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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About SUZ42

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    • Birthday 01/26/1965

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    • Gender Female
    • Interests reading, watching movies, my dogs, people watching, theme parks, traveling, beaches
    • Location Florida

    SUZ42's Activity

    1. SUZ42 added a topic in Gluten-Free Recipes - Baking & Cooking Tips   

      Pumpkin Pie Crust
      I just wanted to share what I did for a pumpkin pie crust.

      I crushed a bag of gluten free ginger snaps and mixed it with melted butter. I spread it in the pie plate and otherwise did the pie filling as always. I use the recipe on the Libby's pumpkin can. I also have just made a "pie" with the filling, no crust. I cook it as directed on the can.

      Everyone in the family said they actually preferred the cookie crust to the regular pie crust, and requested it this way for Thanksgiving this year.
      • 7 replies
    2. SUZ42 added a topic in Gluten-Free Restaurants   

      Cocoa Beach And St Augustine Florida
      Does anyone have restaurant suggestions for Cocoa Beach and St. Augustine Florida?
      Thanks in advance
      • 2 replies
    3. SUZ42 added a topic in Celiac Disease - Coping With   

      Joints Ache!
      My hip has been hurting (almost constant sharp pain radiating to knee) for about a month. I have a bad back so it does hurt off and on for years. But today most of my joints ache/weak. Shoulders, elbows, wrists, ankles, neck. Especially my wrists. Now I'm wondering if the hip is related.

      These aches are new. I made a huge mistake and was most likely glutened. But I had no immediate reaction.

      It has been 3 and 4 days ago that I was out of town and ate at unfamiliar restaraunts. I am wondering if anyone else has the joint aches and weakness from eating gluten? Or is it unrelated and I have a "wonderful new problem" to think about?

      • 1 reply
    4. SUZ42 added a topic in Gluten-Free Foods, Products, Shopping & Medications   

      Watson Pharmaceuticals
      Just a heads up about a drug manufacturer.
      Watson Pharmaceuticals is not a gluten free facility! I spoke with a pharmacist there this morning and she said "we don't test any of our products for gluten." I take a generic fiorinal that is manufactured by them. I have been getting a reaction similar to a gluten reaction from other sources - increased heart rate/heart pounding. I will no longer take them, since they don't know what's in the pill.
      • 3 replies
    5. SUZ42 added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)   

      How Long Does Being "glutened" Last?
      OK, I believe I glutened or caseined myself a week ago. I am still sick! How long can this last???
      • 4 replies
    6. SUZ42 added a post in a topic How Fast Can A Reaction Occur After Consuming Gluten?   

      I also get mouth, or should I say tongue, irritations. I have a geographic tongue and when I get a trace amount of gluten - such as second hand beer from kissing, my tongue gets circles and ridges and it is tender. This is always my first and sometimes only sympton of being glutened.
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    7. SUZ42 added a topic in Celiac Disease - Coping With   

      Casein Intolerant And I Ate Cottage Cheese
      I am casein intolerant and have gone very light on the casein, but have not given it up completely. Last March I went gluten free and casein light. For the first time since March I ate cottage cheese. Only 1/2 cup. Within minutes my tongue was sore (geographic tongue) and today I have undereye bags, hand is numb, lump in throat, chest/back pressure, rapid pounding heart beat and cramping stomach (not intestines). Very same symptoms as when I was gluttened! Could the cottage cheese have done this? The only other possibility would be the egg drop soup (I gave in to a craving) I ate from the chinese place the day before yesterday. But what could that have in it? Anyone have ideas about casein symptoms? Are they the same as Gluten symptoms?
      • 6 replies
    8. SUZ42 added a post in a topic Ordering Gf Beer   

      The Anhieser Bush Redbridge beer is gluten free. It is sorghum based. It actually tastes good. I don't know if bars/rest carry it, but it is at my local ABC package store and it doesn't cost anymore than the other beers.
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    9. SUZ42 added a post in a topic Is It Easy To Get Someone That Actually Understands Us?   

      I fell extremely lucky in finding my current partner (the first since being diagnosed and hopefully the last ). She found out on our first date and has been very thoughtful ever since. When she cooks us dinner she really goes the extra mile looking for foods/recipes that don't have any gluten. And at resteraunts she is more concerned than I am, actually. She's very understanding. She knew immediately when I said I couldn't eat a breaded mozerella stick on our first date that I had a gluten intolerance problem. She recently had a friend diagnosed with Celiac, so maybe that's why, but it impressed me. We also went to the beach with people I don't know and they also new about gluten intolerance and they went out of their way to have safe foods in the condo for me to eat. A new coworker was going to make an eggplant dish, but didn't because she knew I wouldn't be able to eat it. I think more and more people are learning about this and I hope it will only get easier for us to meet folks who are understanding - at work and in social relationships.
      • 0
    10. SUZ42 added a topic in Celiac Disease - Related Disorders & Research   

      Gi And Yeast Infections
      I have been "fighting" a vaginal yeast infection for a little while now. Had my 2nd treatment on Monday. Could being glutened cause a vaginal candidiasis? I have been glutened twice accidently in August. And my new partner is a beer drinker. Without brushing teeth between beers and kissing, etc, could this be causing my problems? Any ideas??? I can't figure this out. I have only had a yeast infection one other time - years - ago!
      Thanks in advance for your ideas on this.
      • 1 reply
    11. SUZ42 added a post in a topic Stomach Pain & Nausea   

      Terrible stomach pains/cramps and incredible nausea were my most distressing physical symptoms. I would also litterally have to eat every 2 hours because of the intense hunger. Yet I lost weight. I had to tell the doc it is the actual stomach, not my intestines. When I would say stomach, the docs would automatically think I was talking about abdomen. I am glad to report that I am no longer having the stomach pain/nausea. And I am also no longer starving to death. If that, alone, was all that was "fixed" by my going gluten free it would be enough to keep me on this diet for life. Anyway, it has been 4 1/2 months gluten-free and when people ask how I am, I honestly answer them Great! I can't wait to have bloodwork drawn again to see how my thyroid and iron def anemia are doing.
      • 0
    12. SUZ42 added a post in a topic Need Advice On Which Vit B12 To Get   

      Is this daily? Thank you, it does help.
      • 0
    13. SUZ42 added a topic in Celiac Disease - Coping With   

      Need Advice On Which Vit B12 To Get
      I used to take B12 1000mcg monthly by injection, but decided to skip it last month in hopes that I didn't need it anymore. Well, I think I do. The exhaustion finally hit me yesterday. I would like to try the pill form before going back to the shots. I've been doing the shots since 2004. Anyway, I remember a thread about B12, and wonder if the folks who take it can pass on the brand and possibly dosage they are taking.

      • 9 replies
    14. SUZ42 added a post in a topic Question About Enterolab   

    15. SUZ42 added a post in a topic We're Going To Disney World!   

      You certainly won't be alone in asking for the gluten-free foods. My adult dtr and I are going to be at Disney World the week of June 17th! I emailed (the person to e-mail is in earlier posts about DW. I can't remember her e-mail address now.) I was e-mailed back resteraunts and foods available at all the parks and our resort we're staying at. I did call and make reservations for 2 places. I am actually more excited about the food than anything else. Well, not more excited, but close. Have a great trip!
      • 0

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