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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

finally diagnosed

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About finally diagnosed

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    Advanced Community Member
  • Birthday 02/02/1968

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  • Gender
    Female
  • Location
    massachusetts
  1. Employment Issues, Celiacs And The Ada, Any Ideas

    The last thing I am trying to do is trivialize anything regarding celiac disease. I really do feel for smiley eyes just as much as I feel for anyone else who has this. I understand this a place to vent and venting is what I did. I did mention that in my response many times. And when I respond to as the "person always complaining at work" that was me for the longest time and I figured out how to get around it, and it still isn't easy, but some things aren't. My response for bringing your own lunch to a luncheon was for inhouse related stuff. As for going to white linen restaurants, I understand you have to play a part, and if your employer wants you to be there then maybe you can make a suggestion of another white linen place to go to that can accomadate you. I am not kicking anyone in the teeth here as one might suggest, but it does say let the comments start and I was putting in a comment. I didn't realize my comment needed to match. I like this site for many reasons for the heads up for the foods to eat, restaurants etc, but when someone response looks derogatory everyone jumps. Maybe someday there will be safer lunches in our schools, but I don't see it happening anytime fast, we still have school lunches that contain p'nuts and we only offer p'nut free tables at lunch for the kids who have allergies. Children adapt to most things and I think it is up to us a parents to teach them now, when they are young that we can't always do what everyone is doing, but we can have the same foods and go to the same places but with a little extra caution. We can't use SS for everything, and I mean that by..... eventually we aren't going to have any SS, the way the government is playing with everyones, 401's, retirement plans being canceled, etc. Watch the news they say in about 20 years if things keep up the way they are going, we won't have anything to retire with because we will be broke, (and not due to celiac people using it or disabled person who use it) not by any of our faults except for the people in washington who control it all. Basically if something isn't working for you, then fix it and if you can't then maybe you can try to get your company to change, and if the situation is so extreme that you are sick from eating in the same room than maybe that isn't the right company for you. Employers are aware of the ADA rules and sometimes you just have to sight them to the right people, say for instance your supervisor and the cc the note to their supervisor and whoever else needs to get it, it is amazing how quick people will jump for you. No employer wants to be sited from the ADA. Don't forget I am a person with celiac disease as well, i am not a spouse or family member of someone who has it, I live with the same issues as everyone else. everyones problems are real and if you can't comment here on how you feel or how you view celiac or other issues than maybe this isn't the site for me.
  2. Employment Issues, Celiacs And The Ada, Any Ideas

    I am sorry if I am not understanding this correctly. I have had Celiac for 3 plus years now and I went on the link, I don't see anything about Celiac Disease. There is something there about immune disease. I am sorry for people if they are having a hard time at work regarding lunches, people touching their food etc. Gluten needs to be ingested for it to affect us. If you notice someone didn't wash a lunch counter or use a microwave without cleaning the spill, then either don't use it or bring a hot lunch in a thermos. I work for a hospital and we have meetings and they bring in food, I just always make sure I have something that I will bring in myself. Most of they food they bring in is loaded with fat anyway. You can always say no thank you I have my own lunch and eat it with them. If they are having a luncheon that I am aware of, I usually just have salad and bring something of my own. If there is a meeting in a restaurant or if I go out with friends I look at the menu ahead of time and if I have enough time I call the restaurant when they aren't busy to see if they can accomodate me. I don't want to be the one in the office constantly complaining. We don't have a peanut allergy , we will not go into anaphylatic shock from touching a piece of paper that someone else has touched. Just think how many times we touch money, how many hands have touched it, who knows how many people have eaten a sandwich or slice of pizza while touching that money. We always wash our hands after we touch money and wash our hands before we eat. I am sorry if this seems insensitive, but my mother is 68 in a wheelchair since she was 59 due to a stroke and a few other problems,(none celiac related) she gets up every day and never complains. The only thing she complains about is not being able to go back to work. I live in a state where they just cut jobs from the blind. How do you think these people feel, bad enough they get themselves to work via a bus or seeing eye dog, now they don't have a job on top of a disability. I bet most of them will go on and find another one, they make due every day of their lives and I hardly ever hear anyone of them saying "why can't I , Why won't they" I find it alot easier to ask for stuff from an employer when we are not upset. Sure it makes me really angry sometimes when I can't participate with stuff, but it is not their fault we have this disease and we need to be accomodating as well. The more you tell people about it, or when they ask, they will learn about it. Not everyone knows what Celiac disease is. We have a certain company that would bring us coffee and muffins once a week and the salesman noticed I never took a muffin and asked why and I explained, believe it or not his wife has Celiac and he never looked at it from that view. Now when they come, they also bring fresh cut fruit with their coffee and muffins. Please don't get me wrong I am not minimalizing Celiac. I too have many health issues relating to this dreaded stinky disease. Sadly the word is just learning about Celiac within the last couple of years and they are learning everyday. If you look on websites at restaurants you will see 8 out of 10 of them have gluten free menus, of if you call and speak with the chef or manager, they either will have heard about it and can accomodate you or you can teach them about it and they will learn too. Things don't happen overnight, this is not Television where a diagnosis is given between commercials and people are cured. This is real life and the "ignorant" people that we all talk about, even me are still learing about it. Just think if we didn't have it, how many times would we have heard the word celiac or looked for the words wheart, rye, barly, gluten etc. from our shampoo to our canned soups. There are alot of things we can't change and some we can, but the world they way it is right now with a recession and a war going on, people loosing their houses left and right, sometimes our big complaints seem trivial. I catch myself now before I complain about something because for one. I have shelter, I have food, I have a job and there are alot of families right now who don't have either. Good luck.
  3. Hi Darci, I had two of these done. It was the best thing I ever did. The first one lasted a year and then I had another 1/2 years later and I am lucky if I get my period every 5wks. And when it does come it last 3 days if that and very light. My sister had her ablation done in May and she can't be happier, like a new person. And believe it or not my oldest sister finally listened to us and she is having her ablation done this Friday. And they are both non-celiac. Good luck. it is so worth it. Esp we you know you are having no more children. Lorrie
  4. H.pylori

