This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
This is for everyone who took the time to post, and this above post is a great way to end. Thank you all so much for your replies. I have removed almost all gluten foods in the house - there are none that entice my son. No crackers, no snacks of any kind. Dh agrees that this is a good move. He goes along with my strictness, but tells me calm down when I point out possible moments of cross-contamination (ie. baking gluten and gluten-free pizza buns on the same cookie sheet). He hasn't yet accepted the seriousness of it, but I'm working on it. We've been gluten-free for 3 years now and he has been great at making gluten-free food when he does cook, so that's good. There's still room to go. As for my son, I love the idea of putting him in charge of dinner one night! There are so many other excellent suggestions that were made in this thread to try to make this work better in our house and I'm going to mull them all over and make a plan. Thank you! Thank you!
We've know he has celiac disease since he was 5.5. He and I both have it and we've both been gluten-free since. The problem is that he has 2 younger brother who don't have it and a foodie husband who can't fathom making our house gluten-free. Another problem is that my son's reactions to eating gluten are minimal... stomach ache and soft stools at the most.
So, I've noticed lately that he's been sneaking gluten foods like Ritz crackers and granola bars, other crackers, etc. I don't know what to do. He knows generally about how celiac disease works and why he's not supposed to have gluten, but without the harsh consequence of a nasty reaction, I'm at a loss of how to help him stay motivated to remain gluten-free.
I try as best as I can to have good foods in the house for him, but I admit there are times when his options are few.
I may be taking the family to Kampala next year for a few months. This includes myself and my oldest son (who will be 9 by then) who have celiac disease. We don't yet know about our baby who is 9mos, but showing no signs.
I'm wondering if any has been there. From what I've read, the food sounds incredibly gluten-free, but I'm wondering if there are major concerns about cross-contamination and/or not being clear about ingredients.
And, if you've spent time in Kampala where did you stay and what did you think of it?
DS (almost 6) has so far lost his two front bottom teeth. The new teeth that have come in are yellow. His baby teeth are all healthy looking and he's never had a cavity. I suspect they're yellow due to celiac disease. He was only diagnosed late August. So, will all his big teeth be yellow?!? poor guy. Do we go see the gastroentologist about this or the dentist? Is there anything we can do to get them whiter or is he condemned to having yellow teeth?
This morning on the walk to school ds had an awful foot cramp. Could this be a symptom of being glutened? He's had leg and foot cramps before but I never tracked them because I never thought they could be related, but now I'm wondering.
That's a great idea, although I highly doubt he's go. I had to really force him to go to the gastroentologist's. But, it's certainly worth a try. I know the Celiac Assoc of Canada has a Vancouver chapter (where we live), so I'll contact them.
I took ds to a football game this weekend, actually
But, I brought our own popcorn. When the security guard checked my backpack I explained that ds and I both have celiac disease which means we have to bring our own food wherever we go. As soon as I said that he was fine with all the snacks I brought.
You state the potential consequences so clearly - thank you. I'm so sorry your children have had such a rough time with this. I sure do count us lucky for getting a fairly early diagnosis, although ds had symptoms for years.
Dh gets that gluten is bad for ds, but it's those little bits he can't comprehend, so you've really made it clear what harm just a lilttle bit can do.
I can't thank you all enough for your ideas and support. I will make a list of the awful things that can happen to ds and show it to ds. i will keep 'party foods' in the freezer, too. Dh has to some degree embraced the gluten-free diet for ds... i bought the cookbook "incredible edible gluten-free food for kids" and dh has been making lots of food from it.
I'm really beginning to think there are respect issues at play, too. Tonight, for example, he was letting ds eat chips that I had told him more than once already are not on the manufacturer's gluten-free list, meaning they can potentially contain gluten. I told him again when I saw this and he said there was no gluten source in the ingredients. But, I had a reaction eating them a month ago (I'm a self-diagnosed celiac and went gluten-free with ds) and consequently contacted the manufacturer. argh!
Anywho, enough ranting. Thank you all. I know I can't be passive about this issue.
Thank you. I did actually send them with a baked treat and snacks. No replacement for the pizza, though. I definitely agree that making ds not feel left out is best and 'should' help dh not feel like he's depriving ds. It is more work, but it is important. I will be more diligent with this. The freezer cupcakes is a really good idea. Thank you!
Just yesterday he took him to a birthday party and let our son eat the meat and cheese off the pizza. he also let him eat the ice cream cake because the only thing containing 'wheat' was in the middle layer, which him made our son eat around. Beside cross contamination, there could have well been other gluten sources than 'wheat'. After dh went out last night, our son was rolling in his bed with horrible stomach pains.
Thing is, dh knows this! We all went to the gastroentologist together who said very explicitly that we should even consider getting separate toasters. I've bought the gluten-free for dummies book, but he won't look through it. I've told him about how ds suffers when he's glutened, but he feeels that some stomach aches aren't going to kill him, so it's not that big of a deal
What can I do to make him understand the importance of zero tolerance about gluten? Any suggestions would be greatly appreciated.
I don't know if it's been mentioned, but we struggled, too, and just last week we bought the book "Incredible Edible Gluten-Free Food for Kids" (http://www.amazon .com/Incredible-Edible-Gluten-Free-Food-Kids/dp/1890627283). It IS incredible. EVery recipe we've tried so far has been a hit with everyone (including my gluten-eating husband who used to scorn gluten-free food).
I highly recommend that you get it. It's well worth it.