mom2sidkid replied to HeatherMelissa's topic in Celiac Disease - Parents of Kids or Babies With Celiac DiseaseHi! I don't post frequently at all, mostly lurk, but I had to reply. I have a 5 yo dd who is celiac, SID (orDSI,which ever you prefer), and ADD. Have you spoken to an OT about an oral brushing program? It will help. It will take time, but it will help. www.missroben.com sells a mock gold fish cracker mix, maybe it would be worth a try. Believe me, I know how insensitive people can be.
Hello everyone! My 5 y.o dd was just diagnosed 2 weeks ago, and my 14 m.o. dd just had blood work done today. My 5y.o. presented with very slow weight gain (she weighs in at 37 pounds), very-very dry skin, ADD (dx'ed the same day as the blood resluts came in 2 weeks ago!) frequent mood swings, poor school preformance, and craving carbs. She also has a disorder called Sensory Intergration Dysfunction. (hense mom2SIDkid). We removed gluten at the very time of confirmed blood test. (Dr. did not do a biopsy at this time) It's been a little rough going to say the least. BUT, My dd's eye have been shining much brighter, dark circles are definatly less, and she is talking SO much!!! Having a few problems finding good things to eat, so much of her past diet was bread type products, and most of what she will eat now is loaded with sugar. (have not found decent gluten-free bread or bread mix). Because of her sensory issues there are things that she completely avoids eating because of how it feels. (in her mouth or hands) I am glad to meet all of you, and to know that I am not alone in helping my dd (possibly dd's!)