    Hi Lizard, I have had h-pylori and it isn't fun, so I feel for you pain. My symptoms were awful, raw upper GI pain, chest pain. Sometimes if I ate or drank something it was like acid in my stomach or chest. Lived on Pepto for years, pre celiac diagnosis. Went to my doc and he mentioned maybe h-pylori and I was like what else can I have because they never mentioned celiac. Well low and behold they did a blood test and my panel came back positive for the h-pylori, (at the time, I did not know I had celiac and neither did they, I was just diagnosed 3 years this December). I took the prev-pack of antibiotics and within a couple of weeks I was better. Ironically my sister who always thought of me as a hypochondriac pre celiac was just diagnosed about 3 moths ago with h-pylori. If you can't get in with your GI sooner, maybe your primary doc can order your the blood test for h-pylori. Good Luck
  5. There can be many reasons as to why you have prolonged periods and bleeding every 2-3 wks. For instance, are you taking alot of asprin, or medication that has asprin or asprin product in it? When you mention 2-3 weeks a month are they full periods or is it blood when you wipe. Sorry to sound graphic. Sometimes people can have little hemorrhoids that can bleed while having a bowel movement. They usually don't know they have them and they can bleed with this. You mentioned that you are 44, have you had a hystoscopy(very non-invasive done in office of gyn) of your uterus to see if you have alot of "fluff" in your endometrium. This usually is a problem with our age, we tend to have "fluff" and the blood during our periods sits in the fluff and sometimes we get a full period and then we have spotting which sometimes is brown and other times tinged red and pink. I am glad that you are going to your GYN, but I would ask for a full panel for your blood work. ie: thyroid, iron, b12 etc. Finger sticks aren't always (and I say, aren't always, before someone sends me a bad email) accurate. They really can't do alot of blood tests from a drop of blood. There are many possible reasons, some as simple as a little polyp (not a cancer) on your cervix that is there and they need to look visually to see it, and that little polyp can cause alot of havoc on someone with all this break through bleeding. Also, if you are peri-menopausal I hear that it gets worse before it gets better, meaning irregular periods. But maybe someone who is a verteran of menopause can clue you in to that. Good luck and I hope everything turns out good for you. Be cautious as to what you look up on the internet regarding symptoms they can scare they heck out of you.
  6. I use the Alouette brie that comes in the plastic container. It is gluten free.
  7. Paparazzi And Gluten-free Pasta?

