Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

  • Announcements

    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


Advanced Members
  • Content count

  • Joined

  • Last visited

Community Reputation

0 Neutral

1 Follower

About hathor

  • Rank
    Advanced Community Member
  1. I just read the labels. The two products I had been using that contained wheat said quite clearly on the label that they do.
  2. OK, if you still have the package , can you tell me if these wonders are egg and soy free as well? Dare I hope ...
  3. And you know this, how? Not trying to be argumentative. But I haven't seen anything to indicate that China has changed how it makes citric acid. Or do you know of studies that show that no gluten makes it through to the final product? Is there some source you can point me to that explains, well, we used to think this, but these tests have been run or whatever, and it isn't a problem? If it isn't a problem, no matter what the source, that's great with me
  4. Regular allergy tests won't show a problem with casein, if one exists. You can tell this by dietary test and/or by testing by folks such as Enterolab. The very lowest casein content is in ghee, which is so clarified that no protein remains. I react to butter. I disagree with gfpaperdoll's conclusions about a healthy diet BTW But this really isn't the place to argue about that. Anyone who wants to can do their own research and draw their own conclusions. (I would direct interested people to McDougall, Ornish, Esselstyn, Barnard, Novick, Fuhrman, Shintari, etc.) We do agree about some things, though, like milk, trans fats, and refined carbs.
  5. It does take time. Unfortunately, there are no definite timetables. It depends on the individual. I haven't heard anyone who has healed completely in three weeks, though, so hang in there. (Maybe the folks who heal in three weeks don't hang out on this board ) I assume you have a good list of ingredients that are safe, unsafe or need to be investigated further? And you know about how to avoid cross-contamination at home? Dairy and soy seem to be problems for many. If your progress seems to stop, try eliminating them. Dairy seems to be the most common, second intolerance on this board. If you don't want to make any changes in your diet yet, you might start up a food/symptom diary and see if you feel worse after eating particular foods. Unfortunately, people may react to any number of other foods; there is no one size fits all. A good multivitamin/mineral supplement would be useful. If you have malabsorption issues, you aren't getting enough nutrients out of what you are eating, and won't until you heal. I've read that magnesium is a particular need among those new to the diet. I also recommend a good probiotic to help your gut develop a healthy set of bacteria. Some people go through withdrawal from gluten, also. It may be that your symptoms are simply that and will fade on their own.
  6. Of course it is ultimately your decision. But if it were me, I don't think it would be worth getting tested. Six months of feeling sick and doing damage to your body just to, what? Tell you what you already know? If you get a positive result, you will just do what your body is telling you to do anyway. If you get a negative result, it could just be that you couldn't bring yourself to eat enough gluten, the right sites weren't sampled, or you just haven't developed the damage yet. Would a negative result cause you to eat the stuff that makes you feel sick? You have the blood test and your body's response to a gluten-free diet and a gluten challenge. That seems to be enough. I wouldn't go through torment just to satisfy some doctor. Any test or procedure is really up to you. For the constipation you are experiencing now, it may just take time to resolve. But you can help things along by taking magnesium, a fiber supplement, or senna tea. Also, a number of people who can't tolerate gluten have problems with casein (a protein in milk) as well. Casein is very binding for some. If you continue to have problems, I would suggest going casein-free and see if that improves things for you.
  7. I have heard that some citric acid manufactured outside the country may be made from wheat. Googling just now, I found this reported more than once. Here is one site: The stuff made in the US is safe, according to everything I've read. Someone who researched this once (she found herself reacting to imported coconut milk, with the only other ingredient being citric acid) told me it is the citric acid made in China that is made from wheat, or may be made from wheat. This site indicates this to be the case: I don't obviously know the truth of the matter. I just thought I should mention the difference of opinion.
  8. Guys

