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This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Greengal added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsQuestion About Biopsy DiagnosisHello all,
I'm hoping someone here can clear something up for me. I've read that an endoscopy with biopsy of the small bowel is the gold standard for diagnosing Celiac. I've had two blood tests which both came back negative, and so I suggested the endoscopy to my doctor because so far they haven't come up with any other ideas and my symptoms are consistent with Celiac, and he said it wasn't necessary because when they did the colonoscopy, they got a sample from the small bowel. Does this sound right? I thought it had to be from the upper part of the small bowel which I doubt they got via colonoscopy.
Any info would be great,
- 4 replies
- 1,276 views
Greengal added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsBlood Test Negative, Now What?Hello,
I had the blood tests done for Celiac and my doc told me that it was negative, although he didn't give me the specific results (levels etc) as he didn't have them.
My question is, is it possible to have a completely negative blood result and still have Celiac?
I've been going through the ringer since January being sick with tummy trouble. My main problems are diarrhea, abdominal pain and cramping, and excess gas. I also have bad swelling in my calves and ankles and have lost about 40lbs in the last four months (without trying). I'm starting to get very frustrated because no one has been able to figure out what it is.
I've had a colonoscopy which didn't show anything, the celiac test, an upper GI (showed GERD and I'm being treated for that) and a laparoscopy (showed endometriosis). The doctor's think it's just IBS, but I am doubtful because my symptoms are so severe (I miss work usually at least once per week and constantly feel sick). Also, I've completely revamped my diet according to recommendations for IBS, tried a food diary, made huge lifestyle changes and tried a slew of medications, and nothing has made even the slightest difference.
The only other thing I can think of is that it may be gallbladder related, because I had an ultrasound that showed gallbladder abnormalities but I haven't been able to find a doctor to look at the results yet.
Any advice would be greatly appreciated, I don't want to feel like this anymore!
- 7 replies
- 1,945 views
Greengal added a topic in Celiac Disease - Related Disorders & ResearchIron DeficiencyHello all!
I'm wondering if many people here had/have problems with iron deficiency as a result of Celiac? I haven't been diagnosed yet (awaiting the results of bloodwork, have not had an endoscopy) but some regular blood work (CBC etc) found that my iron levels were very low, despite the fact that I take an iron supplement daily. To be fair, I haven't been eating very well because I've been feeling so sick, but what annoyed me is that no one bothered to be interested in why they were so low. I was just told to take a higher supplement and that was it. Can Celiac cause iron defiency?
- 12 replies
- 2,748 views
Greengal added a topic in Celiac Disease - Related Disorders & ResearchCeliac And Pancreatic Cancer?Does anyone know if Celiac can make you more susceptible to pancreatic cancer? I know that it can cause problems with the pancreas and make intestinal cancers more probable, but is there any research on pancreatic cancer specifically.
I'm asking because my mom died fairly young of pancreatic cancer, and I've been told by doctors that it may be hereditary and I should watch out and what not, and now I've been having problems and am in the process of being tested for Celiac, but am getting a lot of resistance and the common "you're not thin enough to be a celiac" responses from doctors.
Obviously, if there is a potential link between pancreatic cancer and Celiac it would be very advantageous for me to find this out, especially since no one seems to be taking me seriously. So, any information would be much appreciated.
- 19 replies
- 22,409 views
Greengal added a topic in Celiac Disease - DoctorsDoes Anyone Know Of Any Good Doctors In Ontario?Hey All,
I'm looking for any doctors in Ontario, Canada who are really good at handling Celiac? Any part of southwestern Ontario (toronto, london etc) would be fine.
Does anyone know of any?
- 0 replies
- 1,019 views
Greengal added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsEdema And Celiac?Hello everyone,
I'm getting very frustrated as I research the information on this website because it seems like I have a lot of the symptoms of celiac yet my doctors keep saying that it's likely not celiac because I'm "not thin enough." I've lost about 15 lbs in the last month and a bit (without trying) but I'm still slightly overweight for my build (maybe 10lbs or so) and they say becuase of this is likely not celiac.
Anyways, I noticed that edema is a symptom and this really intrigues me, because for as long as I can remember I've had severe edema in my calves and ankles. No doctor has been able to figure it out, they just get really surprised when I show them my legs and say I must have been built like that. I've even had a doctor say I look like I have the legs of a 300 lb woman (I weigh about 150) but no one does anything about it.
What about celiac causes edema? Is it a constant edema because my swelling has been there for at least 5 years. Also, I have a persistent reddening of the face and neck, especially when I get slightly agitated or stressed, I'll get really red and blotchy, not just "blushing" but really severe.
These are on top of my other symptoms which are pretty much chornic diarrhea and abdominal pain.
Does this sound likely to be celiac? I had to push really hard for the blood work so I'm worried about what to do if it comes back negative? Should I push for an endoscopy or leave well enough alone? The docs keep saying that it's IBS, and I've been following a diet recommended for IBS (no red meat, dairy, caffeine, carbonated beverages, low fat) for a month and a half with zero improvement, which is part of the reason I think it may be celiac.
Sorry this is so long, I'm just getting desperate to figure out what's going on.
- 6 replies
- 5,135 views
Greengal added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsDon't Know What To Tell The Doctor....help Please?Hello,
I've been having stomach problems for awhile now and am seeing a GI specialist who didn't feel it was warranted to test me for celiac. Based on everything I'm reading, I disagree, but I wonder if maybe I left out some important details when discussing things with the doctor. He was very rushed and didn't give me much time, so I just discussed the worst of the symptoms:
-bad diarrhea and occasional constipation
-bloating and severe gas
I've had other problems as of late, such as severe headaches, hoarseness (especially when waking which I've never had before), muscle aches and others which I didn't think we're relevant to mention to the doctor. Also, I was reading about the skin condition associated with Celiac (so sorry I forgot it's name) and I realized that I have something like that as well. I always assumed they were just pimples, but I always thought it was strange that the bumps I get are almost always bilateral! And I never thought to mention that to the doctor.
Anyways, when I brought up celiac, he said that I would be thinner if I had it. I could be wrong, but I didn't think everyone with Celiac got really thin? I've lost about 15 pounds in the last month and a half without effort, but I'm still slightly overweight...however, I gained the weight a year and a half ago when I started the drug Paxil, so I've not always been this heavy.
Anyways, I went back to my regular doctor and said I really wanted the Celiac test done, and he's doing it even though the GI wouldn't...what does everyone here think? Is that a waste of time? Is there other things I should be telling the doctor?
Sorry this post was so long, I"m just very frustrated.
- 4 replies
- 1,147 views