    Hi, I had the pasta at the Burlington, Ma site and it was awful. The kitchen totally overcooked it, to the point that it fell apart. I was supposed to be spiral pasta and it came broken up in little pieces. My waiter at first didn't have a clue he suggested the Pompodoro (spelled wrong) sauce and luckily for me I had just seen a cooking show on that and it contains flour. I questioned him and he looked a little aggravated and went in the kitchen to double check. I was right. So, I just wanted the pasta and red sauce and instead I got Pasta (all broken up and over cooked) with chunks of fresh tomato on it, with garlic. I could have made this at home for so much less then what they charged. He even brought me over a nice piece of their bread that they serve and my husband just said. "she can't eat the bread that is why she ordered gluten free pasta". Needless to say I was very disappointed and I hardly touched it, and the waiter not once questioned why. When I usually go there I get chicken and veggies and have never had a problem. I will leave the pasta for a home cooked meal. I will say that the Paparazzi rest in Concord Ma was excellent about the gluten thing. The manager comes over to your table and reassures you that the salad will be made in a seperate clean bowl and the your food will be prepared in a clean pan. They got the gluten thing down it Concord Ma. I am hoping that you will have a better experience than I had. Just becuase it was one bad night doesn't mean everywhere else is the same. Good Luck.
  8. Hi Mrs. JohnnyG , I hate to sound like "debbie downer" you say you have been tested for everything in the world. Have you and your husband ever had genetic testing done? Sometimes there are a few genes that mix and cause fetus to sponateously abort. I knew a women years ago who carried a gene that was for Tay-Sachs disease and every pregnancy she had that was a boy she miscarried. She now has a lovely girl lauren who is 17 or 18. I AM NOT AT ALL SAYING THIS IS IT.... (SO PLEASE NO BAD E-MAILS BACK) I am just wondering if you went the genetic route. Please don't beat yourself up about this. Especially about eating the carrot cake. When you do conceive, does the doctor send you for blood work weekly or bi-weekly to see if your numbers are rising fast? When I miscarried the first time, I thought everything was great, going fine and then one day at a visit for 12wk check the ultrasound person told me to go home and the doctor would call. The fetus was no longer viable. They could have been a little nicer but sometimes you get so angry at them. My third pregnancy she checked me weekly for the first trimester to make sure my numbers were rising accordingly. It was hell waiting for the results because you kind of get in a funk that you don't want to celebrate the pregnancy until you know it is good. I wish you all the luck in the world with your family goals and health.
  9. How To Do This Without Feeling Like A Freak

    I do feel sorry for you it is very frustrating at first. My parents are still getting the hang of it and it has been almost 3 years. I will go there for dinner and they make every effort to keep things clean, but if she makes her famous salad dressing and uses her mayo she doesn't understand that the jar has already been contaminated from when they made sandwiches prior. I think she is finally getting it. Sometimes she will make something and say but look it has whole wheat in it. Then I give her the look and she stops. At first, I would say no to everything and I would question cross contamination and she would tell me that I am going way over board with this and I shouldn't talk about me getting sick if front of my daughter. She would say its not going to kill you if you eat a little bit. Finally I went on line and printed a bunch of stuff regarding celiac, cross contaimination and boy she really has turned a page. Every now and then she has a slip. But she is getting better. When she makes pasta sauce now she makes sure she doesn't use the wooden spoon to stir it and lets me bring my own pasta down already cooked. I am sure you can handle your mother in law, there is a nice way to be mean and get your point across if you catch my drift. But where your son is going away to college it is not the right time. This is a very stressful, emotional time for you and the littlest things sometimes can just set you off. I was in your position 4 years ago and its does get easier. Good Luck Lorrie
  10. Communion Wafers

    I was told of the <.01% gluten wafers at a local church where I live, not the church I attend. When I spoke to my specialist about the low gluten host he informed me it was a no, that I was still getting a certain amount of gluten. I too feel left out when my whole family stands up and receives the host. I sit there and feel as if people are wondering why I don't recieve, but then again it is my health that is important and I know I am doing the right thing. It is a real struggle I feel for some people to decide what to do. But,(this is my opinion now) why would you want to do any more damage that has been done. God knows you are there (regardless of your religion) and that hopefully should be enough. Good Luck. Lorrie
  11. Females....only.

    Give it time it will happen. Everyone starts thier period at different ages. If you are very athletic sometimes this prolongs it. But as long as you are healthy and things are starting to develop let nature take it's course. But as a precaution I would put something in my backpack for when school starts just in case it happens then. Good Luck.
  12. Really Stinky Breath?

    I'm not sure about the HORRID breath from Celiac. (still learning after 1 1/2 year diag) But I can say that if he isn't brushing his tongue or flossing that can do it for sure. My 8 year old can brush her teeth but she can have wicked breath after. I have her stick out her tongue and it usually coated white and that is plaque build up. Hopefully this little tid bit helps. Good Luck
  13. Lip Product Survey!

    I use Jane Iredale and Burts Bee's.
  14. Tryglycerides Way Too High

    thanks everyone. i suppose i do eat alot of carbs. once i find a bread that is decent i overdue it. i just switched my rice to brown rice also. i also did have wine the night before i did the test so hopefully this is the culprit. as for the diabetes test i am already hypoglycemic so i don't know if one effects the other. i will definetly try no carbs and hopefully this will work. i refuse to go on lipitor. thank you all
  15. hi folks. i don't usually post so i hope this goes where it should. does anyone have problems with their tryglycerides being high. my good and bad cholesterol are good except my tryglycerices are 430! i don't eat fried foods, i take multivitamins which are totally gluten free. someone had mentioned maybe too much starch. any ides would be great. or advice to lower it. thanks