    Heck, I can readily get my Tinkyada to turn into slime if I'm not careful. I guess it takes talent I have to keep it below a rolling boil, cook for less time than they ever say, testing frequently, and rinse. Then if I'm lucky, it's edible. I think people have different tastes in how they like their pasta. My favorite gluten-free pasta is Bionaturae, but I had to stop it because it contains soy. I like its texture better. But I've heard people say they think it is too firm. Hey, to me, that's al dente! Glutino rice pasta seems to be less trickier. Unfortunately, it is much harder to find. BTW I'm not the only one to have problems with Tinkyada. I've had this discussion before and seen quite different points of view expressed. So I'm not the only one who can't stand the stuff when it is cooked according to their directions.
  9. One of my standbys is to go to a tapas restaurant. They seem to use olive oil and not butter. When I asked about soy at my favorite place, they sniffed, "We have no soy on the premises!" OK ... They even have a gluten-free menu. Just be careful about gazpacho -- it frequently has gluten. Another favorite of mine is Indian. You just need to make sure that what you order doesn't have cheese, yogurt, etc. in it (and you have to skip the yummy bread). Ghee is made from dairy, but it is so clarified that no casein is left in it.
  10. I Don't Know

    I was under the impression that the more frequent urination is a symptom you recently developed. Did I misunderstand? Did you have this (and the dry itchy skin, the fatigue, and the tingling in your extremities) when you last tested your blood sugar? Please do test (and make sure that your test hasn't expired or something), and at different times in the day. If only to make sure that you don't have a blood sugar problem ... My niece's husband had these four symptoms (I never heard about if there was anything gastro going on) and diabetes turned out to be his problem. I wasn't sure when I posted before, so I just checked. One can get defecation issues with diabetes, too. There is also a link between diabetes and celiac disease -- I don't know if one can cause the other or they develop at the same time. I'm willing to bet that if you go to the doctor and tell him you suddenly have to pee more (the word suddenly was yours, as I recall), the first thing that will be checked is your blood sugar. I'm not saying it can't be something else, or a combination of things. Easy enough to discard this as a possibility, though.
  11. Why Am I Not Getting Better

    Wow, I'd love it if I could take only 250 mg of magnesium and it acted in 8 hours. Unfortunately, I need much more over the course of a day and it takes longer. Just to note that there are individual variations ...
  12. I Don't Know

    I really feel for you, but I don't know what to advise beyond sticking to things that don't make you sick (or make you the least sick anyway). Are you taking any medicines or supplements you might be reacting to? Have you tried probiotics? If you haven't already, I strongly urge you to have your blood sugar checked. I don't know if this can affect your BMs. But a number of your symptoms (frequent urination, dry itchy skin, weakness, tingling in your extremities) are symptoms of diabetes.
  13. I try to avoid a lot of artificial ingredients. It does seem to help. If it isn't clear in this thread, it is possible to have casein in things OTHER than dairy. You have to read labels and be on the lookout for anything with casein or caseinate listed among the ingredients. Manufacturers like to throw this into soy and rice cheeses, for instance.
  14. Goat's milk has very little of the type of casein people usually react to. I don't know why you didn't react to yogurt, although some have reported that they do better with fermented products. I didn't always react to dairy. It was a problem that increased over time. I am surprised that avocado is on your list. I thought it was a fairly common allergen/intolerance. At the bottom of this link, there is a beginning list for one elimination diet. You might try adding items on this list: And skipping the avocado ... (I'm not allergic or intolerant to avocado, but much of anything this high fat makes me pretty bloated and gassy.) But I don't think it a great idea to be adding items if you are still having symptoms, though. Do you happen to have anything with your meals you haven't mentioned? For instance, what do you drink? And how have you been seasoning what you have been eating? Are you eating brown or white rice (people sometimes have trouble with one kind, but not the other ... it seems to go both ways). Supplements or medicines you take? Sugarfree gum (artificial sweeteners are another thing that blow me up like a balloon)?
  15. Have you seen if you can get a signed doctor's note from Enterolab?