd look at the biopsy results?? I am just very confused, anxious, nervous and excited right now that any feedback would help
  11. I had previously went to MNGastro in Maplewood and the doctor there didn't do any blood test and just recommended and endoscopy. After the endoscopy the doctor said it looked like celiac disease (this was the first I had ever heard of celiac). I got a letter saying that they didn't find any cancer and everything was fine. I still went ahead with the gluten-free diet to see how I would feel and I felt 10x better, but not REALLY having a diagnosis was bothering me. I called down to the Mayo to see if I could see a doctor down there but the woman I talked to said they didn't usually treat you unless you were referred or had a diagnosis of celiac, but if I sent down my glass slide biopsy from the endoscopy she would see if a doctor would take a second look..............so........I got a call last Monday saying that the doctor would be happy to see me this upcoming Monday and they have set up an appointment for blood tests (a bunch she said, and she said she was suprised no one did a blood test before doing the endoscopy), and appointment for meeting with Dr. Murray, an appointment with the dietician and he also was thinking of having me have a bone density test done. Now I am wondering if he saw something on the biopsies that the other doctor missed or if he is just willing to see me based on my other symptoms? I am wondering what to expect from him as I am very nervous with doctors as so many of them have already looked at me like I am crazy when I have tried to find a reason for all my GI problems. Does anyone know if Dr. Murray is nice?? Has anyone had a similar experience with having someone take a 2nd look at the biopsy results?? I am just very confused, anxious, nervous and excited right now that any feedback would help
  12. Has anyone ever had their insurance cover their enterolab costs? I was just wondering if any body has had it covered or knows which insurances cover it. I really want to get it done, but to me it is a large sum of money.... Thanks so much!
  13. I just picked up Creamy Protobello Mushroom Soup by Imagine and it says on the back that it can be used in any recipe that calls for cream of mushroom soup. I was going to try it tonight and see how it worked......I can let you know
  14. As a daycare provider myself I know that here in MN we can/should provide meals that fit with your child as long as he has a doctor's statement explaining why. If you don't have that then we legally cannot feed them different foods. I have had lots of different diets come through here and I have either provided it myself or had parents bring their own meals and snacks. It is somewhat easier to me to have the parents bring in the food so I don't have to worry about making a mistake....which can and will probably happen when there are so many kids involved. Stress how sick your daughter will get if she eats any thing with gluten and that will most likely help ensure that she doesn't get it because your daycare will probably not want to deal with any more poops or pukes than they have to.
  15. Thanks so much! It really does help to hear from other people that have gone through the same thing with the same questions and my DH is tired of hearing about my poop this week I think I am just happy only going 1x a day no matter what it looks like!!!!!!!